Epilepsy Association of Western and Central PA

What Epilepsy Association of Western and Central PA does

The Epilepsy Association of Western and Central PA (EAWCP) is a private non-profit service organization founded in 1972 and headquartered at the Cardello Building in Pittsburgh, with a regional office in the Harrisburg/Camp Hill area and additional field staff in Erie. Operating with five employees and a volunteer board that includes leadership from UPMC, Allegheny Health Network, Highmark, Reed Smith LLP, and Edward Jones, EAWCP delivers a broad portfolio of free or low-cost programs to individuals and families affected by epilepsy and seizure disorders across western and central Pennsylvania. The service portfolio spans emergency anti-seizure medication assistance, Project School Alert seizure training, the Oscar Project seizure-response dog program, Emma's Gift movement-monitor funding, Camp Frog and weekend retreats, healthcare transition and employment preparation services, scholarships, respite care, special education/IEP support, the Mason Langford Center for SUDEP, and recurring educational conferences such as Everything Epilepsy.

The organization is funded through a diversified mix typical of regional health nonprofits: private donations, foundation and corporate grants, a contract with the Pennsylvania Department of Health, corporate and individual event sponsorships (Mardi Gras Gala tiers up to $25,000, Family Fun Run/Walk, golf outings), workplace giving through United Way and state/federal campaigns, matching gifts, and memorial/honor donations. Distribution is hybrid — direct in-person and phone support from regional offices, school- and community-based training, healthcare-provider referrals, pharmacy partnerships for emergency medication, and digital channels including a website, email newsletters via Constant Contact, a YouTube channel, and webinars. The Everything Epilepsy Webinar Series is co-sponsored by six pharmaceutical firms (Greenwich Biosciences, LivaNova, SK Life Sciences, Zogenix, UCB, Neurelis), and on-demand seizure first-aid training is co-distributed through Epilepsy Alliance America.

EAWCP's strategic posture is that of a high-efficiency regional anchor for epilepsy services rather than a technology platform: it leverages professional advisory expertise, healthcare-system board representation, and long-standing community events (the 32nd annual Mardi Gras Gala and 34th annual Family Fun Run/Walk are documented) to sustain program delivery and donor engagement. The 1-in-26 lifetime prevalence of epilepsy and the SUDEP incidence figures cited in its materials frame a persistent underlying demand for the organization's services across its catchment area.

Name

Epilepsy Association of Western and Central PA

Legal name

Epilepsy Association of Western and Central PA

Website

https://eawcp.org

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

The Epilepsy Association of Western and Central PA is a 1972-founded non-profit that delivers free education, emergency medication, seizure training, service-dog placement, and support programs to individuals and families affected by epilepsy across western and central Pennsylvania.

Ownership category

akta.pro rank

Product category

Epilepsy Support and Education Services

NAICS

Services for the Elderly and Persons with Disabilities (62412), Professional Organizations (81392)

SIC

Services-Social Services (8300), Services-Educational Services (8200)

akta.pro industry

PRIMARYBPAIAJAI

Non-Communicable Disease Prevention & Chronic Disease Programs

Business & Public Services/Public Sector & Government Administration/Public Health Administration & Regulation

SECONDARYEDAKAIAB

AAC (Augmentative & Alternative Communication) Devices, Apps & Training

Education/Special Education & Learning Support Services/Assistive Technology (AT) Assessment, Devices & Training

SECONDARYEDAJAKAF

Assistive Technology (AT) & AAC Services

Education/K–12 / Primary & Secondary Education/K–12 Special Education Services

Keywords

• Epilepsy support services
• Seizure training programs
• Epilepsy education
• Community health nonprofit
• SUDEP awareness

Headquarters

HQ city

Pittsburgh

HQ country

United States

HQ region

North America

Offices3 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Private Donations: General donations from individuals to support the organization's mission and programs.
2. Grants: Funding from various grant sources to support specific programs and services.
3. Pennsylvania Department of Health Contract: Contract with the PA Department of Health to support operations and public health programs.
4. Special Fundraising Events: Revenue from annual events including Mardi Gras Gala, Family Fun Run/Walks, golf outings, and other fundraising activities.
5. Workplace Giving Campaigns: Donations through workplace giving programs including United Way, state employee campaigns, and federal employee campaigns.
6. Matching Gifts: Employer matching gift programs where companies match employee donations.
7. Memorial/Honor Donations: Donations made in memory or honor of loved ones.
8. Corporate Sponsorships: Corporate sponsorships for events such as Mardi Gras Gala, with sponsorship tiers ranging from $500 to $25,000.

