The ALS Hope Foundation
- Company typePrivate
- Founded1999
- HeadquartersPhiladelphia, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
The ALS Hope Foundation firmographics
Firmographics- Name
- The ALS Hope Foundation
- Legal name
- The ALS Hope Foundation
- Website
- https://alshf.org
- Company type
- Private
- Founded year
- 1999
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Ownership category
- akta.pro rank
The ALS Hope Foundation industry classification
Industry- Product category
- Nonprofit ALS Healthcare Services
- NAICS
- Voluntary Health Organizations (813212), Grantmaking Foundations (813211)
- SIC
- Services-Commercial Physical & Biological Research (8731)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industries
- Health & Medical Research Grantmaking Foundations (BPAGAKAL), Rare Disease & Special Needs Support Organizations (BPAGACAM)
Keywords
Where The ALS Hope Foundation is headquartered
LocationHeadquarters
- HQ city
- Philadelphia
- HQ country
- United States
- HQ region
- North America
Offices2 records
Markets served
The ALS Hope Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Donations and Charitable Contributions: The foundation receives donations from individuals, families, and supporters affected by ALS. These include direct monetary donations, memorial donations, and general contributions to support the organization's mission of care, education, and research.
- Special Events Fundraising: The organization raises funds through annual events including the Gala of Hope, Run for Hope 5K, Hope Walks for ALS, and the ALS Chocolate Meltdown Party. These events include ticket sales, sponsorships, raffles, and silent auctions.
- Sponsorships and Corporate Partnerships: Corporate sponsors support events and programs. Sponsors include companies like Green Star Exteriors (presenting sponsor for Gala), Team Toyota Glen Mills, and other healthcare-related businesses.
Go-to-market motion1 record
Distribution channels5 records
Marketing channels8 records
The ALS Hope Foundation product offering
Product offeringCore offering
The ALS Hope Foundation is a nonprofit organization dedicated to ALS (Amyotrophic Lateral Sclerosis) care, education, and research. It funds and operates the MDA/ALS Center of Hope multidisciplinary clinic at Temple University Lewis Katz School of Medicine and supports the Dr. Robert Sinnott Research Laboratory. The foundation delivers free care, support programs, and educational resources to people with ALS (PALS) and their families, funded through donations, special events, and corporate sponsorships.
Product overview
The ALS Hope Foundation is a non-profit organization dedicated to Care, Education, and Research for ALS (Amyotrophic Lateral Sclerosis). The organization operates the MDA/ALS Center of Hope multidisciplinary clinic at Temple University, funds the Dr. Robert Sinnott Research Lab, and runs support programs including the Hope Bridges Assistive Technology Program, True North Men's Group, and Wendy's Wish 911. The foundation also hosts fundraising events including Gala of Hope, Run for Hope 5K, and Hope Walks for ALS. These programs work together to provide comprehensive patient care, advance research toward a cure, and support families affected by ALS.
Differentiator
Problem solved
Functional benefit
Products and services
- MDA/ALS Center of Hope A multidisciplinary clinical care clinic located at Temple University Lewis Katz School of Medicine in Philadelphia that provides comprehensive ALS care including neurology, pulmonology, speech therapy, physical therapy, occupational therapy, nutritional support, and mental health services for patients and families with ALS.
- Dr. Robert Sinnott Research Lab A research laboratory at Temple University Lewis Katz School of Medicine dedicated to ALS research, including studies on natural history, ALS subtypes, oxidative stress, protein misfolding, and therapeutic interventions.
- Hope Bridges Assistive Technology Program A program providing in-home assistive technology assistance as follow-up to clinic visits, helping individuals access equipment and technology to support daily living with ALS.
- True North Men's Group A support group specifically designed to address gender-specific emotional needs for men living with ALS, accessible via video conference.
- Virtual Support Groups Online support groups including general PALS support groups accessible via video conference for patients and families affected by ALS.
- Veteran ALS Action Committee (VAAC) A collaborative program supporting veterans living with ALS, helping them become research ambassadors and ALS advocates, including the annual Veterans CRLI event.
- Wendy's Wish 911 A program to educate and raise awareness about challenges faced by individuals with ALS during emergencies, with the founder presenting at international conferences.
- Gala of Hope Annual fundraising gala event featuring keynote speakers, awards, and community celebration to raise funds for ALS care and research.
