European Liver Patients' Association - ELPA

What European Liver Patients' Association - ELPA does

European Liver Patients' Association (ELPA) is a Brussels-headquartered, Belgian-domiciled nonprofit patient advocacy organization founded in 2004, serving as the pan-European umbrella for 27 national liver patient associations across Europe and the Mediterranean Basin. Its functional mission is to amplify the collective voice of people affected by hepatitis B, hepatitis C, NAFLD/NASH, hepatic encephalopathy, rare liver diseases, and related conditions — a population estimated at over 200 million in the EU — through policy advocacy, awareness campaigns, capacity building, and patient-led research monitoring. ELPA's portfolio is organized as a set of discrete programs rather than a unified software product: member services (ELPA University, ELPA@HOME, ELPA Members Project Support), research and policy monitoring (Hep-CORE Study, Patient Voice Database), awareness initiatives (Time to DeLiver campaign, Hep C – From Hell to Hope documentary, Spring European Testing Week), and digital touchpoints (ClinicalTrials.eu trial-finder portal, ELPA Podcast, publications library).

ELPA's revenue model is grant- and sponsorship-driven, not commercial. Core funding flows from three sources: corporate unrestricted grants (AbbVie, Gilead, MSD for Hep-CORE), EU research project grants (ARTEMIS consortium, INTEGRATE Joint Action), and member-association contributions. No pricing model exists for core services, which are free to patient groups. The go-to-market is community-led and event-driven: ELPA activates its 27-country member network, hosts policy events at the European Parliament, and engages EU institutions, EASL, and WHO directly. Underlying technology is light — primarily content publishing, a clinical trial search portal, and a structured patient-experience database — rather than a deep proprietary platform. Governance is member-driven under President Marko Korenjak, with no parent company, venture backing, or public listing.

Name

European Liver Patients' Association - ELPA

Legal name

European Liver Patients' Association

Website

https://elpa.eu

Company type

Private

Founded year

2004

Operating status

Operating

Headcount range

11–50 employees

Short description

European Liver Patients' Association (ELPA) is a Brussels-based nonprofit umbrella for 27 national liver patient associations across Europe, advocating for people affected by liver diseases through policy engagement, awareness campaigns, capacity building, and patient-led research.

Ownership category

akta.pro rank

Product category

Patient Advocacy

NAICS

Social Advocacy Organizations (8133)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Hepatology & Liver Disease (HLAKAEAB)

akta.pro secondary industry

Hepatology (Viral Hepatitis) (HLAKAGAC)

Keywords

• Patient advocacy services
• Liver disease awareness
• Health policy advocacy
• Patient capacity building
• Hepatitis research monitoring

Headquarters

HQ city

Brussels

HQ country

Belgium

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Corporate Sponsorships and Grants: ELPA receives support from pharmaceutical companies and corporate sponsors for specific projects and initiatives, such as the Hep-CORE study funded by AbbVie Inc, Gilead Sciences Inc, and MSD.
2. EU Research Project Funding: ELPA participates in EU-funded research projects such as ARTEMIS and INTEGRATE Joint Action, receiving grant funding for collaborative research initiatives.

Go-to-market motion2 records

Distribution channels3 records

Marketing channels6 records

Core offering

ELPA is a nonprofit patient advocacy organization that promotes the interests of people with liver disease across Europe through its network of 27 national member associations. It delivers awareness campaigns, policy advocacy at EU and national levels, capacity-building programmes for patient groups, and patient-led research such as the Hep-CORE hepatitis policy monitoring study. Supporting digital tools include the ClinicalTrials.eu search portal and the Patient Voice Database.

Product overview

European Liver Patients' Association (ELPA) is a patient advocacy organization that does not offer a unified software product but rather provides a portfolio of services and programmes. The core offering consists of member support through ELPA@HOME visits and the ELPA Members Project Support programme. Research and monitoring capabilities include the Hep-CORE Study (patient-led hepatitis B and C policy monitoring). Awareness and education initiatives comprise ELPA University (capacity building programme), the Time to DeLiver campaign on hepatic encephalopathy, the Hep C – From Hell to Hope documentary, and Spring European Testing Week campaigns. Additional services include ClinicalTrials.eu, The Patient Voice Database, an ELPA Podcast, and ELPA Publications. These initiatives work together to advance liver health advocacy, awareness, research, and patient support across Europe.

Differentiator

Problem solved

Functional benefit

Brands

• ELPA University: Year-long capacity building programme on liver health and advocacy combining theoretical learning and skills-based trainings for patient group representatives.
• Hep-CORE Study
• Time to DeLiver
• ELPA@HOME
• ELPA@HOME
• Hep C – From Hell to Hope