Pricing tiers

Distribution channels8 records

Marketing channels10 records

Core offering

EAWCP is a private non-profit service organization providing education, support, and direct assistance programs to individuals and families affected by epilepsy/seizure disorders across western and central Pennsylvania. Programs include emergency anti-seizure medication assistance, seizure response service dogs (Oscar Project), movement monitors, Project School Alert training, camp programs, scholarships, respite care, employment support, and SUDEP-specific grief support through the Mason Langford Center.

Product overview

The Epilepsy Association of Western and Central PA (EAWCP) is a private, non-profit service organization offering a comprehensive suite of programs and services for individuals and families affected by epilepsy/seizure disorders. Rather than a single unified technology product, EAWCP provides an integrated portfolio of direct service programs including: emergency medication assistance, the Oscar Project (seizure response service dogs), movement monitor programs (Emma's Gift), Project School Alert (seizure training for schools), healthcare transition support, employment preparation, scholarships, respite care, camp programs, educational conferences (Everything Epilepsy), and the Mason Langford Center for SUDEP support. These programs work together to address the full spectrum of needs from diagnosis through ongoing management, offering both direct assistance and educational resources throughout western and central Pennsylvania.

Differentiator

Problem solved

Functional benefit

Brands

• Mason Langford Center for Support and Learning on SUDEP: A center dedicated to providing information and support on Sudden Unexpected Death in Epilepsy (SUDEP) and resources available to families.
• Oscar Project
• Emma's Gift Program
• Mardi Gras Gala

Products and services

• Emergency Medication Program
• Project School Alert
• Seizure Training
• Oscar Project (Seizure Response Dogs)
• Movement Monitors (Emma's Gift Program)
• Camp Programs (Camp Frog)
• Healthcare Transition Program
• Employment Preparation Program
• Scholarships Program
• Respite Care (CareShare)
• Mason Langford Center for Support and Learning on SUDEP
• Special Education Services
• Everything Epilepsy Conference

Named customers10 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

20 partnerships are on record, tiered core and minor.

• Epilepsy Alliance AmericacoreStrategic or Co-development PartnerEAWCP is a member of Epilepsy Alliance America, a national organization connecting local epilepsy associations. This membership provides access to resources, training materials, and collaborative opportunities for epilepsy organizations across America.
• UPMC Comprehensive Epilepsy CentercoreStrategic or Co-development PartnerMedical advisory board member providing expertise and presenting at EAWCP educational events. Includes multiple neurologists from UPMC on the Professional Advisory Committee.
• Children's Hospital of Pittsburgh of UPMCcoreStrategic or Co-development PartnerProfessional advisory committee member providing pediatric epilepsy expertise. Staff present at EAWCP conferences and webinar series.
• Allegheny Health NetworkcoreStrategic or Co-development PartnerMedical advisory board member and presenter at educational events. Neurologists participate in EAWCP webinar series and conferences.
• Greenwich BiosciencesminorGTM or Marketing PartnerSponsor of Everything Epilepsy Webinar Series, supporting epilepsy education programs.
• LivaNovaminorGTM or Marketing PartnerSponsor of Everything Epilepsy Webinar Series; maker of VNS device; representative participates in educational workshops.
• SK Life ScienceminorGTM or Marketing PartnerSponsor of Everything Epilepsy Webinar Series; developer of S.T.E.P.S. tool for healthcare provider conversations.
• ZogenixminorGTM or Marketing PartnerSponsor of Everything Epilepsy Webinar Series supporting educational programming.
• NeurelisminorGTM or Marketing PartnerSponsor of Everything Epilepsy Webinar Series; maker of intranasal diazepam rescue medication Valtoco; representative participates in school nurse workshops.
• UCBminorGTM or Marketing PartnerSponsor of Everything Epilepsy Webinar Series supporting epilepsy education.
• Dog trainer in MichigancoreStrategic or Co-development PartnerPartnership with reputable dog trainer in Michigan for Oscar Project seizure response dog training and placement.
• PNC ParkminorGTM or Marketing PartnerVenue partner for Pittsburgh Family Fun Run/Walk for Epilepsy event.
• Highmark Inc.coreGTM or Marketing PartnerUnderwrites cost of Highmark Walk for a Healthy Community so 100% of money raised goes to participating organizations including EAWCP.
• YMCAcoreStrategic or Co-development PartnerPartner for integrated camp programs including Camp Frog; allows children with seizures to enjoy summer camp integrated with peers in existing YMCA camp.
• Camp AlleghenycoreStrategic or Co-development PartnerHost facility for Camp Frog weeklong summer camp program for children with epilepsy.
• Camp FitchminorStrategic or Co-development PartnerHost facility for weekend retreats on Lake Erie for kids and teens with epilepsy.
• WellSpan HealthminorStrategic or Co-development PartnerNeurologist Dr. Todd Barron presents at EAWCP educational events and webinars.
• Penn State Hershey Medical CenterminorStrategic or Co-development PartnerPartner in educational conferences; presenter at Everything Epilepsy conferences and webinars.
• World Institute on DisabilityminorStrategic or Co-development PartnerCoordinating GADRA support efforts for disability-led organizations in Ukraine; EAWCP joined voices in calling for disability protections.
• ROW FoundationminorStrategic or Co-development PartnerProvides epilepsy medications in underserved areas; currently sending epilepsy medicines to Ukraine during crisis.

