Fatty Liver Alliance

What Fatty Liver Alliance does

The Fatty Liver Alliance (FLA) is a Canadian registered charity (#79690 4704 RR0001) and global patient-led nonprofit founded by Michael Betel to address the gap between the rising prevalence of fatty liver disease and limited public and clinical awareness. Operating from Toronto, FLA focuses on education as the front line of prevention, early identification, and action in MASLD/MASH (metabolic dysfunction-associated steatotic liver disease and its progressive form MASH). Its programs include annual North American and European Primary Care Summits for clinicians, the community-based 'Your Liver, Your Health' events offering free Fibroscan screenings, a Toronto Liver Health Awareness Centre pilot, a Patient Portal and Liver Insights video series, a Journeys patient-storytelling platform, a blog and vlog featuring leading international liver experts, and a public petition advocating faster access to MASH treatments such as resmetirom. FLA does not develop proprietary technology; its operational stack comprises a website (fattyliver.ca), email/Eventbrite event registration, and Fibroscan hardware procured from Echosens for non-invasive educational screenings.

Name

Fatty Liver Alliance

Legal name

Fatty Liver Alliance

Website

https://fattyliver.ca

Company type

Private

Founded year

2021

Operating status

Operating

Headcount range

1–10 employees

Short description

The Fatty Liver Alliance is a Canadian registered charity and global patient-led nonprofit that delivers education, community events, and free non-invasive liver screenings to patients, communities, and healthcare professionals focused on MASLD/MASH fatty liver disease.

Ownership category

akta.pro rank

Product category

Patient Health Education and Advocacy

NAICS

Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300)

akta.pro primary industry

Hepatology & Liver Disease (HLAKAEAB)

akta.pro secondary industries

Community Health, Health Promotion & Behavior Change (SBCC) (BPADAIAL), Public–Private Partnerships (PPPs) for Global Health (HLAJAOAD), Nutrition, Dietary Management & Allergen/Accommodation Services (EDALADAJ)

Keywords

• Patient health education
• Fatty liver awareness
• Medical community events
• Nonprofit advocacy programs
• Professional medical summits

Headquarters

HQ city

Toronto

HQ country

Canada

HQ region

North America

Offices3 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations: FLA accepts donations from individuals via PayPal and e-transfer ([email protected]). Tax receipts are issued for donations of $18.00 or greater. The organization is a Canadian Registered Charity (#79690 4704 RR0001).
2. Corporate Sponsorships and Grants: FLA receives grant funding and sponsorships from pharmaceutical and medical device companies. Event funding has been provided by Madrigal Pharmaceuticals, Echosens, Regeneron, and 89bio for 'Your Liver, Your Health' community events. Additional sponsors include Novo Nordisk for the Primary Care Summit and patient education events, and Regeneron for grant support in 2023.
3. Membership and Volunteer Contributions: FLA encourages membership sign-ups (free) and volunteer involvement, building community capacity through contributed time and engagement rather than direct revenue.

Go-to-market motion3 records

Distribution channels5 records

Marketing channels9 records

Core offering

The Fatty Liver Alliance is a global patient-led nonprofit organization that delivers education for the prevention, early identification, and action on fatty liver disease (MASLD/MASH). It operates free community events with non-invasive Fibroscan screenings, annual professional education summits for primary care physicians, a Toronto-based Liver Health Awareness Centre, and an online content library including blogs, vlogs, patient journeys, and clinical resources. Programs target patients at risk, frontline clinicians, and global liver health organizations, and are funded by donations and corporate grants.

Product overview

Fatty Liver Alliance is a patient-led nonprofit organization offering a portfolio of education and awareness programs rather than a traditional software product. Its offerings include the Primary Care Summit (annual professional education conference with North American and European editions), the 'Your Liver, Your Health' community event program, the Liver Health Awareness Centre (Toronto-based free screening facility), FLA Live content series, Blog, Vlog, Patient Portal with the Liver Insights video series, patient Journeys storytelling platform, Non-Invasive Tests education resources, a Petition for MASH treatment access, and a Pediatrics program. These programs work together to advance education, early identification, and action in fatty liver disease for patients, communities, and healthcare professionals.

Differentiator

Problem solved

Functional benefit

Products and services

• Primary Care Summit Annual professional education summit (North American and European editions) for primary care physicians, hepatologists, and researchers, delivering expert presentations, case studies, and panel discussions on MASLD/MASH screening, diagnosis, and management.
• Your Liver, Your Health Community Events Free community education events held in multiple cities that provide liver health awareness, risk assessments, and non-invasive Fibroscan screenings for individuals at risk of fatty liver disease.
• Liver Health Awareness Centre Walk-in, non-clinical education facility in Toronto offering free non-invasive liver health screenings using Fibroscan technology to assess liver fat and fibrosis risk, with educational guidance on liver health awareness.

Quantifiable outcome

• 4 annual Primary Care Summits held (2022–2025) with North American and European editions, featuring top-tier international liver experts
• +3 more outcomes

Named customers3 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

14 partnerships are on record, tiered core and minor.

