CLL Support
- Company typePrivate
- Founded2004
- HeadquartersChippenham, United Kingdom
- Headcount1–10
- GTM typeB2C
- OfferingServices
CLL Support firmographics
Firmographics- Name
- CLL Support
- Legal name
- CLL Support Association
- Website
- https://cllsupport.org.uk
- Company type
- Private
- Founded year
- 2004
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Ownership category
- akta.pro rank
CLL Support industry classification
Industry- Product category
- Chronic Lymphocytic Leukaemia Patient Support Services
- NAICS
- Other Individual and Family Services (624190), Social Advocacy Organizations (8133)
- SIC
- Services-Social Services (8300), Services-Health Services (8000)
- akta.pro primary industry
- Rare Disease & Special Needs Support Organizations (BPAGACAM)
Keywords
Where CLL Support is headquartered
LocationHeadquarters
- HQ city
- Chippenham
- HQ country
- United Kingdom
- HQ region
- Europe
Offices1 record
Markets served
CLL Support business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Infrastructure, Others
Revenue model
- Pharmaceutical educational grants: Arm's length partial funding from pharmaceutical companies including AbbVie, AstraZeneca, BeOne Medicine, Johnson & Johnson, and Eli Lilly. These grants support educational, wellbeing, and advocacy projects, with the companies having no influence over project development or materials.
- Personal donations and legacies: Individual donations, including one-time and regular (monthly/quarterly/annual) standing orders. Legacy bequests are described as an important income source. Gift Aid scheme boosts donations by 25p per £1 for UK taxpayers.
- Charitable foundation grants: Grants from charitable foundations including Postcode Lottery Community Trust (£30,000), St James's Place Charitable Foundation (£2,500), Yorkshire Building Society Charitable Foundation (£2,160), The Barbour Foundation (£1,500), and Co-op Doing Good Together Fund (£100).
- Fundraising events: Personal efforts in fundraising including challenge events, community fundraising activities. In 2025, the 20th anniversary and Challenge 20 raised approximately £33,500 including Gift Aid, exceeding the £20,000 target. The 2025 combined fundraising target was £22,100.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Others | Free lifetime membership for all |
Go-to-market motion1 record
Distribution channels5 records
Marketing channels9 records
CLL Support product offering
Product offeringCore offering
CLL Support (CLL Support Association) is a patient-led UK charity that provides information, peer support, advocacy, and wellbeing services free of charge to people affected by Chronic Lymphocytic Leukaemia (CLL) and Small Lymphocytic Lymphoma (SLL) and their families. Its core offerings include a volunteer-staffed helpline, an international online community forum (over 22,000 members on HealthUnlocked), up to six regional conferences and webinars per year, free educational publications, and targeted programmes (Support ACT for emotional wellbeing, STaR for research engagement, the Under 60 Club, Buddy Scheme, and Local Support Groups).
Product overview
CLL Support is a patient-led UK charity offering a comprehensive suite of support services for Chronic Lymphocytic Leukaemia (CLL) and Small Lymphocytic Lymphoma (SLL) patients. The organization provides a multi-channel support ecosystem including a telephone helpline staffed by experienced volunteers, the HealthUnlocked online community forum (22,000+ members), regional conferences and webinars featuring CLL experts, and publications such as the CLL Support Guide and Vaccination Guide. Additional services include Support ACT (emotional wellbeing), the STaR research engagement program, Buddy Scheme, Local Support Groups, and the Under 60 Club for younger patients. All core support services including membership, publications, and conference attendance are provided free of charge.
Differentiator
Problem solved
Functional benefit
Products and services
- CLL Support Helpline Free telephone helpline (0800 977 4396) staffed by volunteers with personal experience of CLL, offering compassionate advice and support to CLL/SLL patients and their families. Operates via an answerphone message system with callbacks within 48 hours.
- HealthUnlocked Online Community Forum International peer-support online forum hosted on HealthUnlocked with over 22,000 members. Provides support, advice and a comprehensive archive of CLL information, moderated by experienced CLL Support administrators and volunteers.
