Tourette Syndrome Association of Australia

What Tourette Syndrome Association of Australia does

Tourette Syndrome Association of Australia Inc. (TSAA), trading as 'TSAA' and 'Tourette's Australia', is a registered Australian charity (ACNC, ABN 76104434459) operating as the peak national body for Tourette Syndrome in the country. Founded in 1989 and headquartered at the McNevin Dixon Building, Prince of Wales Hospital, Randwick NSW, the organization is staffed by approximately 7 employees and operates nationally with state-based programs in Victoria, NSW, Queensland, South Australia, and Tasmania.

TSAA delivers a portfolio of community-focused programs rather than a unified software product. Core offerings include a National Camp Program (family-oriented camps held across multiple Australian states with subsidized tickets ranging from A$80 for children under 14 to A$387 for non-subsidized adults), local Support Groups and mentorship programs, an Annual Awareness Week (featuring free Zoom-based educational sessions — the 2025 edition focused on 'Understand the Impact'), an Annual Conference, Sydney Mardi Gras Parade participation, free publications, research referrals, and the 'Talent Over Tourettes' showcase program. The supporting technology stack is modest: the organization's website tourette.org.au is powered by Wild Apricot Membership Software for membership, event registration, and donations, with Zoom used for online programming and standard social-login providers (Google, Microsoft, Apple) for authentication.

The business model is a community-led nonprofit combining recurring membership fees, one-time and recurring donations (including workplace giving and bequests), event registration fees, and likely NDIS plan payments for camp programs. TSAA serves primary segments of parents and families, adolescents and young adults, and adults living with Tourette Syndrome, alongside secondary segments of educators, medical professionals, and first responders. Marketing is principally digital — website, Facebook, email — supplemented by earned media coverage on outlets such as ABC News. Research partnerships exist with Deakin University, Royal Children's Hospital Melbourne, Murdoch Children's Research Institute, and Université du Québec à Montréal, and Professor Valsamma Eapen serves as Medical and Publicity Liaison Officer. No revenue figure is disclosed, no funding rounds have been recorded, and the organization has no parent company or institutional owner.

Name

Tourette Syndrome Association of Australia

Legal name

Tourette Syndrome Association of Australia Inc.

Website

https://tourette.org.au

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

Tourette Syndrome Association of Australia Inc. (TSAA) is a registered Australian charity and peak national body supporting individuals with Tourette Syndrome and their families through community programs including national family camps, support groups, an annual awareness week, and research partnerships.

Ownership category

akta.pro rank

Headquarters

HQ city

Randwick

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Membership Fees: Annual membership fees for individuals and families affected by Tourette Syndrome, providing access to resources, support groups, camps, and events.
2. Donations: One-time and recurring donations from supporters to help fund programs and services.
3. Event Registration Fees: Fees collected for participation in national camp programs, awareness week sessions, support group activities, and community events such as Sydney Mardi Gras Parade.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels4 records

Core offering

TSAA is the peak national body in Australia dedicated to Tourette Syndrome, providing community-based support programs including national family camps, peer support groups, an annual awareness week, an annual conference, and educational resources. Members pay annual fees and can register for events; the organization is sustained through membership fees, donations, event registrations, and NDIS-related payments.

Product overview

The Tourette Syndrome Association of Australia Inc. (TSAA) operates as a charitable organization offering a portfolio of community-focused programs rather than a unified software product. The core offerings center on peer support through the National Camp Program (family camps across Australian states), Support Groups, and the Annual Awareness Week featuring Zoom-based educational sessions. Additional programs include the Annual Conference, Sydney Mardi Gras Parade participation, free publications, research opportunity referrals, and Talent Over Tourettes showcases. The organization uses Wild Apricot membership software for website and event management operations, with Zoom as the primary platform for online programming.

