Osteoporose Vereniging

What Osteoporose Vereniging does

Osteoporose Vereniging is a Dutch non-profit patient association (vereniging) headquartered in Bilthoven, the Netherlands, that advocates for and serves people with osteoporosis and osteopenia, their families, and the clinicians who treat them. Operating with approximately 6 paid staff and 6 voluntary board members, the organization functions as the recognized independent patient voice on bone health in the Netherlands, where roughly 1 million people live with osteoporosis yet only about 25% receive a correct diagnosis. The association's product surface is a content- and service-oriented digital ecosystem built on a WordPress-based website: the Osteoporose Risicocheck online risk-assessment questionnaire, the Calciummeter dietary tool, the Wegwijzer bij Osteoporose reference guide, the quarterly Bot in Balans magazine, the Keuzehulp shared-decision aid (co-developed with PATIENT+), the Startersset Samen Beslissen treatment-planning template, multilingual exercise and explainer videos (Dutch, Arabic, Turkish), and an Onderzoeksagenda research agenda developed with 443 patient inputs and prioritized by 900+ stakeholders.

The organization's business model is a hybrid non-profit revenue stack: individual memberships at €35/yr (Netherlands) and €43.50/yr (abroad), corporate memberships at €27.50/yr, one-off and periodic donations, ANBI-status bequests, pay-as-you-go publication sales (e.g., Wegwijzer €7 digital / €8.95 print), and government/charity grants from Fonds PGO (VWS ministry), ReumaNederland, and Patiëntenfederatie Nederland project funds. Distribution is primarily self-serve digital (website, newsletter 8x/yr, webinars 4–6x/yr, YouTube, Facebook) supported by a human Vragenteam hotline (Tuesday/Thursday 10:00–12:00) and an in-person presentation team. Strategic partnerships with ChronischZorgNet (1,100+ trained therapists), PATIENT+, Zorgkaart Nederland, and affiliation with Patiëntenfederatie Nederland and Ieder(in) extend the association's reach into clinical referral channels and policy advocacy, while active membership in Multidisciplinary Guideline, NHG, and V&VN committees embeds the patient perspective into Dutch clinical practice standards. Leadership is provided by Director Hendrien Witte and a supervisory board chaired by Harry van den Broek, with an open chairperson vacancy signaling upcoming succession.

Name

Osteoporose Vereniging

Legal name

Osteoporose Vereniging

Website

https://osteoporosevereniging.nl

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

Osteoporose Vereniging is the independent Dutch patient association for people with osteoporosis and osteopenia, providing expert-reviewed educational content, risk-assessment and shared-decision tools, a quarterly magazine, webinars, and advocacy, funded by memberships, donations, and health-charity grants.

Ownership category

akta.pro rank

Headquarters

HQ city

Bilthoven

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Membership Fees: Annual membership fees of €35.00 for members in the Netherlands and €43.50 for members abroad. Membership provides access to the Wegwijzer guide, Bot in Balans magazine (4x/year), info sheets for young people with osteoporosis, and free information materials.
2. Donations and Gifts: One-time and periodic donations from supporters. The association mentions that approximately 1 million people live with osteoporosis in the Netherlands, while only 25% receive proper diagnosis, positioning the cause for donations.
3. Bequests and Legacies: The association actively campaigns for legacy donations and bequests, positioning itself as an ANBI (Algemeen Nut Beogende Instelling - Public Benefit Organization), which allows donors to deduct gifts from income tax. The RSIN number is 816593413.
4. Corporate Membership: Corporate/organizational membership at €27.50 per year, intended for healthcare providers and institutions that wish to support the association. Corporate members receive Bot in Balans magazine and access to information resources.
5. Government Subsidies and Grants: Primary funding from members and donors, supplemented by annual contributions from Fonds PGO (VWS ministry) and ReumaNederland. Special projects are funded through external financing, including programs from the Patiëntenfederatie Nederland.

Pricing tiers

Go-to-market motion2 records

Distribution channels6 records

Marketing channels8 records

Core offering

The Osteoporose Vereniging is a Dutch patient advocacy association that delivers educational content, support services and self-management tools for people with osteoporosis and osteopenia. Its core offerings include the Bot in Balans quarterly magazine, the Wegwijzer bij Osteoporose guide, the Osteoporose Risicocheck and Calciummeter self-assessment tools, the Keuzehulp shared-decision aid, an annual webinar program, multilingual exercise and explanation videos, a peer-expert Vragenteam hotline, and a medication experience reporting platform. Membership is sold at €35/year (Netherlands) and €43.50/year (abroad), with a €27.50/year corporate tier.

Product overview

Osteoporose Vereniging operates as a patient advocacy organization offering a comprehensive digital information and support ecosystem for people with osteoporosis and osteopenia. The core product portfolio includes the Osteoporose Risicocheck (an online risk assessment questionnaire), the quarterly Bot in Balans magazine, the Wegwijzer bij Osteoporose reference guide, and the Keuzehulp decision support tool. These are complemented by educational digital content including webinars, exercise videos in multiple languages, and information sheets. The organization also provides healthcare finder services (Zorgzoeker via Chronisch ZorgNet and clinic finder), a question team support service (Vragenteam), and a medication reporting platform (Meldpunt Medicatie). All resources are accessible to the public, with membership providing additional benefits including free publications and access to the Starter Set for Shared Decision Making.

