MND and Me Foundation
MND and Me Foundation is a Queensland non-profit providing free support services, equipment loans, communication aids, and financial grants to people living with Motor Neurone Disease and their families, funded entirely through community donations and corporate partnerships.
- Company typePrivate
- Founded2011
- HeadquartersCoorparoo, Australia
- Headcount1–10
- GTM typeB2C
- OfferingServices
What MND and Me Foundation does
MND and Me Foundation is a Queensland-registered charitable non-profit (established 2011) that delivers wraparound support services at no cost to Queenslanders living with Motor Neurone Disease (MND) and their families. Its core operations comprise support coordination, an equipment lending program (wheelchairs, beds, hoists, communication devices), financial grants (Sarah Durand Client Grants up to $4,000 and Carer Respite Support Grants up to $5,000 per year), child psychology services, and support groups. The foundation has built a proprietary digital platform around the PRISM: MND Toolbox App, co-developed with the University of Queensland, which provides medication coordination, symptom diaries, equipment tracking, and appointment scheduling for MND patients, with data storage compliant with Australian Privacy Principles and GDPR.
The foundation's technology-enabled communication offering, branded the Communication Connect Program, bundles iPads, eye gaze equipment, and voice preservation services including SpeakUnique voice banking and ElevenLabs AI voice cloning (delivered through ElevenLabs' Impact Program) to help clients retain authentic communication as speech declines. The organization is 100% community-funded, with no government operational funding, and generates income through individual donations, corporate partnerships (NTI as flagship partner, plus MW Recruitment, Stone & Wood, Adina Watches, A+Signage, Blackwatch Projects, Lowes Petrol, Aussie AG, ALH Group), merchandise sales, and annual fundraising events (Pies to Pacific bike ride, Scott Sullivan Gala, Muscle Up for MND, Drive to Cure). It currently supports 280 MND clients across Queensland and has contributed $4M to MND research since 2011 through competitive grants administered by MNDRIA. The 8-employee team is led by CEO Jane Milne (since February 2020), with a board chaired by former CEO Paul Olds.
MND and Me Foundation firmographics
Firmographics- Name
- MND and Me Foundation
- Legal name
- MND and Me Foundation Limited
- Website
- https://mndandme.com.au
- Company type
- Private
- Founded year
- 2011
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- MND and Me Foundation is a Queensland non-profit providing free support services, equipment loans, communication aids, and financial grants to people living with Motor Neurone Disease and their families, funded entirely through community donations and corporate partnerships.
- Ownership category
- akta.pro rank
MND and Me Foundation industry classification
Industry- NAICS
- Services for the Elderly and Persons with Disabilities (62412), Voluntary Health Organizations (813212), Individual and Family Services (6241)
- SIC
- Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Disability Services & Independent Living Support (BPAGACAG)
- akta.pro secondary industries
- Neurological Rehabilitation Therapy In-Home (e.g., Stroke, Parkinson’s) (HSABADAE), Community Health & Prevention Program Funding (HLAJALAF)
Keywords
Where MND and Me Foundation is headquartered
LocationHeadquarters
- HQ city
- Coorparoo
- HQ country
- Australia
- HQ region
- Oceania
Offices2 records
Markets served
MND and Me Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
Revenue model
- Community Donations: The foundation is 100% funded by community donations. Individual donors contribute through the website donation portal with various suggested amounts ($20-$200).
- Corporate Partnerships & Sponsorship: Corporate partners provide financial support and in-kind donations. Major partners include NTI (truck raffle), MW Recruitment, Stone & Wood, Adina Watches, A+Signage, Blackwatch Projects, Lowes Petrol, Aussie AG, and ALH Group.
- Merchandise Sales: Online store selling merchandise with proceeds supporting foundation operations and services.
