Parkinson's NSW

What Parkinson's NSW does

Parkinson's NSW is a for-purpose non-profit organization, structured as a company limited by guarantee (ABN 93023603545), that operates as the peak body for Parkinson's in New South Wales, Australia. Headquartered at Macquarie Hospital Building 17, 51 Wicks Road, North Ryde, NSW, the organization delivers information, clinical support, education, and advocacy services to people living with Parkinson's, their families, and carers across the state. Its core service portfolio includes an InfoLine (1800 644 189) staffed by Registered Parkinson's Nurses, counselling, peer support groups, educational programs, NDIS advocacy, a Parkinson's Passport hospital-admission tool, the Act on Parkinson's program, the Stand By Me magazine, and Parkinson's Specialist Nurses deployed into rural and regional NSW. It is an NDIS Registered Provider and a member of the National Parkinson's Alliance, addressing a market context in which more than 200,000 Australians are estimated to be living with Parkinson's.

The organization is led by Chief Executive Officer Mary Kay Walker (transitioned from COO, joined 2018), with Mark Stewart serving as Chief Operating Officer and Company Secretary (joined 2023, COO since 2024) and Andy Esteban as Chair of the Board (Vice Chair from March 2025, Chair from November 2025). Recent governance expansion added Nicole Schleicher and Betsy Rumble to the board on 26 February 2026. Revenue is generated through individual donations, community fundraising events including Walk for Parkinson's and Pitch In for Parkinson's, bequests, and NDIS service delivery, with no commercial product lines or proprietary technology platforms disclosed.

Strategically, Parkinson's NSW is positioned to extend its influence beyond NSW through national advocacy vehicles, including the National Parkinson's Action Plan publicly launched on 24 March 2026 and its membership in the National Parkinson's Alliance. The Brian Sherman Memorial Awards program, hosted in 2026, reinforces its role in convening the Parkinson's community. No AI/ML capabilities, proprietary software, or data-driven service offerings are evidenced in the available material.

Name

Parkinson's NSW

Legal name

Parkinson's NSW Limited

Website

https://parkinsonsnsw.org.au

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

Parkinson's NSW is a non-profit peak body delivering information, clinical support, education, and advocacy services to people living with Parkinson's, families, and carers across New South Wales, funded by donations, fundraising, and NDIS service delivery.

Ownership category

akta.pro rank

Product category

Neurological Disease Support Services

NAICS

Services for the Elderly and Persons with Disabilities (62412), Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Parkinson’s & Movement-Disorder Personal Care Support (HSABABAJ)

akta.pro secondary industry

Neurological Rehabilitation Therapy In-Home (e.g., Stroke, Parkinson’s) (HSABADAE)

Keywords

• Parkinson's disease support
• Neurological disorder services
• Nonprofit health charity
• Ndis service provider
• Community care services

Headquarters

HQ city

Ryde

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: Parkinson's NSW relies on donations from the public, fundraising events (Walk for Parkinson's, Pitch In for Parkinson's), bequests, and community fundraising activities to fund service delivery.
2. NDIS Service Delivery: As a Registered Provider of services under the NDIS (National Disability Insurance Scheme), Parkinson's NSW delivers funded services to participants including counselling, support coordination, and education programs.

Go-to-market motion1 record

Distribution channels6 records

Marketing channels9 records

Core offering

Parkinson's NSW is a for-purpose non-profit organization that delivers essential support services to people living with Parkinson's disease, their families, and carers across New South Wales. Its core offerings include an InfoLine staffed by Registered Parkinson's Nurses, professional counselling, a statewide network of community Support Groups, education and information programs, Parkinson's Specialist Nurses in rural and regional areas, and NDIS advocacy and Registered Provider services. Services are funded through donations, fundraising, bequests, and NDIS-funded service delivery.

Product overview

Parkinson's NSW is a for-purpose organization providing essential services for people living with Parkinson's disease, their families, and carers in New South Wales. The organization operates a unified service model centered on its InfoLine (staffed by Registered Parkinson's Nurses), counselling services, and a statewide network of support groups. Core programs include education and information sessions, NDIS advocacy, and specialist Parkinson's nurse placement in rural and regional areas. The organization also provides the Parkinson's Passport and Act on Parkinson's initiative, publishes the quarterly Stand By Me magazine, and offers dedicated programs for recently diagnosed individuals and those with young onset Parkinson's.