Differentiator

Problem solved

Functional benefit

Brands

• Bot in Balans: Magazine published four times per year for members containing news, advice, and inspiring stories about osteoporosis
• Osteoporose Risicocheck (voorheen Zwakkebottentest)
• Startersset Samen Beslissen

Products and services

• Lidmaatschap (Annual Membership)
• Osteoporose Risicocheck (formerly Zwakkebottentest)
• Wegwijzer bij Osteoporose (Reference Guide)
• Calciummeter
• Bot in Balans Magazine
• Startersset Samen Beslissen
• Infobladen Jong en Osteoporose
• Keuzehulp Osteoporose
• Webinars Program
• Beweegoefeningen (Exercise Videos)
• Handige Video's met Uitleg (Explanatory Videos)
• Zorgzoeker (Healthcare Finder via ChronischZorgNet)
• Vind een Osteoporosekliniek
• Vragenteam (Question Hotline)
• Meldpunt Medicatie

Quantifiable outcome

• 443 people with osteoporosis shared experiences for research agenda development
• +2 more outcomes

Named customers1 record

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Six partnerships are on record, tiered core and minor.

• ReumaNederlandcoreGTM or Marketing PartnerAnnual funding partner providing financial support to the Osteoporose Vereniging. ReumaNederland is the Dutch rheumatism organization that also supports osteoporosis-related initiatives. The partnership provides co-marketing opportunities and legitimacy through association with a well-known health charity.
• ChronischZorgNetcoreStrategic or Co-development PartnerStrategic partnership to develop and deliver training programs for physiotherapists and exercise therapists (Cesar/Mensendieck) specializing in osteoporosis treatment. The Osteoporose Vereniging collaborated on creating the curriculum titled 'osteoporose, vallen en breken' (osteoporosis, falling and breaking). This has created a network of 1,100+ trained therapists across the Netherlands.
• PATIENT+minorStrategic or Co-development PartnerJoint development of the keuzehulp (choice aid) tool for osteoporosis patients. This digital decision support tool helps patients understand their treatment options and prepare for conversations with their physicians. Also worked with Stichting Makkelijk Lezen for accessibility.
• Patiëntenfederatie NederlandminorGTM or Marketing PartnerThe Osteoporose Vereniging is affiliated with the Patiëntenfederatie Nederland (Patient Federation Netherlands), which enables health insurance reimbursements for membership and participation in programs like Kwaliteit, Inzicht en Doelmatigheid in medisch specialistische zorg.
• Ieder(in)minorGTM or Marketing PartnerAffiliated with Ieder(in), a Dutch umbrella organization for patient and disability organizations, providing legitimacy and network access.
• Zorgkaart NederlandminorChannel Partner/ Reseller/ DistributorPartnership to help patients find osteoporosis clinics near them. The Zorgkaart Nederland platform provides access to the association's clinic overview, helping direct patients to appropriate care.

Scale indicators5 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• Osteoporosis Canada: Canada's national osteoporosis patient organization providing education, support resources, and clinical guidance. Closely comparable national patient-association structure.
• Alzheimer Nederland: Dutch patient association for Alzheimer's and dementia offering information, helplines, volunteer-driven support, and research funding. Structurally and operationally analogous to Osteoporose Vereniging.
• Hartstichting: Dutch Heart Foundation, a large health charity combining research funding, public education, and patient advocacy. Comparable governance, fundraising, and disease-awareness operating model.
• International Osteoporosis Foundation: Global non-profit headquartered in Switzerland dedicated to osteoporosis prevention, diagnosis, and treatment through awareness, research, and policy advocacy. Direct mission analog serving a broader geography.
• Diabetes Vereniging Nederland: Dutch membership and advocacy organization for diabetes patients. Mirrors Osteoporose Vereniging's structure — memberships, magazine, helpline, donations, government subsidies, and treatment-advocacy focus.
• Royal National Osteoporosis Society: UK's national charity for osteoporosis offering information, a helpline, support groups, and research funding. Closest national-level peer with a near-identical service portfolio (hotline, magazine, guides, webinars).
• ReumaNederland: Dutch patient organization for rheumatism that also funds osteoporosis-related initiatives and provides annual funding to Osteoporose Vereniging. Sister chronic-disease association with nearly identical operating model.
• Bone Health and Osteoporosis Foundation: US national organization (formerly the National Osteoporosis Foundation) focused on education, advocacy, and research for osteoporosis and bone health. Same disease focus and patient-association model.

Broad incumbents

• Patiëntenfederatie Nederland: Dutch umbrella organization representing more than 200 patient organizations. Osteoporose Vereniging is an affiliated member; it sets broader patient-policy agendas and influences health-insurance reimbursement frameworks that affect the subject organization.

Others

• European Calcified Tissue Society: European scientific society focused on bone and calcified tissue research, including osteoporosis. Indirect comparator as a research and education ecosystem player in the same disease space.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/OsteoporoseVereniging
• LinkedInlinkedin.com/company/osteoporose-vereniging

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Osteoporose Vereniging