Hemophilia Foundation of Northern California

What Hemophilia Foundation of Northern California does

The Hemophilia Foundation of Northern California, operating as the Northern California Bleeding Disorders Foundation (NorCalBDF), is a 501(c)(3) nonprofit patient advocacy organization founded in 1958 and headquartered at a mailing address in Morgan Hill, California. The organization serves individuals and families affected by bleeding disorders — including hemophilia, von Willebrand disease, platelet disorders, and other rare bleeding conditions — throughout Northern California. Its mission is to provide advocacy, education, outreach, and support services free of charge to the community, with no commercial pricing model in place.

NorCalBDF's service portfolio comprises a unified set of community programs rather than a technology product platform. Core offerings include an advocacy program; culturally-specific programs for Asian Pacific (Asian Pacific Infusion), Latino (Familia de Sangre, Latino Community Bleeding Disorder Education), and women/girls (The Female Factor Retreat) populations; residential programming (Camp Hemotion, Family Camp); community events (Unite for Bleeding Disorders Walk, Springfest, WinterFest in San Jose and Fresno, Santa Rosa Fall Summit); an Emergency Assistance Program; and educational resources including a Bleeding Assessment Test, a directory of local Hemophilia Treatment Centers, crisis resources, and the quarterly INFUSIONS newsletter. The organization maintains a multi-channel presence across its website, social media (Facebook, LinkedIn, Instagram, YouTube, Twitter/X), and in-person events.

The business model is donation- and grant-funded rather than revenue-generating, with services delivered free to community members. Outreach is conducted through a 16-person staff and a board governance structure, with Ashley Gregory serving as Associate Director of Education & Advocacy. The organization does not disclose funding rounds, revenue figures, or financial metrics in the available source material.

Name

Hemophilia Foundation of Northern California

Legal name

Northern California Bleeding Disorders Foundation

Website

https://hemofoundation.org

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

The Northern California Bleeding Disorders Foundation (NorCalBDF) is a 1958-founded nonprofit that provides free advocacy, education, outreach, and support services to individuals and families affected by hemophilia, von Willebrand disease, and other bleeding disorders throughout Northern California.

Ownership category

akta.pro rank

Product category

Nonprofit Patient Advocacy

NAICS

Voluntary Health Organizations (813212), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

Keywords

• Bleeding disorders advocacy
• Patient support services
• Community health education
• Hemophilia community programs
• Nonprofit healthcare outreach

Headquarters

HQ city

Morgan Hill

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales

Distribution channels1 record

Marketing channels8 records

Core offering

A nonprofit patient advocacy organization that delivers advocacy, education, outreach, and support services free of charge to individuals and families in Northern California affected by bleeding disorders, including hemophilia, von Willebrand disease, and platelet disorders. Offerings span culturally-tailored community programs (Asian Pacific Infusion, Familia de Sangre, Latino Community Bleeding Disorder Education), recreational camps (Camp Hemotion, Family Camp), community-building events (Springfest, The Female Factor Retreat, Unite for Bleeding Disorders Walk), emergency financial assistance, crisis resources, and a quarterly newsletter (INFUSIONS).

Product overview

The Northern California Bleeding Disorders Foundation operates as a non-profit organization offering a unified portfolio of community support programs and resources rather than a technology product platform. The core offerings include advocacy services, culturally-specific community programs (Asian Pacific Infusion, Familia de Sangre, Latino Community Education), recreational camps (Camp Hemotion, Family Camp), community events (Springfest, The Female Factor Retreat, Unite for Bleeding Disorders Walk), emergency assistance, educational resources (Bleeding Assessment Test, HTC Directory), and the quarterly INFUSIONS newsletter. These programs collectively serve the needs of the bleeding disorders community through advocacy, education, outreach, and support.