- Hope Walks for ALS Family Fun Day Annual fundraising walk event held at Temple University Ambler Campus to raise awareness and funds for ALS research and patient care; the 18th annual event in 2025 raised over $163,000.
- Run for Hope 5K Annual running/walking event to raise funds and awareness for ALS.
- Duck ALS A fundraising initiative with the goal of obtaining a new van (Duck Truck) for the organization to support its mission.
- Hope Loves Company - Beyond the Bunk Free monthly virtual support sessions for kids and teens impacted by ALS, guided by Child Life Specialists and mental health professionals, in partnership with Hope Loves Company.
Quantifiable outcome
- Over $163,000 raised at 18th Annual Hope Walks for ALS in September 2025
- +3 more outcomes
Companies that use The ALS Hope Foundation
Customer profileNamed customers4 records
Segments4 records
Ideal customer profiles4 records
The ALS Hope Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
AI capability2 records
The ALS Hope Foundation partnerships and signals
Strategic signalPartnerships
Twelve partnerships are on record, tiered major, core and minor.
- Green Star ExteriorsmajorGreen Star Exteriors is the presenting sponsor of the Gala of Hope events (2025 and 2026). This corporate sponsorship provides significant funding for the foundation's largest annual fundraising event.
- Justin Fiordimondo (Green Star Exteriors)majorIndividual presenting sponsor from Green Star Exteriors who emphasized family gratitude for care received at the ALS Center during Gala speeches, demonstrating personal connection to the mission.
- International Alliance of ALS/MND AssociationscoreThe ALS Hope Foundation has been a member of the International Alliance of ALS/MND Associations since 2001. The alliance brings together ALS/MND organizations from around the world. Foundation representatives regularly attend and present at annual meetings, contributing to global ALS advocacy and research coordination.
- MDA/ALS Center of Hope at Temple UniversitycoreThe ALS Hope Foundation funds the MDA/ALS Center of Hope at Temple University Lewis Katz School of Medicine. This is the foundation's primary care delivery partner, providing multidisciplinary clinical care for people with ALS. The relationship includes funding, research collaboration, and integrated patient care services.
- Dr. Robert Sinnott Research Laboratory at Temple UniversitycoreThe foundation supports the Dr. Robert Sinnott Research Laboratory at Temple University Lewis Katz School of Medicine. This laboratory conducts basic science research on ALS, including work on oxidative stress, protein misfolding, and potential therapeutic targets. The foundation has helped establish and fund this research facility.
- Northeast ALS Consortium (NEALS)coreThe ALS Hope Foundation is an active supporter and participant in NEALS, a nonprofit group of clinical research centers. The foundation is noted as one of the early supporters of NEALS. Foundation staff participate in annual meetings and the organization serves as one of 54 sites for the Healey ALS Platform Trial.
- Veterans ALS Action Committee (VAAC)majorCollaborative partnership supporting veterans living with ALS. The foundation supports the CRLI (Clinical Learning Research Institute) program for veterans, helping them become research ambassadors and ALS advocates. Joint initiatives include the annual Veterans CRLI event.
- Hope Loves CompanyminorPartnership with Hope Loves Company, an organization providing support for families touched by ALS. They collaborate on programs like Beyond the Bunk Hangout, a free monthly virtual space for kids and teens impacted by ALS.
- Wendy's Wish 911minorPartnership with Wendy's Wish 911, which aims to educate and raise awareness about challenges faced by individuals with ALS during emergencies. The foundation supports this initiative and its founder Wendy Hendrickson presents at international conferences.
- End the LegacyminorCollaboration with End the Legacy, an organization focused on genetic ALS support and education. Foundation staff including Jean Swidler and Cassandra Haddad participate in their initiatives and presentations.
- Temple University Lewis Katz School of MedicinecoreThe foundation's primary academic partner hosts both the MDA/ALS Center of Hope and the Dr. Robert Sinnott Research Laboratory. This long-standing partnership enables the integration of clinical care and research.
- Hope Bridges Program PartnersmajorThe Hope Bridges Assistive Technology Program involves partnerships with various assistive technology providers and specialists. Jennifer Doto and Sara Feldman presented this program at international forums, offering a model for other organizations.
