Head and Neck Cancer Alliance
Head and Neck Cancer Alliance is a US nonprofit founded in 1998 that provides free education, screening coordination, peer mentorship, and patient navigation services to head and neck cancer patients, survivors, caregivers, and healthcare professionals globally.
- Company typePrivate
- Founded1998
- HeadquartersCharleston, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Head and Neck Cancer Alliance does
Head and Neck Cancer Alliance (HNCA), incorporated in South Carolina in 1998, is a US-based nonprofit patient advocacy organization focused exclusively on head and neck cancer. It serves newly diagnosed patients, survivors, caregivers, healthcare professionals, and the general public through a portfolio of free programs including an annual Oral, Head and Neck Cancer Awareness Week (OHANCAW) screening initiative, a Survivorship Symposium, the Peer-to-Peer Mentorship and Patient Navigator services, the H&N Connect caregiver program, and the Ambassador network of nearly 70 survivor and caregiver advocates. Core delivery is digital: the headandneck.org website hosts a Clinical Trial Finder, Nutrition Recipe Directory, education on side effects, and multilingual resources, supplemented by a phone-and-chat Patient HelpLine (Monday–Friday 9am–9pm), social channels (Facebook, Instagram, LinkedIn, YouTube), email newsletters, webinars, and an annual in-person-and-virtual symposium. The Laryngectomee Guide, authored by board member Dr. Itzhak Brook, is published in 22 languages and distributed free through the American Academy of Otolaryngology.
HNCA's technology stack is a conventional content-and-community web platform rather than a software product. Proprietary assets include the OHANCAW registered trademark, the 22-language Laryngectomee Guide, the searchable Clinical Trial Finder, and the curated ambassador story library. Operational reach extends through more than 400 medical and dental facility partners worldwide, with the 2019 OHANCAW footprint covering 216 screening events across 18 countries and 41 US states.
The organization is funded by individual donations, corporate sponsorships (Merck, Johnson & Johnson, MeiraGTx, AstraZeneca, and clinical-trial sponsors including Bicara, Inhibrx, and Merus), and community fundraising events such as the Smash Cancer Tennis Tournament in Wilmington, NC, which has raised over $150,000 since 2009. Governance is provided by a Board of Directors led by President Dr. Michael Moore and including practicing oncologists, nurse practitioners, and survivor advocates; Amanda Hollinger serves as Executive Director. HNCA holds GuideStar/Candid's Transparency Seal and operates as an independent entity with no parent, PE, or VC ownership.
Head and Neck Cancer Alliance firmographics
Firmographics- Name
- Head and Neck Cancer Alliance
- Legal name
- Head and Neck Cancer Alliance
- Website
- https://headandneck.org
- Company type
- Private
- Founded year
- 1998
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Head and Neck Cancer Alliance is a US nonprofit founded in 1998 that provides free education, screening coordination, peer mentorship, and patient navigation services to head and neck cancer patients, survivors, caregivers, and healthcare professionals globally.
- Ownership category
- akta.pro rank
Head and Neck Cancer Alliance industry classification
Industry- Product category
- Patient Advocacy Services
- NAICS
- Other Individual and Family Services (624190), Other Individual and Family Services (62419)
- SIC
- Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industry
- Head & Neck Surgery (ENT Oncology) (HLAKAMAF)
Keywords
Where Head and Neck Cancer Alliance is headquartered
LocationHeadquarters
- HQ city
- Charleston
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Head and Neck Cancer Alliance business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Donations: The organization relies on charitable donations from individuals to fund its programs and services. The website provides a donation portal for supporters to contribute.
- Corporate Sponsorships: Pharmaceutical companies and medical device companies sponsor educational content on the website. Sources include MeiraGTx, Johnson & Johnson, and clinical trial sponsors including Bicara, Inhibrx, AstraZeneca, and Merus.
