Motor Neurone Disease NSW (MND NSW)

What Motor Neurone Disease NSW (MND NSW) does

Motor Neurone Disease NSW (MND NSW) is a non-profit charitable organization founded in 1981 and headquartered in Gladesville, New South Wales, Australia. It provides information, support, and education services to people living with motor neurone disease, their families, friends, and carers across three jurisdictions: NSW, ACT, and NT. The organization is endorsed as a Deductible Gift Recipient (CFN 11154), making donations of $2 or more tax-deductible in Australia.

The organization's core service portfolio includes the MND Info Line (1800 777 175), FlexEquip (a wholly-owned subsidiary providing fast access to assistive technology and equipment), MND Upskill education sessions for health and community care professionals, and MND Hub (an e-learning platform). Additional community engagement programs include Walk to Defeat MND (annual fundraising walk), Drink Tea for MND, MND March of Faces, Circle of Care (regular giving), a supporter merchandise e-commerce shop, and a volunteer and membership program. The organization also leverages accessibility partners including the National Relay Service and TIS National for interpreting.

MND NSW's business model is multi-stream: tax-deductible donations, bequests, regular giving via Circle of Care, community fundraising events, merchandise sales through an online shop, and likely government or NDIS-related funding for FlexEquip equipment provision. The operating model is people-intensive, delivered through 18 staff and a volunteer network, with technology infrastructure limited to a Salesforce-based donation platform and the MND Hub e-learning site. In 2026, MND NSW co-developed a national health professional webinar series with sibling state associations (MND Victoria, SA, QLD, WA) and welcomed the NSW Government's decision to make MND a notifiable condition, both indicating active programmatic expansion.

Name

Motor Neurone Disease NSW (MND NSW)

Legal name

Motor Neurone Disease NSW

Website

https://mndnsw.org.au

Company type

Private

Founded year

1981

Operating status

Operating

Headcount range

11–50 employees

Short description

MND NSW is a non-profit charitable organization founded in 1981 that provides information, support, education, and assistive technology (via FlexEquip) to people living with motor neurone disease, their families, and health professionals across NSW, ACT, and NT.

Ownership category

akta.pro rank

Product category

Neurological Disease Support Services

NAICS

Individual and Family Services (6241), Services for the Elderly and Persons with Disabilities (62412), Other Individual and Family Services (624190)

SIC

Services-Health Services (8000), Services-Social Services (8300)

akta.pro primary industry

Non-Communicable Diseases (NCDs) & Mental Health Programs (BPADAIAK)

akta.pro secondary industries

Non-Communicable Disease Prevention & Chronic Disease Programs (BPAIAJAI), Chronic Disease & NCD Program Evaluation (e.g., diabetes/CVD/cancer) (HLAJANAG)

Keywords

• Motor neurone disease support
• Assistive equipment provision
• Health professional education
• Nonprofit charitable services
• Community fundraising programs

Headquarters

HQ city

Gladesville

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Distribution channels2 records

Marketing channels4 records

Core offering

MND NSW is a nonprofit charitable association that delivers information, support, and education services for people living with motor neurone disease and their families, friends, and carers across NSW, ACT, and NT. Core offerings include the MND Info Line, FlexEquip assistive technology loans, education sessions for health and care professionals, and community awareness and fundraising programs.

Product overview

MND NSW is a nonprofit organization providing a unified suite of support services for people living with motor neurone disease across NSW, ACT, and NT. The organization operates several interconnected programs: core support services including the MND Info Line and direct care support; FlexEquip for assistive technology and equipment provision; educational initiatives through MND Hub e-learning platform and MND Upskill sessions for health professionals; and community engagement programs including Walk to Defeat MND, Drink Tea for MND, and MND March of Faces. Additional offerings include a supporter gear shop, membership program, and regular giving Circle of Care program. The organization also provides information resources through sub-brands MND Blue and maintains regional support groups and events.

Differentiator

Problem solved

Functional benefit

Brands

• FlexEquip: A service of MND NSW providing fast access to a range of equipment and assistive technology
• MND Hub
• MND Blue
• Walk to Defeat MND
• Cornflower Blue Day
• MND Info Line

Products and services

• MND Support and Services

Segments2 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration1 record

Partnerships

Six partnerships are on record, tiered core and supporting.

• MND VictoriacoreStrategic or Co-development Partner · 1 January 2026Collaboration on the 2026 National MND Health Professional Webinar Series - a bundle of 5 webinars providing education for health professionals on MND care and management.
• MND SAcoreStrategic or Co-development Partner · 1 January 2026Collaboration on the 2026 National MND Health Professional Webinar Series providing national education for health professionals on MND topics.
• MND QLDcoreStrategic or Co-development Partner · 1 January 2026Collaboration on the 2026 National MND Health Professional Webinar Series. MND QLD hosted the Saliva, Secretions and Comfort in MND webinar.
• MND WAcoreStrategic or Co-development Partner · 1 January 2026Collaboration on the 2026 National MND Health Professional Webinar Series providing national education for health professionals on MND topics.
• National Relay ServicesupportingOthersNRS helps people who are d/Deaf, hard-of-hearing or experiencing speech changes communicate via relay calls.
• Translation and Interpreting Service (TIS National)supportingOthersTIS National provides interpreting services for people with limited English to access MND NSW appointments.

Scale indicators1 record

Recent moves5 records

Expansion highlights5 records

Direct peers

• FightMND: Leading Australian MND research and advocacy charity focused on funding research and raising national awareness. Competes for the same donor pool and corporate sponsorships as MND NSW in the same disease category.
• MND Western Australia: State-based MND association in Western Australia offering support, equipment, and education services. Direct collaborator on the 2026 National Webinar Series and structurally identical peer.
• MND South Australia: State-based MND association in South Australia providing parallel information, support, and education services. Direct collaborator on the 2026 National Webinar Series and equivalent operating model to MND NSW.
• Muscular Dystrophy NSW: NSW-based nonprofit supporting people living with neuromuscular conditions, including equipment and support services. Comparable state-level scope and similar disease category, with overlapping assistive technology provision.
• MND Victoria: State-based MND association serving Victoria, offering the same suite of support, information, and equipment services as MND NSW. Direct collaborator on the 2026 National Webinar Series and structurally identical mission.
• MND Australia: National peak body for motor neurone disease in Australia, providing overarching advocacy, research coordination, and member association support. Highly comparable to MND NSW as the parent-network organization in the same disease space.
• MND Queensland: State-based MND association serving Queensland with comparable support, education, and information services for people living with MND. Direct webinar collaborator and structurally identical peer organization.
• Parkinson's NSW: State-based nonprofit serving people with Parkinson's disease in NSW, providing information, support, and education. Closely parallel operating model to MND NSW as a disease-specific state association for a chronic neurological condition.

Broad incumbents

• Dementia Australia: National peak body for dementia, providing support, education, and advocacy. Comparable as a large-scale Australian health-focused nonprofit operating with similar support-line and education models but at national scale.
• MS Australia: National peak body for multiple sclerosis, another progressive neurological disease. Comparable operating model as an Australian nonprofit providing support, information, and advocacy for people with a chronic neurological condition.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/mndnsw

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Subsidiaries1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Motor Neurone Disease NSW (MND NSW)