Endometriosis Western Australia

What Endometriosis Western Australia does

Endometriosis Western Australia (EndometriosisWA, EWA) is a volunteer-run, not-for-profit association incorporated in Western Australia in 2019, with roots in a 2013 grassroots support group called the Endometriosis Perth Sisterhood of Support. The organization provides peer support, education, advocacy, and research engagement services to people in Western Australia affected by endometriosis, adenomyosis, and PCOS, along with their families, partners, employers, and clinicians. Its core offerings include a moderated 6,400+ member Facebook support community ('Endometriosis Western Australia Warriors'), bi-monthly educational and social events (both in-person and online), workplace and school education programs (Endometriosis @ Work 101, Masterclass, and teacher/parent sessions), and — launched in 2025 — the STEPP (Support Telephone for Endometriosis & Pelvic Pain) Program, a free nurse-led telehealth service funded by the Department of Communities Western Australia.

The organization co-established Australia's first endometriotic tissue biobank through the ENDORIGINS research project, a five-year partnership with the University of Western Australia, the Fiona Wood Foundation, and King Edward Memorial Hospital that has enrolled nearly 50 participants. It operates a registration portal, medical forum, and research network for clinicians and researchers, and is a founding member of the Australian Coalition for Endometriosis (2022). Underlying technology is conventional community, content, and telehealth tooling — there is no proprietary AI, model, or platform architecture; the organization's intellectual capital sits in its community, brand, clinical partnerships, and lived-experience leadership.

EndometriosisWA is funded through a mix of individual donations (enabled by DGR endorsement and a charitable collections licence), a $50-per-year voting membership tier (with a free non-voting membership option), and government grants, supplemented by in-kind support from corporate donors. Services are provided free of charge to end users. The organization is governed by a Board of Directors and led by CEO Caitlyn Rogers, with all operations historically delivered by volunteers rather than paid staff, and operates across Western Australia — a geographically vast state — primarily through digital channels complemented by events and telehealth.

Name

Endometriosis Western Australia

Legal name

Endometriosis Western Australia Incorporated

Website

https://endometriosiswa.org.au

Company type

Private

Founded year

2013

Operating status

Operating

Headcount range

11–50 employees

Short description

Endometriosis Western Australia is a volunteer-run not-for-profit that provides peer support, education, advocacy, and a new nurse-led telehealth service (STEPP) to people affected by endometriosis, adenomyosis, and PCOS across Western Australia, supported by donations, government grants, and the ENDORIGINS biobanking research partnership with UWA and King Edward Memorial Hospital.

Ownership category

akta.pro rank

Product category

Health Advocacy and Support Services

NAICS

Voluntary Health Organizations (813212), Social Assistance (624), Individual and Family Services (6241)

SIC

Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)

akta.pro industry

PRIMARYBPAGACAD

Mental Health & Crisis Support Services

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

Keywords

• Endometriosis support services
• Women's health advocacy
• Community health support
• Patient education programs
• Pelvic pain telehealth

Headquarters

HQ city

Subiaco

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: The organisation accepts donations from individuals and organisations to fund educational programs, support services, and research initiatives across Western Australia.
2. Voting Membership Fees: Voting membership costs $50 per year and provides voting rights for organisational decisions. Free membership is available for those who qualify.
3. Government Grants: The STEPP Program is funded by the Department of Communities Western Australia. The organisation also has DGR endorsement enabling it to receive tax-deductible donations.

Pricing tiers

Go-to-market motion2 records

Distribution channels5 records

Marketing channels7 records

Core offering

Endometriosis Western Australia is a volunteer-run not-for-profit that delivers peer support, education, advocacy, and research-enabling services for people affected by endometriosis, adenomyosis, and PCOS in Western Australia. Its core offerings include a moderated 6,400+ member Facebook support community, the STEPP nurse-led telehealth program, workplace and school education programs, community events, and the ENDORIGINS biobanking research partnership with UWA and King Edward Memorial Hospital.

