Massachusetts Sickle Cell Association

Name

Massachusetts Sickle Cell Association

Legal name

Massachusetts Sickle Cell Association, Inc.

Website

https://sicklecellhope.org

Company type

Private

Founded year

1995

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Patient Advocacy and Support Services

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241)

SIC

Services-Membership Organizations (8600), Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)

akta.pro industry

PRIMARYBPAGACAM

Rare Disease & Special Needs Support Organizations

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGACAB

Hospitals, Clinics & Charitable Healthcare Providers

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

Keywords

• Sickle cell advocacy
• Patient support services
• Community health education
• Nonprofit patient advocacy
• Disease awareness programs

Headquarters

HQ city

Dorchester

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: The organization relies entirely on grants and charitable contributions from donors to fulfill its mission. Donations are tax-deductible.
2. Annual Fundraising Events: Revenue generated from events such as the Red Ribbon Gala, Walk for Sickle Cell Disease, and Boston Marathon fundraising campaigns.
3. Grants: The organization receives grants from foundations such as the Cummings Foundation ($60,000 over three years) to expand programming and services.
4. Membership Dues: Members pay dues to join and receive benefits including quarterly e-newsletters, membership certificates, and invitations to forums and special events.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels5 records

Core offering

Massachusetts Sickle Cell Association is a volunteer-run 501(c)(3) nonprofit that delivers free community-based programs and services for individuals and families affected by sickle cell disease. Offerings span education workshops, training programs for schools, an ambassador program, support meetings, peer-to-peer mentoring, chaplaincy services, wellness activities, educational scholarships, and advocacy — all provided at no cost to beneficiaries in Massachusetts.

Product overview

Massachusetts Sickle Cell Association (MSCA) is a non-profit organization offering a portfolio of community support programs and services for individuals and families affected by sickle cell disease. The organization provides community-based education, training programs, an ambassador program, support meetings, peer-to-peer networking, chaplaincy services, and scholarship awards. MSCA also organizes signature events including the annual Red Ribbon Gala and Scholarship Awards, Walk for Sickle Cell Disease, Boston Marathon campaign, State of Sickle Cell Care Symposium, and SCD Advocacy Day. The organization participates in the SCDAA National Patient Powered Registry (Get Connected) and offers a membership program with quarterly communications and event invitations. All programs and services are provided free of charge to the sickle cell community in Massachusetts.

Differentiator

Problem solved

Functional benefit

Quantifiable outcome

• Emergency Grants Program addressing food and housing insecurity for sickle cell patients
• +2 more outcomes

Named customers6 records

Segments4 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

18 partnerships are on record, tiered premium sponsor, lead sponsor, support sponsor and core.