Products and services

• ELPA University Year-long capacity building programme on liver health and advocacy combining theoretical learning and skills-based trainings across 3-4 modules, designed to enable ELPA members to advocate for improved liver health services.
• Hep-CORE Study Patient-led monitoring study tracking implementation of hepatitis B and C policy recommendations across Europe, conducted by a research team led by Prof. Jeffrey V. Lazarus and funded through unrestricted grants from AbbVie, Gilead Sciences, and MSD.
• ELPA@HOME Member empowerment service in which ELPA experts visit different countries to work with NGOs, patients, physicians, and media to improve activities and build broader coalitions for liver health.
• ClinicalTrials.eu Online clinical trial search portal focused on liver diseases, enabling patients to find and participate in relevant liver disease clinical trials across Europe.
• The Patient Voice Database Database platform for capturing and amplifying patient voices and experiences in liver disease research and policy, used to inform research priorities and policy advocacy.
• Time to DeLiver campaign Awareness campaign focused on hepatic encephalopathy, a potentially life-threatening neuropsychiatric condition associated with liver disease that affects up to 40% of patients with advanced chronic liver disease.
• ELPA Interviews Video interview series featuring patient stories, healthcare professionals, and advocates to raise awareness about liver disease and ELPA's work.
• Spring European Testing Week Recurring pilot campaign in collaboration with INTEGRATE Joint Action to promote hepatitis and HIV testing awareness and access across Europe.
• ELPA Members Project Support Support programme providing resources and guidance to ELPA member organizations for project development and implementation within their countries.
• ELPA Projects portfolio Portfolio of ELPA-initiated projects for member support, including capacity building, research monitoring, awareness campaigns, and testing initiatives across Europe.
• ARTEMIS EU research project partnership ELPA's participation as a partner in the ARTEMIS EU research consortium, contributing patient perspectives to advance liver disease research, data generation, and translation of research into patient benefits.

Quantifiable outcome

• 52% of surveyed countries lack national strategies to address viral hepatitis despite WHO resolutions
• +3 more outcomes

Named customers2 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Partnerships

Eight partnerships are on record, tiered core and supporting.

• ARTEMIS ConsortiumcoreStrategic or Co-development Partner · 22 January 2026ELPA participates as a partner in the ARTEMIS EU research project, contributing patient perspectives to collaborative research on liver disease. The project aims to advance innovation, improve data generation, and ensure research translates to patient benefits.
• INTEGRATE Joint ActioncoreStrategic or Co-development Partner · 17 May 2019ELPA collaborates with the INTEGRATE Joint Action on the Spring European Hepatitis-HIV Testing Week initiative, combining efforts to increase testing awareness and access across Europe.
• EASL (European Association for the Study of the Liver)coreStrategic or Co-development PartnerELPA works closely with EASL, the leading European professional body for hepatology. This collaboration focuses on harmonizing treatment and care standards across Europe, promoting evidence-based practices, and facilitating knowledge exchange between patients and healthcare professionals.
• European Union InstitutionscoreStrategic or Co-development PartnerELPA engages with European Parliament, EU Commission, and other EU bodies to advocate for liver health policies, host events at the European Parliament, and participate in EU-funded research projects. The Brussels headquarters enables close policy engagement.
• AbbVie IncsupportingGTM or Marketing PartnerAbbVie provided unrestricted grant funding for the Hep-CORE study, a patient-led monitoring tool for viral hepatitis policy in Europe. This corporate partnership enabled research activities and publication of findings.
• Gilead Sciences IncsupportingGTM or Marketing PartnerGilead Sciences provided unrestricted grant funding for the Hep-CORE study, supporting ELPA's work in monitoring viral hepatitis policy implementation across Europe.
• MSDsupportingGTM or Marketing PartnerMSD provided unrestricted grant funding for the Hep-CORE study, contributing to ELPA's policy monitoring initiatives across European countries.
• Barcelona Institute of Global Health (ISGlobal)coreStrategic or Co-development PartnerResearch partnership led by Prof. Jeffrey V. Lazarus for the Hep-CORE study, combining academic expertise with patient organization insights to monitor viral hepatitis policy implementation across Europe.

Scale indicators6 records

Recent moves6 records

Expansion highlights6 records

Regional players

• British Liver Trust: UK-focused liver patient advocacy organization; comparable in disease focus and patient-led model, but operates nationally rather than pan-European, providing a useful single-country benchmark.

Direct peers

• Cancer Patients Europe: European umbrella for cancer patient organizations; comparable operating model and EU policy engagement, and an active ELPA collaborator (joint nutrition in cancer care policy work at European Parliament, 2026).
• EURORDIS - Rare Diseases Europe: European umbrella for rare disease patient organizations; directly comparable to ELPA's emerging rare liver disease work, with similar Brussels-based EU policy model and federation structure.
• European Patients' Forum (EPF): Umbrella body of European patient organizations across disease areas; comparable to ELPA as a Brussels-based advocacy federation operating at EU level with member organizations and EU institutional engagement.
• The Hepatitis C Trust: UK patient-led hepatitis C advocacy organization; comparable to ELPA's Hep-CORE work and broader hepatitis elimination advocacy, though focused on a single country and disease.
• European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA): European umbrella for digestive disease patient organizations; comparable federation structure and EU policy engagement model, though focused on IBD rather than liver disease.
• European AIDS Treatment Group (EATG): European patient-led HIV advocacy organization; comparable in patient-led advocacy model and partnership with ELPA on the Spring European Hepatitis-HIV Testing Week initiative.
• World Hepatitis Alliance: Global patient-led umbrella organization for hepatitis B and C advocacy; directly comparable to ELPA as a federation of patient groups influencing policy, with similar funding model and Hep-CORE-adjacent data initiatives.
• EASL (European Association for the Study of the Liver): Leading European professional body for hepatology and ELPA's core partner; comparable in that both shape liver health policy and clinical guidelines across Europe, though EASL represents clinicians rather than patients.

Broad incumbents

• American Liver Foundation: Largest US liver-focused patient advocacy organization; comparable in mission and disease scope but operates in North America with broader program portfolio and significantly larger donor base.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat6 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/EuropeLiver
• Facebookfacebook.com/EuropeLiver
• LinkedInlinkedin.com/company/european-liver-patients-association
• Instagraminstagram.com/elpa.eu/?hl=en

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about European Liver Patients' Association - ELPA