Differentiator

Problem solved

Functional benefit

Products and services

• STEPP Program (Support Telephone for Endometriosis & Pelvic Pain) Free, nurse-led telehealth support service providing evidence-based education and care coordination for people with endometriosis and persistent pelvic pain in Western Australia; self-referral, no referral required, delivered by phone/video. Funded by the Department of Communities WA.
• Endometriosis @ Work 101 Introductory workplace education session for WA employers, HR teams and managers building baseline awareness of endometriosis as a workplace issue, its impact on employees, and supportive practice. Delivered at workplaces and schools.
• Endometriosis @ Work Masterclass Advanced workplace training program for WA employers and people leaders providing deeper guidance on policy, manager practice, and inclusive support for employees affected by endometriosis. Delivered at workplaces.
• Fireside Talk Educational fireside chat sessions delivered in-person and online for the EndometriosisWA community covering endometriosis-related topics, lived experience stories, and healthcare navigation.
• Endometriosis for Teachers & Parents School-based educational program equipping teachers and parents with information and tools to support students affected by endometriosis or pelvic pain.
• Free General Membership No-cost membership for individuals born or residing in Western Australia with or seeking diagnosis of endometriosis/adenomyosis, providing access to support networks, educational materials, community events, and the Warriors Facebook group.
• Voting Membership Paid annual membership ($50/year) granting voting rights at the AGM and input into organisational decisions, available on approval of membership application.
• ENDORIGINS Biobanking Project 5-year research collaboration with the University of Western Australia, Fiona Wood Foundation, and King Edward Memorial Hospital collecting clinical data and surgical samples from people having surgery for endometriosis to support research into causes, earlier diagnosis, and improved treatments.
• Medical Forum and Research Network (Clinician Registration) Registration-based service for healthcare professionals and researchers to access the EndometriosisWA Medical Forum, Research Network, and professional development events.

Quantifiable outcome

• 6,400+ members in Facebook support group (2025)
• +2 more outcomes

Named customers4 records

Segments1 record

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

24 partnerships are on record, tiered core and minor.

• University of Western Australia (UWA)coreStrategic or Co-development PartnerCollaboration on ENDORIGINS biobanking project - a 5-year study collecting clinical data and samples from people having surgery for endometriosis at King Edward Memorial Hospital. The project aims to understand how and why endometriosis occurs, leading to better diagnosis and treatments.
• Fiona Wood FoundationcoreStrategic or Co-development PartnerPartner in ENDORIGINS biobanking project supporting research into endometriosis origins. The foundation provides support and resources for the research initiative.
• King Edward Memorial Hospital (KEMH)coreStrategic or Co-development PartnerClinical partner for ENDORIGINS biobanking project where surgical samples and clinical data are collected from patients undergoing endometriosis surgery.
• Scarlet PeriodminorChannel Partner/ Reseller/ DistributorMembership partner offering exclusive discounts to EndometriosisWA members. Provides free pack of Rae cleaning wipes or 2 for 1 deal on Period Pocket Underwear with Rae Heat Pack purchase.
• Nutrition NationminorChannel Partner/ Reseller/ DistributorPerth-based dietitians offering 30% discount on their Endometriosis Program for EndometriosisWA members only.
• Dr LibbyminorChannel Partner/ Reseller/ DistributorMembership partner offering 15% discount on Dr Liberty's 'Endometriosis Explained' online event recording for EndometriosisWA members.
• Love LunaminorChannel Partner/ Reseller/ DistributorMembership partner offering 30% discount on purchases for EndometriosisWA members.
• Ross Ezekiel JewelleryminorOthersDonor of gifts and vouchers to support EndometriosisWA's 2025 initiatives.
• ShadeSkinminorOthersDonor of services to EndometriosisWA's 2025 initiatives.
• SheBangminorOthersDonor of gifts and vouchers to support EndometriosisWA's 2025 initiatives.
• Guzmán y Gómez (GYG)minorOthersDonor supporting EndometriosisWA's 2025 initiatives.
• Manila Physio LabminorOthersDonor of services to EndometriosisWA's 2025 initiatives.
• Youth LabminorOthersDonor supporting EndometriosisWA's 2025 initiatives.
• BQ AcupunctureminorOthersDonor of acupuncture services/vouchers to support EndometriosisWA's 2025 initiatives.
• Ember BathhouseminorOthersDonor supporting EndometriosisWA's 2025 initiatives.
• Subiaco HotelminorOthersDonor supporting EndometriosisWA's 2025 initiatives.
• Web WizardsminorOthersProvider of web development and design services for EndometriosisWA's website.
• Search ScopeminorOthersDonor supporting EndometriosisWA's 2025 initiatives.
• EndoZoneminorOthersEvidence-based platform co-created with people affected by endometriosis, funded by Australian Government and Jean Hailes for Women's Health. Provides interactive health report tool and symptom management resources.
• Pelvic Pain Foundation of AustraliaminorOthersResource partner providing overview of pelvic pain, causes, contributing factors, and drug-free management techniques including pelvic stretches.
• TransFolk of WAminorOthersNot-for-profit offering word-of-mouth recommendations for trans-friendly healthcare providers for LGBTQIA+ community members with endometriosis.
• Freedom CentreminorOthersCollaborated with EndometriosisWA to survey Western Australians on navigating endometriosis as LGBTQIA+ individuals. Provides support services for LGBTQIA+ young people in WA.
• ConnectGroupsminorOthersNot-for-profit supporting Western Australian support groups; directory helps connect with local support networks.
• Australian Coalition for Endometriosis (ACE)coreStrategic or Co-development PartnerEndometriosisWA is a founding member of ACE, working collaboratively at national level for endometriosis advocacy and awareness.

