Bleeding Disorders Alliance Illinois

What Bleeding Disorders Alliance Illinois does

Bleeding Disorders Alliance Illinois (BDAI) is a 501(c)(3) nonprofit charitable organization founded in 1949 and headquartered in Chicago, Illinois, that delivers education, advocacy, financial assistance, and community programs to individuals and families affected by inheritable bleeding disorders (hemophilia, von Willebrand disease, and related conditions) across the state of Illinois. The organization's core service portfolio includes the P.A.C.T. Advocate Ambassador Volunteer Program (state and federal legislative advocacy), youth and family camp programming anchored by Camp Warren Jyrch (operating since 1973 with nearly 2,000 campers served), the Hispanic Bleeding Disorders Alliance (Spanish-language outreach), Community Circle (a volunteer-led community engagement program launching in 2026), the annual UNITE Walk fundraiser, the Bradley Krueger Memorial Scholarship, an Emergency Financial Assistance program, insurance navigation conferences, clinical trials education, MedicAlert assistance, and the FACTORNET newsletter. There is no proprietary technology platform; service delivery is built on direct community engagement, events, volunteer networks, and the bdai.org website.

BDAI operates a donation-driven revenue model with no disclosed financials. Funding sources include individual and corporate charitable donations (with giving tiers ranging from $50 to $2,500 tied to specific program impacts such as camperships, scholarships, and advocacy trips), fundraising events (UNITE Walk, HAMBINGO, Chicago Fire Game ticket sales, Giving Tuesday), online donations processed via qgiv.com, vehicle donations through the Hemophilia Federation of America, and program service fees or suggested donations tied to educational programming. The organization is governed by a volunteer Board of Directors and led by Executive Director Liz Burgess, with a small staff (1-10 employees) including a Hispanic Alliance Program Consultant and additional program coordinators.

Strategically, BDAI's go-to-market is community-led: it reaches beneficiaries through volunteer-led programs, support groups, advocacy ambassadors, and grassroots events, while co-hosting educational dinners and awareness events with a portfolio of pharmaceutical partners (Genentech, Pfizer, Sanofi, Novo Nordisk, Takeda, CSL Behring, Octapharma, Star Therapeutics) and coordinating advocacy through national and regional partners (NBDF, HFM, BCDI, Gateway Bleeding Disorders Association). The organization explicitly positions itself as an unbiased, non-pharma-influenced information source, which is a deliberate differentiator given the heavy pharma sponsorship of its events. There are no subsidiaries, no funding rounds, no M&A activity, and no app or API products; BDAI is a service-delivery nonprofit, not a technology or product company.

Name

Bleeding Disorders Alliance Illinois

Legal name

Bleeding Disorders Alliance Illinois

Website

https://bdai.org

Company type

Private

Founded year

1949

Operating status

Operating

Headcount range

1–10 employees

Short description

Bleeding Disorders Alliance Illinois is a 501(c)(3) nonprofit founded in 1949 that provides education, advocacy, financial assistance, camp programs, and community support to individuals and families affected by inheritable bleeding disorders throughout Illinois.

Ownership category

akta.pro rank

Product category

Nonprofit Patient Advocacy

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

• Patient advocacy services
• Bleeding disorders support
• Nonprofit healthcare education
• Community health programs
• Hemophilia community resources

Headquarters

HQ city

Chicago

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales

Revenue model

1. Individual and Corporate Donations: BDAI relies on charitable donations from individuals and corporations to fund its programs, services, and scholarships for the bleeding disorders community in Illinois. The organization offers multiple giving vehicles including one-time donations, vehicle donations, and employer matching gift programs.
2. Fundraising Events: Annual and special fundraising events including the UNITE Walk, Hamburger Mary's HAMBINGO fundraiser, Chicago Fire Game ticketed events, and Giving Tuesday campaigns generate revenue to support the organization's mission and programs.
3. Program Services Revenue: Revenue from educational programs, community events, and camp programming that support individuals and families affected by bleeding disorders. Some programs may have associated fees or suggested donations.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels8 records

Core offering

Bleeding Disorders Alliance Illinois (BDAI) is a 501(c)(3) nonprofit organization that provides education, advocacy, financial assistance, and community support programs for individuals and families affected by inheritable bleeding disorders such as hemophilia and von Willebrand disease in Illinois. Since 1949, the organization has delivered a comprehensive suite of programs including youth camps, scholarships, advocacy training, emergency financial assistance, insurance guidance, clinical trials education, and community-building events. Most services are free or low-cost to participants, funded through charitable donations, corporate sponsorships, and fundraising events.

Product overview

Bleeding Disorders Alliance Illinois (BDAI) is a non-profit organization (since 1949) that provides a comprehensive suite of community support services for individuals and families affected by inheritable bleeding disorders in Illinois. The organization operates as a single unified service model centered on advocacy, education, and community building rather than a technology product platform. Key programs include advocacy initiatives (P.A.C.T. program), youth camping experiences (Camp Warren Jyrch, Camp Bold Eagle partnership), the Hispanic Bleeding Disorders Alliance, Community Circle volunteer-hosted gatherings, the annual UNITE Walk fundraiser, emergency financial assistance, the Bradley Krueger Memorial Scholarship, insurance guidance, clinical trials education, and MedicAlert assistance. These programs work together to improve quality of life through unbiased information, resources, and support for healthy and active living.

Differentiator

Problem solved

Functional benefit

Products and services

• Advocacy Programs (P.A.C.T. Advocate Ambassador Volunteer Program)

Quantifiable outcome

• Nearly 2000 campers served since 1973 through Camp Warren Jyrch
• +2 more outcomes

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

14 partnerships are on record, tiered core, major and minor.