Scale indicators12 records
Recent moves7 records
Expansion highlights5 records
The ALS Hope Foundation competitors and assessment
Company assessmentOthers
- Northeast ALS Consortium (NEALS): Consortium of clinical research sites focused on ALS trials. The ALS Hope Foundation is an early supporter and one of 54 sites, making it both a member and ecosystem peer within the ALS clinical research infrastructure.
- International Alliance of ALS/MND Associations: Umbrella alliance of which the ALS Hope Foundation is a member since 2001. Comparable as a network participant in the global ALS ecosystem, though it operates as an umbrella rather than a direct care provider.
Direct peers
- Project ALS: Disease-specific nonprofit funding ALS research and patient advocacy. Comparable mission focus and similarly small operating footprint, with overlap in research grantmaking and patient support programming.
- ALS Therapy Development Institute: Nonprofit biotech focused exclusively on ALS drug development, operating its own research laboratory. Comparable as a disease-specific ALS nonprofit, though it emphasizes drug discovery over the clinical care and education model of the ALS Hope Foundation.
- Hope Loves Company: Nonprofit providing support for families and children touched by ALS. Direct peer in the ALS support services niche; the ALS Hope Foundation runs joint programs like Beyond the Bunk Hangout with them.
- Les Turner ALS Foundation: Chicago-based ALS nonprofit providing patient services, research funding, and professional education. Strong comparable as a regional ALS foundation combining care, research, and education, similar in scope to the ALS Hope Foundation.
- Answer ALS: ALS research initiative producing the largest-ever ALS data and biorepository. Comparable as a research-focused ALS nonprofit leveraging data infrastructure, overlapping with the foundation's Natural History Study and tissue bank contributions.
- I AM ALS: Patient-led ALS advocacy organization focused on policy, research funding, and community support. Comparable as a mission-driven ALS nonprofit, though emphasizes grassroots advocacy over clinical care delivery.
Broad incumbents
- The ALS Association: The largest US nonprofit dedicated to ALS, funding global research, providing care services through certified centers, and advocating for policy. Directly comparable mission but operates at a national scale with far greater resources than the ALS Hope Foundation.
- Muscular Dystrophy Association (MDA): National nonprofit funding research and care for neuromuscular diseases including ALS. Operates the MDA/ALS Center of Hope at Temple University in partnership with the ALS Hope Foundation, making it both a partner and a comparable peer in the same clinical space.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks6 records
Key highlights6 records
Customer concentration
The ALS Hope Foundation social profiles
Digital presenceThe ALS Hope Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
The ALS Hope Foundation leadership team
Management profileNumber of profiles
Profiles4 records
The ALS Hope Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
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The ALS Hope Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about The ALS Hope Foundation
What does The ALS Hope Foundation do?
The ALS Hope Foundation is a nonprofit organization dedicated to ALS (Amyotrophic Lateral Sclerosis) care, education, and research. It funds and operates the MDA/ALS Center of Hope multidisciplinary clinic at Temple University Lewis Katz School of Medicine and supports the Dr. Robert Sinnott Research Laboratory. The foundation delivers free care, support programs, and educational resources to people with ALS (PALS) and their families, funded through donations, special events, and corporate sponsorships.
Is The ALS Hope Foundation a public or private company?
The ALS Hope Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was The ALS Hope Foundation founded?
The ALS Hope Foundation was founded in 1999. It employs 1 to 10 people.
Where is The ALS Hope Foundation based?
The ALS Hope Foundation is headquartered in Philadelphia, United States, in the North America region.
How does The ALS Hope Foundation make money?
Three revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are special Events Fundraising and sponsorships and Corporate Partnerships.
Who are The ALS Hope Foundation's main competitors?
Others on record are Northeast ALS Consortium (NEALS) and International Alliance of ALS/MND Associations. Direct peers are Project ALS, ALS Therapy Development Institute, Hope Loves Company, Les Turner ALS Foundation, Answer ALS and I AM ALS. Broad incumbents are The ALS Association and Muscular Dystrophy Association (MDA).
Does The ALS Hope Foundation have an API?
No public API is recorded for The ALS Hope Foundation.
What industry is The ALS Hope Foundation in?
The ALS Hope Foundation's product category is Nonprofit ALS Healthcare Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of BPAGAKAL, Health & Medical Research Grantmaking Foundations. Its NAICS code is 813212 and its SIC code is 8731.