- Fundraising Events: Revenue generated from participation in events like Pies to Pacific, Gala dinners, and other fundraising activities. Corporate sponsors can support specific events with branding benefits.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Other | Pay-as-you-go | Free services for people with MND |
Go-to-market motion2 records
Distribution channels4 records
Marketing channels6 records
MND and Me Foundation product offering
Product offeringCore offering
The MND and Me Foundation provides free, wraparound support services to Queenslanders living with Motor Neurone Disease and their families. Core offerings include Support Coordination, an Equipment Lending Program (bipap, wheelchairs, hospital beds, communication devices), the Communication Connect Program (iPads, eye gaze, voice banking and AI voice cloning), financial grants (Sarah Durand Client Grants up to $4,000 and Carer Respite Support Grants up to $5,000/year), support groups, child psychology services, and competitive MND research grants administered through MNDRIA. All services are provided at no cost to clients, with the foundation 100% funded by community donations and corporate partnerships.
Product overview
The MND and Me Foundation operates as a single integrated charity organization offering a coordinated suite of support services for Queenslanders living with Motor Neurone Disease. The core product portfolio centers on the PRISM: MND Toolbox App for daily care coordination, supplemented by the Communication Connect Program which provides devices (iPads, eye gaze equipment) along with voice preservation services including SpeakUnique voice banking and ElevenLabs AI voice cloning. Direct client services include Support Coordination, an Equipment Lending Program, Support Groups, Child Psychology Services, and financial assistance through Sarah Durand Client Grants (up to $4,000) and Carer Respite Support Grants (up to $5,000/year). Research funding is provided through competitive grants administered in partnership with MNDRIA. The organization is 100% community-funded with no government operational funding.
Differentiator
Problem solved
Functional benefit
Quantifiable outcome
- 280 Queenslanders with MND currently supported
- +2 more outcomes
Companies that use MND and Me Foundation
Customer profileNamed customers1 record
Segments5 records
MND and Me Foundation technology and API
TechnologyAPI detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration3 records
AI capability2 records
Feature3 records
MND and Me Foundation partnerships and signals
Strategic signalPartnerships
13 partnerships are on record, tiered core, flagship and minor.
- University of QueenslandcoreCollaborated with University of Queensland researchers to develop the PRISM App. UQ students helped create the Voice Banking at Home Guide. UQ subsidizes costs of running the PRISM App. Researchers at UQ's MND program worked on the app development.
- ElevenLabscoreGlobal AI voice technology leader partnered with foundation through Impact Program to provide free voice cloning services for people with MND. Voice cloning technology recreates users' voices using advanced AI for use on communication devices.
- SpeakUniquecoreVoice banking service partnered with foundation allowing users to record, store, and create synthetic versions of their own voice for communication devices.
- NTI (National Transport Insurance)flagshipMajor corporate partner that runs annual truck raffle in support of foundation. A significant portion of research funds have been raised through NTI's annual truck raffle. Partner acknowledged on website and research page.
- MW RecruitmentminorCorporate partner acknowledged on website partner page with logo display.
- Stone & WoodminorCorporate partner acknowledged on website partner page with logo display.
- Adina WatchesminorCorporate partner acknowledged on website partner page with logo display.
- A+SignageminorCorporate partner acknowledged on website partner page with logo display.
- Blackwatch ProjectsminorCorporate partner acknowledged on website partner page with logo display.
- Lowes PetrolminorCorporate partner acknowledged on website partner page with logo display.
- Aussie AGminorCorporate partner acknowledged on website partner page with logo display.
- ALH GroupminorCorporate partner acknowledged on website partner page with logo display.
- Motor Neurone Disease Research Institute of Australia (MNDRIA)coreResearch grants are assessed and ranked by MNDRIA Committee. Foundation's competitive research grant process ensures quality research funding.
Scale indicators8 records
Recent moves6 records
Expansion highlights6 records
MND and Me Foundation competitors and assessment
Company assessmentDirect peers
- Muscular Dystrophy Foundation Australia: Australian non-profit supporting people with neuromuscular diseases including MND, providing equipment, support services, and research funding. Comparable in mission, fundraising model, and service delivery for similar patient populations.