• National Bleeding Disorders Foundation (NBDF)coreStrategic or Co-development PartnerNBDF is listed as a key partner on BDAI's website. BDAI participates in NBDF's Washington Days advocacy event in Washington D.C. where more than 450 volunteer advocates from 47 states meet with legislators.
• Bleeding Disorders Foundation of the Communities (BCDI)coreStrategic or Co-development PartnerBCDI is listed as a partner on BDAI's website. BDAI partnered with BCDI for Springfield Advocacy Days in 2025.
• Hemophilia Foundation of Michigan (HFM)coreStrategic or Co-development PartnerHFM is a key partner for BDAI's youth camp programming. For 2025 and 2026, BDAI partnered with HFM for camp programming to ensure the mission of camp dating back to 1973 is carried out. BDAI also partners with HFM on the Ruby Connection women's virtual group program.
• Rush University Medical CentermajorStrategic or Co-development PartnerRush is listed as a partner on BDAI's website, linking to their Hemophilia and Thrombophilia Center services.
• Hemophilia Federation of AmericamajorStrategic or Co-development PartnerListed as a partner on BDAI's website. The Hemophilia Federation of America operates a vehicle donation program that benefits BDAI.
• GenentechmajorGTM or Marketing PartnerIndustry partner co-hosting educational events including caregiver burnout educational dinners and Spanish-language programming (cena y educación). Multiple events planned throughout 2025-2026.
• PfizermajorGTM or Marketing PartnerIndustry partner co-hosting educational dinners about understanding Hympavzi and other bleeding disorder treatments. Events scheduled in Schaumburg and Peoria areas.
• SanofimajorGTM or Marketing PartnerPlatinum sponsor presenting WinterFest mental health education event. Partner for adult peer support educational dinners discussing Altuviiio journeys. Multiple Spanish-language programs also supported.
• Novo NordiskmajorGTM or Marketing PartnerIndustry partner for virtual education on thriving around Hemophilia B and Spanish-language cena y educación events.
• TakedamajorGTM or Marketing PartnerIndustry partner sponsoring advocacy education dinners and Spanish-language educational sessions with bingo games.
• CSL BehringminorGTM or Marketing PartnerIndustry partner co-hosting cena y educación events with hands-on education and taco food truck in the park.
• OctapharmaminorGTM or Marketing PartnerIndustry partner for mental health discussions over dinner for patients and caregivers, presented in Spanish.
• Star TherapeuticsminorGTM or Marketing PartnerIndustry partner for virtual learning opportunity on von Willebrand disease and new treatment approaches on the horizon.
• Gateway Bleeding Disorders AssociationmajorStrategic or Co-development PartnerPartnered with BDAI for Springfield IL Hill Day advocacy event to raise awareness of bleeding disorders needs in Illinois.

Scale indicators3 records

Recent moves5 records

Expansion highlights5 records

Regional players

• Florida Hemophilia Association: Florida bleeding disorders chapter providing advocacy, education, and community programs. Comparable state-level chapter model serving the same disease community with similar programmatic offerings in a different geography.
• Pacific Northwest Bleeding Disorders: Multi-state regional chapter serving Washington, Oregon, Idaho, and Alaska. Comparable as a regional bleeding-disorders nonprofit delivering education, advocacy, and family support in a different geography.
• Hemophilia Foundation of Southern California: Southern California bleeding-disorders chapter delivering education, advocacy, and family support. Comparable as a regional chapter serving the same patient population with similar programming (camp, financial assistance, advocacy), in a different geography.
• Lone Star Bleeding Disorders Foundation: Texas-based bleeding disorders nonprofit providing education, advocacy, and direct support. Comparable mission and program model to BDAI (camp, scholarships, financial assistance, advocacy), though serving a different regional market.
• New York City Hemophilia Chapter: Regional bleeding disorders chapter serving the NYC metro area. Comparable as a state/regional chapter delivering patient education, support groups, and advocacy for the same disease community, but operating in a different geography.

Broad incumbents

• Hemophilia Federation of America: National bleeding-disorders advocacy and member-services organization listed as a BDAI partner and operator of the vehicle donation program that benefits BDAI. Directly comparable as a patient-serving nonprofit for the same disease community.
• National Bleeding Disorders Foundation: National umbrella organization for the bleeding disorders community. BDAI is an affiliate chapter; NBDF coordinates Washington Days and broader advocacy that BDAI participates in, making them a directly comparable disease-focused nonprofit serving the same condition.

Direct peers

• Gateway Bleeding Disorders Association: Regional bleeding-disorders chapter partnered with BDAI on Springfield IL Hill Day. Comparable as a state-level chapter delivering education, advocacy, and direct support to bleeding-disorders patients and families.
• Bleeding Disorders Foundation of the Communities (BCDI): Regional bleeding-disorders organization partnered with BDAI on Springfield Advocacy Days 2025. Closest comparable peer — sibling chapter providing education, advocacy, and support to a similar geographic patient population.
• Hemophilia Foundation of Michigan: Michigan-based bleeding disorders nonprofit partnered with BDAI for 2025-2026 camp programming and the Ruby Connection women's virtual group. Directly comparable as a state/regional chapter providing camp, education, and support services.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/bdaillinois
• Facebookfacebook.com/BleedingDisordersAllianceIL
• LinkedInlinkedin.com/company/bleeding-disorders-alliance-illinois

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Bleeding Disorders Alliance Illinois