- Fundraising Events: Third-party fundraising events such as the Smash Cancer Tennis Tournament organized by supporters to benefit the organization. The tournament has raised over $150,000 since its inception in 2009.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Other | Other | Free services for patients and caregivers |
Go-to-market motion2 records
Distribution channels6 records
Marketing channels12 records
Head and Neck Cancer Alliance product offering
Product offeringCore offering
Head and Neck Cancer Alliance is a nonprofit patient advocacy organization that provides free awareness, education, screening, and support services to individuals affected by head and neck cancer. Its core offerings include the annual OHANCAW Screening Program hosted with 400+ partner facilities worldwide, Peer-to-Peer Mentorship, Patient Navigator services, the H&N Connect caregiver program, the Survivor Ambassador Program, the Survivorship Symposium, the multilingual Laryngectomee Guide, and a Patient HelpLine. All programs are provided at no cost to patients, survivors, caregivers, and healthcare professionals.
Product overview
The Head and Neck Cancer Alliance is a nonprofit organization offering a comprehensive suite of patient support and education services rather than a technology product. The organization provides multiple interconnected programs including the Ambassador Program for peer advocacy, Screening Program for early detection, Clinical Trial Finder for treatment options, Patient Navigator for personalized guidance, Peer-to-Peer Mentorship, H&N Connect for caregiver support, Online Support Community, Survivorship Symposium and Webinars for education, Financial Assistance Program for practical support, and the Patient HelpLine. Additionally, the Laryngectomee Guide is available as a multilingual educational resource. These services work together to provide hope, support, and resources across the entire cancer journey from diagnosis through survivorship.
Differentiator
Problem solved
Functional benefit
Brands
- OHANCAW (Oral, Head and Neck Cancer Awareness Week): Annual awareness week program for oral, head and neck cancer screening and education
- H&N Connect
- With Love, Me
- Peer-to-Peer Mentorship
- Patient Navigator
Products and services
- OHANCAW Screening Program
Quantifiable outcome
- Free screening events provided at 216 locations across 18 countries in 2019
- +3 more outcomes
Companies that use Head and Neck Cancer Alliance
Customer profileNamed customers5 records
Segments5 records
Ideal customer profiles1 record
Head and Neck Cancer Alliance technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature5 records
Head and Neck Cancer Alliance partnerships and signals
Strategic signalPartnerships
18 partnerships are on record, tiered minor and core.
- Origami-5 Clinical TrialminorFeatured clinical trial partnership (study NCT07276399) for educational purposes on head and neck cancer research.
- MeiraGTxminorMeiraGTx sponsors educational content on the HNCA website about radiation-induced dry mouth (xerostomia) and gene therapy research being explored for treating this side effect.
- AstraZeneca Clinical TrialminorFeatured clinical trial partnership for educational purposes about head and neck cancer treatment research.
- Johnson & JohnsonminorJohnson & Johnson provides sponsored content about innovation in head and neck cancer research, reviewed for alignment with HNCA mission.
- Inhibrx Clinical TrialminorFeatured clinical trial partnership for the INBRX-106 Phase 2/3 trial for educational purposes.
- Merus Clinical TrialminorFeatured clinical trial partnership for the Liger study for educational purposes.
- Bicara Clinical TrialminorFeatured clinical trial partnership for educational purposes about head and neck cancer research opportunities. HNCA provides informational support but does not endorse specific trials.
- MerckcorePartnership with Merck on the 'Your Cancer Game Plan Challenge' initiative and the 'With Love, Me' program. Merck donated $5 for every social share of the campaign website. The partnership provides new resources to the cancer community and raises funds for HNCA.
- PeerViewminorPartnership on the 'Understanding the Impact of Immunotherapy on Head and Neck Cancer' symposium held during ASTRO Annual Meeting. Over 200 national and international participants earned CME/CE/CPE credits.
- Oral Cancer FoundationcorePartner organization providing materials and resources for HNCA's regional programs including free screenings in Western Ohio.
- LIVESTRONGcoreLIVESTRONG supports HNCA's mission through materials and resources. HNCA participated in the inaugural LIVESTRONG Summit in 2006 where program concepts were developed.