Differentiator

Problem solved

Functional benefit

Products and services

• National Camp Program Family-oriented camping program with state-based camps held across Australia (Victoria, South Australia, Queensland, NSW, Tasmania) offering recreational activities, peer support, and educational sessions for individuals with Tourette Syndrome and their families. Tickets are sold at subsidised and non-subsidised tiers, with one subsidised camp per member per year.
• Annual Awareness Week Annual week-long awareness initiative featuring free Zoom educational sessions, expert speakers, and community events covering topics such as diagnosis, intervention, education, employment, and future directions.
• Support Groups & Mentors Local peer support groups and mentorship programs connecting individuals with Tourette Syndrome and their families, facilitated by trained Support Group Leaders across Australia.
• Annual Conference Annual conference providing educational sessions, research updates, and community networking opportunities for members, medical professionals, and other stakeholders.
• Sydney Mardi Gras Parade Participation Annual participation in the Sydney Mardi Gras Parade to raise awareness and visibility of Tourette Syndrome in the broader community. Members and TSAA guests can register for tickets.
• Online Zoom Education Sessions Virtual educational sessions hosted on Zoom featuring medical professionals, researchers, and lived-experience speakers covering topics such as diagnosis, intervention, employment, and wellbeing.
• Free Publications Educational materials, fact sheets, and resources available at no cost for members and the public regarding Tourette Syndrome management and support.

Named customers3 records

Segments6 records

Ideal customer profiles6 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration6 records

Partnerships

Five partnerships are on record, tiered minor and core.

• Deakin UniversityminorStrategic or Co-development PartnerDeakin University is conducting research on tics and tic urges in children aged 12-17 with Tourette Syndrome at The Royal Children's Hospital, Melbourne, funded by the National Health and Medical Research Council (NHMRC).
• The Royal Children's Hospital MelbourneminorStrategic or Co-development PartnerResearch partner conducting MRI brain imaging studies on young people with Tourette Syndrome, in collaboration with Deakin University and Murdoch Children's Research Institute.
• Murdoch Children's Research InstituteminorStrategic or Co-development PartnerResearch partner collaborating on studies investigating tics and tic urges in young people with Tourette Syndrome.
• Université du Québec à MontréalminorStrategic or Co-development PartnerInternational research partner conducting an online study investigating explosive outbursts/rage attacks and their impact on family functioning in Tourette Syndrome families.
• Professor Valsamma EapencoreOthersTSAA Medical and Publicity Liaison Officer, providing expert guidance on Tourette Syndrome and neurodevelopmental disorders as part of child psychiatry.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Tourette Syndrome Foundation of Canada: Canadian national organization dedicated to Tourette Syndrome, with comparable support groups, awareness events, and research funding. Operates with similar membership-based nonprofit structure across Canadian provinces.
• Tourette Association of America: The largest and longest-established Tourette Syndrome advocacy organization globally, with similar mission, research funding programs, and chapter-based support. TSAA models aspects of its program on TAA's approach and they share the same niche condition focus.
• Muscular Dystrophy Australia: Australian charity providing support, advocacy, and research funding for people living with neuromuscular conditions. Operates with a similarly lean team structure, comparable revenue model, and mission to improve quality of life for a specific disability community.
• Tourettes Action: The UK's leading support organization for people with Tourette Syndrome, offering a comparable portfolio of support services, awareness campaigns, and research partnerships. Operates as a registered charity with a similar mission to TSAA but in the UK market.

Broad incumbents

• Multiple Sclerosis Australia: National peak body for multiple sclerosis in Australia, providing research funding, advocacy, and support services. Represents a comparable scale and structure benchmark as a condition-specific Australian health nonprofit with member-based funding.
• Autism Spectrum Australia (Aspect): Australia's largest autism-specific service provider, operating schools, therapy services, and advocacy. Represents a scaled-up comparable disability nonprofit, illustrating the potential organizational trajectory for TSAA if awareness and service expansion succeed.
• SANE Australia: Australian mental health nonprofit providing support, research, and advocacy. Comparable in scale, registered charity status, and community-led service model, but addressing a broader mental health audience rather than a single neurological condition.
• Parkinson's Australia: Australian national body supporting people with Parkinson's disease through research, advocacy, and support networks. Comparable to TSAA in being a small, condition-specific national nonprofit relying on memberships, donations, and state-based support infrastructure.
• Epilepsy Australia: Australian national peak body for a neurological condition with comparable mission of awareness, advocacy, and support. Operates a similar federated state-based model and provides a benchmark for TSAA's organizational structure and scale potential.

Regional players

• Tourette Syndrome Association of New Zealand: New Zealand's national Tourette Syndrome advocacy organization, the closest geographic peer to TSAA. Comparable in scale and program offerings, focused on the New Zealand market rather than competing with TSAA in Australia.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/TouretteSyndromeAssociationOfAustralia
• LinkedInlinkedin.com/company/tourette-syndrome-association-of-australia

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Tourette Syndrome Association of Australia