Differentiator

Problem solved

Functional benefit

Products and services

• InfoLine Service
• Counselling Services
• Support Groups Network
• Education and Information Programs
• Parkinson's Specialist Nurses
• NDIS Registered Provider Services
• Parkinson's Passport
• Recently Diagnosed Program
• Young Onset Parkinson's Services
• Stand By Me Magazine

Quantifiable outcome

• InfoLine staffed by Registered Parkinson's Nurses provides comprehensive information and advice
• +2 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• National Parkinson's AlliancecoreStrategic or Co-development PartnerParkinson's NSW participates in the National Parkinson's Alliance, which developed Australia's first National Parkinson's Action Plan launched at Parliament House in Canberra on 24 March 2026. The Alliance comprises Parkinson's organizations working together to address unmet needs across health, disability, aged care and research.
• National Disability Insurance Agency (NDIA)coreStrategic or Co-development PartnerParkinson's NSW is a Registered Provider of services under the NDIS, complying with the National Disability Insurance Scheme Act 2013 and the National Disability Insurance Scheme (Code of Conduct) Rules 2018.
• NSW Local Health DistrictscoreStrategic or Co-development PartnerParkinson's NSW has placed Parkinson's Specialist Nurses in Northern NSW, Northern Sydney, and Southern NSW Local Health Districts to provide clinical support and education in rural and regional areas.
• Parkinson's Support Groups across NSWcoreStrategic or Co-development PartnerNetwork of community-based Support Groups including Kiama, Armidale, Temora, Port Macquarie, Orange, Evans Head, Yass, Narrabri, and many others. These groups provide peer support and organize awareness/fundraising activities.
• Venues for Support Groups (RSL clubs, bowling clubs)minorOthersVarious venues across NSW host Parkinson's Support Group meetings, including Penrith RSL, East Maitland Bowling Club, Manly-Mosman Support Group meetings at Balgowlah RSL, Illawarra North at Corrimal RSL, Tweed Heads at Club Banora, Blacktown at Club Blacktown.

Scale indicators4 records

Recent moves6 records

Expansion highlights4 records

Broad incumbents

• Dementia Australia: National peak body for dementia with a similar charity model including helpline, counselling, education, and advocacy; broader in disease scope but operates on comparable funding mechanics and service architecture.
• MS Australia (Multiple Sclerosis): National peak body for multiple sclerosis offering a comparable service mix of peer support, specialist nurses (MS Nurses), NDIS navigation, counselling, and advocacy under a state-affiliate structure.
• Spinal Cord Injuries Australia: Disability-focused charity providing NDIS services, peer support, counselling, and advocacy for people with spinal cord injuries, operating with a comparable mix of donations and NDIS-funded revenue.
• Stroke Foundation: Australia's peak stroke body providing information line, peer support, prevention programs, and advocacy; structurally identical to Parkinson's NSW in funding mix and service delivery model.
• MND Australia (Motor Neurone Disease): National organization supporting people with Motor Neurone Disease using the same volunteer-driven, fundraising-funded charity model with state affiliates, specialist nurse coordination, and advocacy focus.
• Epilepsy Australia: National federation of state-based epilepsy charities sharing a peak-body-plus-state-affiliate structure and operating information lines, support services, and advocacy on chronic neurological disease.

Direct peers

• Parkinson's Queensland: Queensland state-based Parkinson's support organization with overlapping service offerings including support groups, education, and information lines serving the same disease population.
• Huntington's NSW & ACT: State-level charity providing counselling, support groups, and education for people affected by Huntington's disease in NSW; nearly identical service delivery model and donor-funded charity structure.
• Parkinson's Australia: National peak body for Parkinson's in Australia; shares the same disease focus, advocacy mission, and donor base, serving as the federal counterpart to Parkinson's NSW's state-level role.
• Fight Parkinson's (formerly Parkinson's Victoria): State-based Parkinson's charity operating in Victoria with the same model of InfoLine, counselling, education, peer support, and specialist nursing; directly comparable in service mix and revenue model.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xtwitter.com/parkinsonsnsw

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles9 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Parkinson's NSW