Australian Coalition for Endometriosis

What Australian Coalition for Endometriosis does

The Australian Coalition for Endometriosis (ACE), now operating as the Endometriosis Coalition, is an ACNC-registered nonprofit peak body serving as the officially recognised national voice for endometriosis and pelvic pain in Australia. Formally recognised and funded by the Australian Government in March 2024, the organisation coordinates a coalition of more than a dozen ACNC-registered member organisations — including Endometriosis Western Australia, QENDO, Pelvic Pain Foundation of Australia, EndoActive, EndoZone (University of Adelaide), the Julia Argyrou Endometriosis Centre at Epworth, and the NECST Network at UNSW — spanning all eight Australian states and territories. It serves five primary stakeholder groups: patients and consumers, healthcare professionals (gynaecologists, GPs, physiotherapists, psychologists, nurses, allied health), researchers and academics, member organisations, and federal/state policymakers. Its core deliverables include national roundtable consultations, the world's first National Action Plan for Endometriosis, a National Endometriosis Priority Actions report, quarterly webinars, newsletters, and direct policy advice to government.

The organisation is not a technology company: it has no proprietary platform, API, AI/ML capability, or commercial product suite. Its primary distribution surface is its website (acendo.com.au / endometriosiscoalition.org.au), supplemented by email newsletters, social media channels (Facebook, Instagram, X at @acendometriosis), webinars, and in-person events including parliamentary and World Congress engagements. Member organisations operate their own consumer-facing tools (e.g., QENDO App via QENDO; the "My EndoReport" tool via EndoZone; Matilda digital care platform from Curtin University) but these are not owned or monetised by ACE itself.

ACE's revenue model is overwhelmingly grant-driven: it receives Commonwealth government funding as the recognised peak body, delivered in milestone-based tranches and used for national leadership, knowledge-repository functions, health-sector advisory services, and policy advice. A secondary revenue stream is annual membership fees from member organisations, with fees calculated individually based on each member's financial circumstances (no fixed pricing tiers are published). The Australian Government's separate $49 million Medicare rebate initiative and the new MBS item number for advanced endometriosis ultrasound (effective November 2025) are policy outcomes ACE influenced rather than direct revenue to the organisation. No revenue figure, headcount, or valuation is publicly disclosed.

Name

Australian Coalition for Endometriosis

Legal name

Australian Coalition for Endometriosis

Website

https://acendo.com.au

Company type

Private

Founded year

2024

Operating status

Operating

Headcount range

1–10 employees

Short description

The Australian Coalition for Endometriosis (Endometriosis Coalition) is the federally recognised national peak body for endometriosis and pelvic pain in Australia, coordinating a multi-stakeholder coalition of patient groups, clinicians, researchers, and policymakers to deliver policy advice, national consultations, and the National Action Plan for Endometriosis.

Ownership category

akta.pro rank

Product category

Health Advocacy Services

NAICS

Individual and Family Services (6241), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300)

akta.pro primary industry

Sexual & Pelvic Health Telehealth (STI care, pelvic pain, endometriosis/PCOS support) (HLALAHAJ)

Keywords

• Endometriosis advocacy
• Pelvic pain awareness
• Health policy coordination
• Peak body organization
• Women's health advocacy

Headquarters

HQ city

Eastwood

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Revenue model

1. Australian Government Grant Funding: The Endometriosis Coalition is funded through Commonwealth government grants as the recognized national peak body for endometriosis. Funding is delivered in stages, contingent on meeting agreed milestones and outcomes. The grant supports national leadership, knowledge repository functions, health sector advisory services, and policy advice to government.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels6 records

Core offering

The Australian Coalition for Endometriosis operates as Australia's federally-recognised national peak body for endometriosis and pelvic pain, delivering national advocacy, policy advice to government, sector coordination, and a central knowledge repository. It conducts national roundtable consultations, publishes reports with actionable priority recommendations (such as the National Endometriosis Priority Actions), runs quarterly webinars and newsletters, and convenes member organisations, healthcare professionals, researchers, and patients across all Australian states and territories.

Differentiator

Problem solved

Functional benefit

Products and services

• Membership Program Annual membership program available to ACNC-registered organisations, trades, associations, networks, and other Australian entities with a focus on or interest in endometriosis and pelvic pain. Provides members with sector representation, policy advocacy, and coordination benefits. Membership fees are calculated based on each organisation's individual financial circumstances.
• National Consultation Services National roundtable consultation program engaging stakeholders across all eight Australian states and territories to inform Australian Government policy on endometriosis and pelvic pain. Includes public surveys and formal consultation reports such as the National Endometriosis Priority Actions report presented to Assistant Minister Rebecca White MP in August 2025.

Quantifiable outcome

• Led development of the world's first National Action Plan for Endometriosis
• +3 more outcomes

Named customers3 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

14 partnerships are on record, tiered key partner, founding member, core member, core partner, key sponsor, member and research partner.