- FightMND: Australia's largest MND-focused foundation, established 2014, focused on research funding and care for people with MND. Directly comparable as a non-government charity dedicated to MND care and research, with a national vs. state-level scope.
- MND Australia: National peak body for MND in Australia, providing advocacy, research funding, and coordination among state MND associations. Directly comparable as the umbrella organization connecting state-level MND support services.
Others
- International Alliance of ALS/MND Associations: Global umbrella organization for MND/ALS associations worldwide, including MND and Me Foundation. Provides industry coordination, research collaboration, and best practice sharing across member organizations.
Broad incumbents
- The ALS Association: Major US-based MND/ALS organization with global reach, providing care services, research funding, and advocacy. Comparable in mission but operates at much larger scale and across broader geography.
Regional players
- MND Victoria: State-based MND association serving Victoria with support services, equipment, research funding, and advocacy. Comparable in mission and service model but operates in a different Australian state.
- Motor Neurone Disease Association (UK): UK national MND charity providing care, research funding, and advocacy - the established international sibling organization. Comparable mission and service model in a different geography.
- Les Turner ALS Foundation: US-based MND/ALS foundation providing care services, research funding, and support for people living with ALS. Comparable service model but operates in North America.
- MND South Australia: State-based MND association serving South Australia with support services, equipment provision, and advocacy. Comparable service model and Australian state-level scope.
- MND NSW: State-based MND association serving New South Wales with similar services: support coordination, equipment, information, and advocacy. Highly comparable service model but serves a different state.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights6 records
Customer concentration
MND and Me Foundation social profiles
Digital presenceMND and Me Foundation compliance and trust
Trust signalCompliance3 records
MND and Me Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
MND and Me Foundation leadership team
Management profileNumber of profiles
MND and Me Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
MND and Me Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about MND and Me Foundation
What does MND and Me Foundation do?
The MND and Me Foundation provides free, wraparound support services to Queenslanders living with Motor Neurone Disease and their families. Core offerings include Support Coordination, an Equipment Lending Program (bipap, wheelchairs, hospital beds, communication devices), the Communication Connect Program (iPads, eye gaze, voice banking and AI voice cloning), financial grants (Sarah Durand Client Grants up to $4,000 and Carer Respite Support Grants up to $5,000/year), support groups, child psychology services, and competitive MND research grants administered through MNDRIA. All services are provided at no cost to clients, with the foundation 100% funded by community donations and corporate partnerships.
Is MND and Me Foundation a public or private company?
MND and Me Foundation is a private company. It is currently operating.
When was MND and Me Foundation founded?
MND and Me Foundation was founded in 2011. It employs 1 to 10 people.
Where is MND and Me Foundation based?
MND and Me Foundation is headquartered in Coorparoo, Australia, in the Oceania region.
How does MND and Me Foundation make money?
Four revenue lines are on record. Community Donations are the primary driver. The others are corporate Partnerships & Sponsorship, merchandise Sales and fundraising Events.
Who are MND and Me Foundation's main competitors?
Direct peers on record are Muscular Dystrophy Foundation Australia, FightMND and MND Australia. International Alliance of ALS/MND Associations is listed as an others. The ALS Association is listed as a broad incumbent. Regional players are MND Victoria, Motor Neurone Disease Association (UK), Les Turner ALS Foundation, MND South Australia and MND NSW.
Does MND and Me Foundation have an API?
No public API is recorded for MND and Me Foundation.
What industry is MND and Me Foundation in?
Its primary akta.pro industry code is BPAGACAG, Disability Services & Independent Living Support, with a secondary code of HSABADAE, Neurological Rehabilitation Therapy In-Home (e.g., Stroke, Parkinson’s). Its NAICS code is 62412 and its SIC code is 8300.