Scale indicators8 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Danny Did Foundation: Chicago-based nonprofit advancing SUDEP awareness and seizure-monitoring technology. Closely comparable to EAWCP's Mason Langford Center and Emma's Gift Program (movement monitors) — both focus on SUDEP education and device-based seizure detection support.
• Epilepsy Alliance America: National alliance of independent, community-based epilepsy organizations of which EAWCP is a member. Member organizations share education, advocacy, and support missions, and EAWCP's Project School Alert / OnDemand training is co-promoted through Epilepsy Alliance America channels.
• SUDEP Institute (Epilepsy Foundation): Program of the Epilepsy Foundation dedicated to SUDEP research, education, and bereavement support. Directly comparable to EAWCP's Mason Langford Center for SUDEP — both deliver grief support, education, and memorial resources to families affected by SUDEP.
• CURE Epilepsy: National nonprofit focused on epilepsy research funding and SUDEP awareness. Directly comparable mission overlap with EAWCP's Mason Langford Center for SUDEP support; competes for donor and foundation grant dollars.
• Child Neurology Foundation: National nonprofit supporting children with neurologic conditions including epilepsy. Comparable to EAWCP's pediatric focus areas (Children's Hospital of Pittsburgh partnership, Camp Frog, pediatric transition program, and school-based IEP/504 services).
• Epilepsy Foundation Eastern Pennsylvania: Regional affiliate of the Epilepsy Foundation of America serving eastern Pennsylvania. Comparable geographic scope, programming (seizure training, camps, support groups), and beneficiary focus to EAWCP, though operating in the eastern portion of the same state.

Broad incumbents

• Epilepsy Foundation of America: The largest national epilepsy nonprofit in the U.S., providing education, advocacy, research funding, and local affiliate services. EAWCP operates as a regional complement; both compete for donor dollars and serve overlapping beneficiary populations with education, awareness, and direct support programs.
• American Epilepsy Society: Professional society for clinicians and researchers in epilepsy. Comparable education and conference programming to EAWCP's Everything Epilepsy Conference, but operating at the professional/medical-research tier rather than direct beneficiary services.

Others

• National Association of Epilepsy Centers: Accrediting and advocacy body for specialized epilepsy centers (Level 3/4). Partners and refers to organizations like EAWCP for patient-facing education and support services, making it a complementary rather than directly competing entity.

Emerging players

• The Charlie Foundation for Ketogenic Therapies: Nonprofit advancing ketogenic dietary therapies for epilepsy and other neurological conditions. Comparable disease-focus and educational mission to EAWCP, though more narrowly focused on dietary interventions.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UCFf3e25dsDu-GKbq4LH8y2Q
• LinkedInlinkedin.com/company/eawcp

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsy Association of Western and Central PA