• Global Alliance for Female Athletes (GAFA)key partnerStrategic or Co-development Partner · 1 March 2025International initiative uniting health practitioners and sports scientists from Australia, US, UK, and NZ to advance female athlete health literacy. ACE supports GAFA's mission to address endometriosis and menstrual health disorders in elite sport. Australian Paralympian Monique Murphy previously partnered with QENDO on swimmer education.
• Endometriosis Western Australiafounding memberStrategic or Co-development PartnerFounding member organisation of the Endometriosis Coalition. Led by Akaiti James who also serves as Director on the ACE Board. Spearheaded establishment of Western Australia's first endometriosis biobank at King Edward Memorial Hospital.
• QENDOcore memberStrategic or Co-development PartnerMajor member organisation providing support, education, and resources for those affected by endometriosis. Developed the QENDO App and operates support hotline (1800 ASK QENDO). Partnered with Australian Paralympian Monique Murphy on elite athlete education.
• Pelvic Pain Foundation of Australiacore memberStrategic or Co-development PartnerCo-founded the Periods, Pain and Endometriosis Schools Program (PEPP Talk) for Year 9+ students. Led by Dr Susan Evans, Director of ACE. Provides health practitioner seminars and workplace support resources.
• EndoActivecore memberStrategic or Co-development PartnerMember organisation that developed the Endometriosis: Shared Perspectives video library and supported resources through Australian Government Department of Health grant.
• NECST Network (National Endometriosis Clinical and Scientific Trials)core partnerStrategic or Co-development PartnerPartnership with University of New South Wales for clinical trials coordination. Jointly hosted Australia and New Zealand Endometriosis Research Network event at World Congress on Endometriosis 2025.
• Julia Argyrou Endometriosis Centre at Epworthkey sponsorStrategic or Co-development PartnerCo-hosted Australia and New Zealand Endometriosis Research Network event. Sponsored the research session at 16th World Congress on Endometriosis. Research Program Manager Sarah Holdsworth-Carson serves on ACE Advisory Group.
• EndoZone (Robinson Research Institute, University of Adelaide)core memberTechnology or IntegrationMember organisation developing resources to support those impacted by endometriosis, including My EndoReport tool for health appointment preparation.
• Institute for Molecular BiosciencememberStrategic or Co-development PartnerUniversity research member contributing to endometriosis research and scientific understanding.
• Women's Health and Equality QueenslandmemberStrategic or Co-development PartnerMember organisation focused on women's health and equality issues with endometriosis advocacy focus.
• Matilda (Curtin University)memberStrategic or Co-development PartnerDigital care platform for endometriosis surgery, represented by Dr Kevin Wernli. Developing prehab and rehab resources for endometriosis surgery patients.
• Australian Women and Girls' Health Research CentrememberStrategic or Co-development PartnerResearch member contributing to women's and girls' health research with endometriosis focus.
• Queensland Fertility GroupmemberStrategic or Co-development PartnerMember organisation providing fertility-related services relevant to endometriosis care.
• NICM Health Research Institute, Western Sydney Universityresearch partnerStrategic or Co-development PartnerPartner hosting the EndoCann Trial on medicinal cannabis for endometriosis pain. Associate Professor Mike Armour leads research on menstrual health, pelvic pain, and non-pharmaceutical endometriosis management.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Endometriosis Association: One of the oldest US-based endometriosis advocacy organizations, founded in 1980. Comparable to ACE as a long-running national endometriosis patient advocacy and education body, though older and operating in a different policy environment.
• EndoActive Australia: Australian endometriosis advocacy organization and ACE member that produced the 'Endometriosis: Shared Perspectives' video library. Directly comparable as a national Australian endometriosis patient advocacy and education organization.
• QENDO: Queensland-based member organization of ACE that provides support, education, and resources for those affected by endometriosis. Operates the QENDO App and a national support hotline (1800 ASK QENDO), making it a direct comparable endometriosis support service operating in the same Australian market.
• Endometriosis Foundation of America: US-based nonprofit focused on endometriosis awareness, research, and advocacy. Comparable to ACE as a national-level endometriosis organization driving policy influence, research funding, and patient education in a major English-speaking market.
• Endometriosis UK: UK-based national charity and recognized voice for people with endometriosis. Directly comparable to ACE as a national peak advocacy body for endometriosis, focused on support services, information, research funding, and policy influence in the UK.
• Endometriosis Western Australia: Western Australian endometriosis advocacy organization and ACE founding member led by Akaiti James. Comparable as a state-based endometriosis advocacy body that established Western Australia's first endometriosis biobank at King Edward Memorial Hospital.
• Pelvic Pain Foundation of Australia: Australian nonprofit co-founded by ACE Director Susan Evans that delivers the Periods, Pain and Endometriosis Schools Program (PEPP Talk). A founding-level peer within ACE's coalition, focused on pelvic pain education and prevention in schools and workplaces.

Regional players

• Endometriosis New Zealand: New Zealand's national endometriosis organization. Comparable to ACE as a national advocacy body for endometriosis, though operating in a different (but geographically proximate) jurisdiction.

Broad incumbents

• World Endometriosis Society: International scientific and medical society organizing the World Congress on Endometriosis (which ACE participated in during 2025). A comparable global convening body for endometriosis, operating at a broader international scale than ACE's national remit.
• Cancer Council Australia: Australia's peak national nonprofit for cancer, analogous to ACE as a federally-recognized peak body model. Comparable as a larger, established national health advocacy organization in Australia that demonstrates the operational and governance scale ACE could grow toward over time.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubevimeo.com/endoactive
• Xx.com/acendometriosis
• Facebookfacebook.com/acendometriosis
• LinkedInlinkedin.com/company/australian-coalition-for-endometriosis

Revenue estimate

Valuation estimate

Number of profiles

Profiles11 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Australian Coalition for Endometriosis