• Pfizerpremium sponsorGTM or Marketing PartnerPremium level sponsor of the 2025 Walk for Sickle Cell Disease and sponsor of the 2026 Red Ribbon Gala. Pfizer is a pharmaceutical company developing treatments for sickle cell disease.
• Sanofipremium sponsorGTM or Marketing PartnerPremium level sponsor of the 2025 Walk for Sickle Cell Disease. Sanofi is a pharmaceutical company involved in sickle cell disease treatments.
• Vertex Pharmaceuticalspremium sponsorGTM or Marketing PartnerPremium level sponsor of the 2025 Walk for Sickle Cell Disease and presenting sponsor of the 2022 walk. Vertex is a biotech company developing sickle cell disease treatments.
• Children's Hospitalpremium sponsorGTM or Marketing PartnerPremium level sponsor of the 2025 Walk for Sickle Cell Disease. Boston-based children's hospital supporting sickle cell care.
• Beam Therapeuticslead sponsorGTM or Marketing PartnerLead sponsor of the 2022 walk and sponsor of the 2026 Gala. Beam Therapeutics is a biotech company developing gene editing therapies for sickle cell disease.
• Boston Medical Centerpremium sponsorGTM or Marketing PartnerCorporate Partner Award recipient at 2026 Red Ribbon Gala. BMC is a major Boston hospital serving diverse patient populations including sickle cell patients.
• Boston Children's Hospitallead sponsorGTM or Marketing PartnerLead sponsor of the 2022 walk and Corporate Partner Award recipient at 2026 Gala. Major Boston hospital with sickle cell disease program.
• Mass General Brighamlead sponsorGTM or Marketing PartnerLead sponsor of the 2022 walk. Major Boston healthcare system with sickle cell disease services.
• Novo Nordisklead sponsorGTM or Marketing PartnerLead sponsor of the 2025 Walk for Sickle Cell Disease. Pharmaceutical company participating in sickle cell disease treatment space.
• Agioslead sponsorGTM or Marketing PartnerLead sponsor of the 2025 Walk for Sickle Cell Disease. Biotech company focused on cellular metabolism including sickle cell disease.
• Bluebird Biolead sponsorGTM or Marketing PartnerLead sponsor of the 2022 walk and support sponsor of 2025 walk. Gene therapy company with sickle cell disease treatment.
• Chiesilead sponsorGTM or Marketing PartnerLead sponsor of the 2025 Walk for Sickle Cell Disease. Pharmaceutical company participating in sickle cell space.
• Fulcrum Therapeuticslead sponsorGTM or Marketing PartnerLead sponsor of the 2025 Walk for Sickle Cell Disease. Biotech company developing therapies for sickle cell disease.
• American Red Crosssupport sponsorGTM or Marketing PartnerSupport sponsor of the 2025 Walk for Sickle Cell Disease. Blood services organization relevant to sickle cell patients who may require transfusions.
• Brigham and Women's Hospitalpremium sponsorGTM or Marketing PartnerCorporate Partner Award recipient at 2026 Red Ribbon Gala. Major Boston hospital involved in sickle cell care and founding support for MSCA.
• Mass General Hospitallead sponsorGTM or Marketing PartnerLead sponsor of the 2022 walk. Major Boston hospital with sickle cell disease program.
• Dimock Centerpremium sponsorGTM or Marketing PartnerCorporate Partner Award recipient at 2026 Red Ribbon Gala. Boston community health center providing sickle cell care.
• Sickle Cell Disease Association of America (SCDAA)coreStrategic or Co-development PartnerMSCA is affiliated with SCDAA. The Get Connected registry is SCDAA's National Patient Powered Registry that MSCA participates in and refers patients to.

Scale indicators2 records

Others

• American Red Cross: Listed as a support sponsor of MSCA's Walk for Sickle Cell Disease; provides blood services relevant to sickle cell patients requiring transfusions. Functions as an ecosystem/adjacent partner rather than direct competitor, but its blood/marrow programs overlap with MSCA's awareness mission.

Broad incumbents

• National Organization for Rare Disorders (NORD): Broad rare disease umbrella organization supporting research, advocacy, and patient services across thousands of conditions, including sickle cell disease; competes for the same advocacy and grant funding as MSCA but at much greater scale.

Emerging players

• Sick Cells: National sickle cell advocacy nonprofit focused on policy, awareness, and storytelling; overlaps with MSCA's SCD Advocacy Day and awareness mission but operates nationally through digital-first engagement rather than direct service delivery.
• Sickle Cell Warriors: Community-driven sickle cell support and education platform serving patients and families nationally through online resources and peer support — overlaps with MSCA's peer-to-peer and ambassador programs.

Direct peers

• Sickle Cell Association of the National Capital Area: Regional sickle cell advocacy organization serving the DC/Maryland/Virginia region; provides patient education, support groups, and community events comparable to MSCA's program portfolio.
• Sickle Cell Disease Foundation of California: Long-standing California-based sickle cell support and advocacy nonprofit providing education, counseling, scholarships, and community programs — a directly comparable regional peer to MSCA.
• Sickle Cell Foundation of Georgia: Statewide sickle cell nonprofit providing community education, support groups, and patient services in Georgia — a direct regional parallel to MSCA's Massachusetts-only operations. Offers similar patient support meetings, scholarships, and awareness events.
• Sickle Cell Disease Association of America (SCDAA): National umbrella organization for sickle cell advocacy; MSCA is affiliated with SCDAA and promotes its Get Connected National Patient Powered Registry. Operates the same mission (advocacy, education, support) at a national scale, making it the most directly comparable peer.

Market position

Strengths5 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/greater-boston-sickle-cell-disease-association-inc

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles11 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Massachusetts Sickle Cell Association