Differentiator

Problem solved

Functional benefit

Products and services

• Advocacy Program Advocacy services supporting individuals and families affected by bleeding disorders through education, policy support, and navigation of healthcare and patient rights resources.
• Asian Pacific Infusion Specialized program providing culturally appropriate support and education for Asian Pacific community members affected by bleeding disorders.
• Camp Hemotion Annual recreational camp program for individuals with bleeding disorders, providing community connection and outdoor experiences; Camp Hemotion 2026 is referenced as upcoming.
• Familia de Sangre Spanish-language family support program providing education and resources for Latino families affected by bleeding disorders.
• Family Camp Family-oriented camp experience designed to support families dealing with bleeding disorders through shared recreation and education.
• Latino Community Bleeding Disorder Education Educational outreach program specifically designed for the Latino community to raise awareness and provide information about bleeding disorders.
• Springfest Seasonal community event bringing together individuals and families affected by bleeding disorders.
• The Female Factor Retreat Retreat program focused on the needs of women and girls affected by bleeding disorders.
• Unite for Bleeding Disorders Walk Annual fundraising walk bringing together the bleeding disorders community, scheduled in Walnut Creek and other Northern California locations.
• Emergency Assistance Program Crisis support resource providing emergency financial assistance to individuals with bleeding disorders facing urgent needs.
• INFUSIONS Newsletter Quarterly newsletter providing updates, education, and community news for the bleeding disorders community.
• Local Hemophilia Treatment Centers (HTCs) Directory Directory of local Hemophilia Treatment Centers providing care and management resources for the bleeding disorders community.

Segments1 record

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Scale indicators1 record

Recent moves6 records

Expansion highlights6 records

Emerging players

• Factor My DNA: A bleeding disorders patient community and education platform serving patients and families with hemophilia and related conditions. Comparable target audience and educational mission to NorCalBDF, with a more digital-native delivery model.

Direct peers

• Central California Hemophilia Foundation: A California-based regional chapter serving bleeding disorders patients in Central California with education, advocacy, and family support programs. Highly comparable in scope, structure, and disease focus to NorCalBDF as a fellow state chapter.
• Hemophilia Association of San Diego County: A regional bleeding disorders nonprofit serving San Diego County with community education, advocacy, and patient support services. Another California-based chapter peer with similar operational model and constituent base.
• Bleeding Disorders Foundation of Washington: A regional chapter serving the bleeding disorders community in Washington state, providing similar programs including education, advocacy, camps, and emergency assistance. A Pacific Northwest regional peer with comparable nonprofit structure and mission.
• Hemophilia Foundation of Southern California: A regional bleeding disorders chapter serving Southern California with similar programs including camps, advocacy, and patient education. Closest direct peer given same state, same disease focus, and comparable nonprofit chapter structure.

Broad incumbents

• National Organization for Rare Disorders (NORD): A national umbrella organization representing the rare disease community, including bleeding disorders. Operates overlapping disease-specific patient support and policy advocacy with comparable nonprofit infrastructure and donor base.
• National Hemophilia Foundation: The national umbrella organization for bleeding disorders in the US, providing advocacy, education, and research funding across all states. Directly comparable mission to NorCalBDF but operates at national scale and likely funnels referrals and resources to regional chapters.
• Hemophilia Federation of America: A national patient-led organization serving the bleeding disorders community through advocacy, education, and community support programs. Operates overlapping mission and programs with NorCalBDF, particularly around community education, family programming, and policy advocacy.
• World Federation of Hemophilia: The global umbrella organization for hemophilia and bleeding disorders, focused on improving access to treatment and care worldwide. Operates the bleeding disorders community space with similar advocacy and education mission but at international scale.

Others

• American Cancer Society (California Division): A large national health nonprofit operating with regional chapters in California providing patient support, advocacy, and disease education. Comparable as a regional health nonprofit serving California communities, though focused on a different disease vertical.

Market position

Strengths4 records

Weaknesses3 records

Competitive moat5 records

Key risks5 records

Key highlights5 records

Customer concentration

• Xx.com/HemoFoundation
• YouTubeyoutube.com/channel/UCJVoJH5oaxOQGqFOg70NZRg
• Facebookfacebook.com/NorCalBDF
• LinkedInlinkedin.com/company/hemophilia-foundation-of-northern-california
• Instagraminstagram.com/hemo_norcal

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Hemophilia Foundation of Northern California