- Regional Conferences and Webinars Free regional conferences held up to six times annually across the UK (England, Wales, Scotland and Northern Ireland) featuring expert CLL consultant speakers, nurse specialists and patient networking, plus a free webinar series with clinical experts (e.g., on CLL treatments, clinical trials such as FLAIR and STATIC, and fatigue). Webinar and conference videos are made available on the CLL Support YouTube channel.
- CLL Support Publications Downloadable and orderable patient publications including the comprehensive CLL Support Guide booklet, the CLL Support Leaflet, and the Vaccination Guide for CLL/SLL patients and their doctors. Available free of charge via the website and in bulk to clinics.
- STaR (Studies, Trials and Research) Programme Research engagement programme that helps CLL/SLL patients participate in Patient and Public Involvement and Engagement (PPIE), connecting them with researchers, pharmaceutical companies and clinical trial opportunities, and maintaining a PPIE Register that has already linked members to initiatives such as the Humber and North Yorkshire Cancer Alliance prehabilitation and physical activity steering group.
- Support ACT (CLL Support Act) Emotional wellbeing support programme with guided exercises, tools and resources developed to help CLL patients cope with the psychological impact of diagnosis. Includes group drop-in sessions and 1:1 sessions with an Occupational Therapist and Behavioural Therapist.
- Buddy Scheme Telephone buddy scheme operated jointly with sister charity Leukaemia Care, connecting newly diagnosed CLL/SLL patients with trained volunteers who offer support and understanding based on personal experience.
- Local Support Groups In-person support groups run jointly with Leukaemia Care at locations across the UK, providing opportunities for CLL/SLL patients to meet for coffee and peer support.
- Under 60 Club Peer support group specifically for CLL patients under 60 years of age, addressing the unique needs of younger patients who may feel underrepresented given the average CLL diagnosis age of around 70.
- Free Membership and Newsletter Free lifetime membership offering seasonal newsletters (Winter, Spring, Summer, Autumn), a joining pack with the information booklet 'A guide for CLL and SLL patients', conference invitations and updates on the latest CLL/SLL developments, with sign-up available online or by post.
Quantifiable outcome
- Over 3,500 UK members as of 2025
- +3 more outcomes
Companies that use CLL Support
Customer profileNamed customers2 records
Segments4 records
Ideal customer profiles4 records
CLL Support technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration9 records
CLL Support partnerships and signals
Strategic signalPartnerships
Five partnerships are on record, tiered core and minor.
- UK CLL ForumcoreCLL Support is the official charity partner of the UK CLL Forum. The two organisations jointly hold annual educational sessions for healthcare professionals (2022–2026), covering CLL basics, clinical trials, treatment options, and complications. Videos from these sessions are published on CLL Support's YouTube channel.
- CLL Advocates NetworkminorCLL Support collaborated with the CLL Advocates Network and BeOne on a film about Active Monitoring, featuring CLL Support Chair Peter Allen, aimed at improving understanding and support for people living on Active Monitoring.
- Leukaemia CarecoreCLL Support runs a Buddy Scheme and Local Support Groups in partnership with sister charity Leukaemia Care. These programmes connect newly diagnosed patients with trained volunteers and facilitate local peer support meetings around the country.
- Humber and North Yorkshire Cancer AllianceminorCLL Support connected PPIE Register members with the Humber and North Yorkshire Cancer Alliance for involvement in a steering group on prehabilitation and physical activity — a first success for the PPIE Register.
- HealthUnlockedcoreHealthUnlocked hosts the CLL Support online forum. The platform provides the infrastructure for the community of over 22,000 members. CLL Support administrators and volunteers moderate the forum.
Scale indicators7 records
Recent moves7 records
Expansion highlights6 records
CLL Support competitors and assessment
Company assessmentBroad incumbents
- Cancer Research UK: UK's largest cancer charity, funding research and providing patient information across all cancer types including blood cancers. Comparable as a research-funding and patient-information organisation that overlaps with CLL Support's information and PPIE activities.