• Canadian MASLD Network (CanMASLD)coreStrategic or Co-development Partner · 15 January 2025Formal collaboration between Fatty Liver Alliance (FLA) and CanMASLD announced January 15, 2025. Together they advance liver health in Canada through education, research, and patient advocacy. They collaborate on the annual MASLD and MASH Primary Care Summit and ongoing Canadian research and patient education initiatives.
• EASL – European Association for the Study of the LivercoreStrategic or Co-development PartnerEASL is a key strategic partner for FLA. EASL's strategic directions in Science, Education, and Advocacy align with FLA's mission. FLA participates in EASL conferences and initiatives, and references EASL Clinical Practice Guidelines (2021) on its Non-invasive Tests page.
• Global NASH CouncilcoreStrategic or Co-development PartnerThe Global NASH Council includes 50 countries across all continents with 170 members. FLA is listed as a participant in global collaborative projects to understand the burden of NASH/MASH. The Council's work is endorsed by multiple organizations.
• European Liver Patients' Association (ELPA)coreGTM or Marketing PartnerELPA and FLA co-host the annual NAFLD/NASH and MASLD/MASH Primary Care Summits. ELPA President Marko Korenjak co-introduces summits with FLA President Michael Betel. ELPA's aim is to promote interests of people with liver disease across Europe.
• Liver Patients InternationalcoreStrategic or Co-development PartnerFLA collaborates with Liver Patients International (LPI), which advocates for all patients affected by liver disease globally, promoting equal access to effective healthcare and ensuring patient voices are part of decision-making.
• Siemens HealthineersminorStrategic or Co-development PartnerSiemens Healthineers is featured on FLA's Collaborations page. They produce the ELF (Enhanced Liver Fibrosis) test, which FLA references in its Non-invasive Tests resources for healthcare professionals.
• Canadian Institutes of Health Research (CIHR)minorStrategic or Co-development PartnerCIHR is Canada's federal funding agency for health research, composed of 13 institutes. Listed on FLA's Collaborations page as a partner organization.
• InventivaminorStrategic or Co-development PartnerInventiva is a clinical-stage biopharmaceutical company focused on oral small molecule therapies for fibrosis, lysosomal storage disorders, and oncology. Listed on FLA's Collaborations page.
• PPD (Thermo Fisher Scientific)minorStrategic or Co-development PartnerPPD, a leading global Contract Research Organization, invited FLA to participate in Patient Journey work and an online webinar about Patient Voice in clinical studies.
• CGM EducationminorStrategic or Co-development PartnerCGM Education provides educational content related to diabetes technologies and comorbidities including metabolic dysfunction-associated steatotic liver disease. Listed on FLA's Collaborations page.
• awareNASHminorStrategic or Co-development PartnerAwareNASH is a research/education project funded by Pfizer to educate clinicians on prompt diagnosis of NAFLD/NASH and its relationship to metabolic disease and cardiovascular disease.
• Global Liver InstitutecoreStrategic or Co-development PartnerFLA President Michael Betel serves as Chair for the Global Liver Institute's Liver Action Network. FLA participates in GLI initiatives and received the 2024 Global Excellence in Advocacy Award from GLI.
• Arizona Liver HealthminorStrategic or Co-development PartnerArizona Liver Health provides state-of-the-art care for liver diseases and hosts clinical trials of novel therapeutics. Featured on FLA's Collaborations page.
• Canadian Obesity Advocacy Network (COAN)minorStrategic or Co-development PartnerCOAN is a network of NGOs, companies, foundations, academics, clinicians, and people living with obesity working to address bias, stigma, education, access to care, and advocacy in Canada. Listed on FLA's Collaborations page.

Scale indicators7 records

Recent moves6 records

Expansion highlights6 records

Regional players

• British Liver Trust: UK-based national liver disease charity focused on patient support, education, and awareness. Comparable in mission and programming (community events, patient resources, professional engagement) but geographically focused on the UK rather than North America.

Direct peers

• American Liver Foundation: US-based patient advocacy and education organization for liver disease. Directly comparable to FLA as a patient-led nonprofit delivering liver disease education, awareness events, and professional training, with a longer operating history and broader disease scope.
• European Liver Patients' Association (ELPA): European umbrella patient organization representing liver disease patients across Europe. Direct peer co-hosting FLA's European Primary Care MASLD/MASH Summit, with a comparable patient-education and policy-advocacy mandate.
• Liver Patients International: Global alliance of liver patient organizations. Direct peer organization collaborating with FLA on global patient advocacy and equitable access to liver care, with comparable scope and a similar NGO structure.
• Canadian Liver Foundation: Canada's established national liver disease charity. Direct domestic peer to FLA, also funding research and patient education across all liver conditions including MASLD/MASH, and competing for the same donor and pharma sponsor dollars in Canada.
• Global Liver Institute: US-based global liver health advocacy organization. Closely comparable to FLA's advocacy and convening role, including the Liver Action Network chaired by FLA's president; both organizations collaborate and compete for global liver advocacy mindshare.

Emerging players

• NASH kNOWledge: US-based patient-founded NASH/MASH awareness nonprofit established by Tony Villotti (a liver transplant recipient featured on FLA's Journeys page). Highly comparable mission focused on awareness and prevention of fatty liver disease progression.
• Global NASH Council: Multi-country collaborative of 170 members across 50 countries working to understand the global NASH/MASH burden. FLA participates in this initiative, and the two organizations operate in overlapping spaces around cross-border education and awareness.

Broad incumbents

• European Association for the Study of the Liver (EASL): Europe's leading hepatology professional society. Functions as both a strategic partner and a broader incumbent — it sets clinical guidelines FLA references, runs the congresses FLA attends, and serves as a parallel education provider with much wider scientific scope.
• American Association for the Study of Liver Diseases (AASLD): US professional society advancing hepatology research, education, and clinical practice. A broader incumbent comparable to FLA's professional-education work, with a much larger scientific remit and resources.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/fatty-liver-alliance

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fatty Liver Alliance