Scale indicators5 records

Recent moves12 records

Expansion highlights4 records

Direct peers

• EndoZone: Evidence-based digital platform co-created with people affected by endometriosis, funded by the Australian Government and Jean Hailes for Women's Health. Direct peer in endometriosis patient education and self-management tools.
• QENDO: Queensland-based endometriosis, adenomyosis, and pelvic pain support and advocacy organisation. Directly comparable as a state-level peer patient-advocacy group serving the same condition, with a parallel state-based operating model.
• Pelvic Pain Foundation of Australia: National not-for-profit focused on pelvic pain education, research, and management, including endometriosis. Peer in patient education, healthcare provider engagement, and pelvic pain advocacy, with a broader national scope.
• Endometriosis Australia: The national peak body for endometriosis in Australia, providing awareness, advocacy, and support. Directly comparable as a peer patient-advocacy organisation for the same condition, but operating nationally versus EWA's WA-only scope.

Emerging players

• PCOS Challenge: US-based patient support and advocacy organisation for polycystic ovary syndrome. Comparable as a chronic women's hormonal-condition advocacy group with peer-support, education, and research engagement models similar to EWA's.

Broad incumbents

• Jean Hailes for Women's Health: National not-for-profit dedicated to women's health across the lifespan, and a partner funder of EndoZone. Broader incumbent in women's health education and policy with overlapping endometriosis content and significantly larger national reach.

Others

• Fiona Wood Foundation: WA-based medical research foundation focused on burns and related research, and a formal co-development partner on the ENDORIGINS biobank. Comparable as a WA-based research enabler and existing strategic partner of EndometriosisWA.
• Minderoo Foundation: Major Australian philanthropic foundation with a gender equality portfolio. Indirectly comparable as a potential funder/strategic partner; EWA's Vice President currently leads Minderoo's gender equality advocacy work.

Regional players

• ConnectGroups: WA-based not-for-profit supporting Western Australian peer support groups. Directly comparable as a regional support-group umbrella organisation in the same geography, and a formal referral partner of EndometriosisWA.
• The Endometriosis Network (Tasmania): Tasmania-based patient support and advocacy group for endometriosis. Closely comparable as another state-level endometriosis support organisation, paralleling EWA's regional peer-support model in a different geography.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/endometriosiswesternaustraliawarriors
• LinkedInlinkedin.com/company/endometriosis-western-australia

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Endometriosis Western Australia