- Macmillan Cancer Support: One of the largest UK cancer charities, providing information, financial and emotional support across all cancer types including CLL. Comparable as a broader incumbent operating overlapping services (helpline, information, peer community) but at much larger scale and across all cancers.
Regional players
- Lymphoma Research Foundation: US-based lymphoma (including SLL/CLL) research and patient support charity. Comparable mission and disease scope but serves a different geography; useful peer for understanding US patient-advocacy models and international CLL/SLL information offerings.
Direct peers
- Lymphoma Action: UK charity supporting patients with lymphoma, including SLL — a condition explicitly within CLL Support's remit. Highly comparable peer in structure (helpline, peer support, publications, conferences) and patient population overlap.
- Leukaemia Care: UK blood-cancer charity that co-runs CLL Support's Buddy Scheme and Local Support Groups. Directly comparable as a UK haematology patient-support charity with overlapping services (helpline, peer support, publications) and overlapping patient populations.
- Myeloma UK: UK disease-specific blood cancer charity providing information, support and advocacy for myeloma patients. Closely comparable as a UK haematology disease-specific patient organisation with helpline, publications and peer-support services.
- Blood Cancer UK: UK charity funding research and providing information and support across all blood cancers, including CLL. Closely comparable in mission (information, support, research advocacy) and donor model, but with a broader disease scope than CLL Support.
- Leukaemia UK: UK leukaemia-focused charity funding research and providing patient information and support. Comparable as a UK blood-cancer charity with overlapping patient population (CLL patients) and similar information/research-advocacy remit.
- CLL Advocates Network: Global CLL-specific advocacy network of patient organisations. CLL Support has collaborated with them on the Active Monitoring film; highly comparable as a CLL-focused peer, operating at international rather than UK level.
Emerging players
- Anthony Nolan: UK charity focused on stem cell transplantation and blood cancer, with patient support services. Comparable in haematology patient support and information provision, though with a more specific transplant-orientation than CLL Support's broader CLL remit.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks5 records
Key highlights7 records
Customer concentration
CLL Support social profiles
Digital presenceCLL Support compliance and trust
Trust signalCompliance2 records
CLL Support financial estimates
Financial estimateRevenue estimate
Valuation estimate
CLL Support leadership team
Management profileNumber of profiles
Profiles8 records
CLL Support subsidiaries and ownership
Company hierarchySubsidiaries2 records
CLL Support funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
CLL Support M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about CLL Support
What does CLL Support do?
CLL Support (CLL Support Association) is a patient-led UK charity that provides information, peer support, advocacy, and wellbeing services free of charge to people affected by Chronic Lymphocytic Leukaemia (CLL) and Small Lymphocytic Lymphoma (SLL) and their families. Its core offerings include a volunteer-staffed helpline, an international online community forum (over 22,000 members on HealthUnlocked), up to six regional conferences and webinars per year, free educational publications, and targeted programmes (Support ACT for emotional wellbeing, STaR for research engagement, the Under 60 Club, Buddy Scheme, and Local Support Groups).
Is CLL Support a public or private company?
CLL Support is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was CLL Support founded?
CLL Support was founded in 2004. It employs 1 to 10 people.
Where is CLL Support based?
CLL Support is headquartered in Chippenham, United Kingdom, in the Europe region.
How does CLL Support make money?
Four revenue lines are on record. Pharmaceutical educational grants are the primary driver. The others are personal donations and legacies, charitable foundation grants and fundraising events.
Who are CLL Support's main competitors?
Broad incumbents on record are Cancer Research UK and Macmillan Cancer Support. Lymphoma Research Foundation is listed as a regional player. Direct peers are Lymphoma Action, Leukaemia Care, Myeloma UK, Blood Cancer UK, Leukaemia UK and CLL Advocates Network. Anthony Nolan is listed as an emerging player.
Does CLL Support have an API?
No public API is recorded for CLL Support.
What industry is CLL Support in?
CLL Support's product category is Chronic Lymphocytic Leukaemia Patient Support Services. Its primary akta.pro industry code is BPAGACAM, Rare Disease & Special Needs Support Organizations. Its NAICS code is 624190 and its SIC code is 8300.