- SPOHNC (Support for People with Oral, Head and Neck Cancer)coreNational Voice Program partner providing support and information for survivors. HNCA links to SPOHNC's peer support services and shares resources.
- Imerman AngelsminorVolunteer program where HNCA Ambassadors provide mentorship to head and neck cancer survivors through phone and email support.
- Scott Hamilton Fourth AngelminorVolunteer mentorship program supporting head and neck cancer patients through HNCA Ambassador involvement.
- American Academy of Otolaryngology - Head and Neck SurgerycoreDistributes the Laryngectomee Guide for free download on their website. The guide is also distributed by otolaryngological societies worldwide.
- Medical and Dental Clinics WorldwidecoreOver 400 hospitals, medical clinics, and dental offices partner with HNCA annually to host OHANCAW screening events and distribute educational materials.
- The Howard FamilyminorOrganizers of the Smash Cancer Tennis Tournament in Wilmington, NC, which has raised over $150,000 for HNCA since 2009.
- Kate FarmsminorPartnership providing nutrition content and resources for head and neck cancer patients, featured on the HNCA blog about nutrition and recovery.
Scale indicators7 records
Recent moves6 records
Expansion highlights5 records
Head and Neck Cancer Alliance competitors and assessment
Company assessmentDirect peers
- Imerman Angels: Nonprofit providing one-on-one peer mentorship for cancer survivors and caregivers. Named HNCA partner in mentorship delivery; operates the same peer-mentorship business model at a cross-cancer scale.
- SPOHNC — Support for People with Oral, Head and Neck Cancer: National nonprofit dedicated exclusively to oral, head and neck cancer support, peer support groups, and patient education. Named HNCA partner sharing resources and linking peer support services — essentially a co-peer serving the same patient population.
- ThyCa: Thyroid Cancer Survivors' Association: Disease-specific cancer survivors' nonprofit providing support services, education, and advocacy for thyroid cancer patients — a directly comparable disease-specific support model operating in a nearby head/neck oncology subspecialty.
- Scott Hamilton CARES Foundation / 4th Angel Mentoring Program: Free one-on-one peer mentorship program for cancer patients and caregivers. Named HNCA Ambassador volunteer partner; same mentorship-delivery model targeted at cancer survivors.
- Oral Cancer Foundation: Dentist-founded nonprofit focused on oral cancer awareness, screening, patient support, and research funding. Named HNCA partner in regional programs; serves the same head and neck cancer patient population with overlapping screening and education programs.
- CancerCare: National nonprofit offering free professional support services, counseling, education, and financial assistance to people affected by cancer. Closely comparable patient-support service portfolio and free delivery model across oncology.
- LUNGevity Foundation: Largest US nonprofit focused on lung cancer research, education, and support. Comparable disease-specific oncology nonprofit model with screening, survivorship, and patient navigation programs.
Broad incumbents
- American Cancer Society: Largest US cancer nonprofit providing research, patient support, screening programs (including HPV vaccination advocacy), and public education across all cancer types — operates at a vastly greater scale than HNCA in overlapping areas like screening and patient navigation.
- LIVESTRONG Foundation: Major cancer survivorship nonprofit serving all cancer types with navigation, education, and advocacy programs. Named HNCA partner since the inaugural 2006 LIVESTRONG Summit; offers a much broader portfolio across all oncology.
Emerging players
- National HPV Vaccination Roundtable: Coalition focused on HPV vaccination uptake and HPV-related cancer prevention including head and neck cancer. Adjacent to HNCA's HPV education and prevention mission, with overlapping target audience and prevention messaging.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks6 records
Key highlights7 records
Customer concentration
Head and Neck Cancer Alliance social profiles
Digital presenceHead and Neck Cancer Alliance financial estimates
Financial estimateRevenue estimate
Valuation estimate
Head and Neck Cancer Alliance leadership team
Management profileNumber of profiles
Profiles5 records
Head and Neck Cancer Alliance funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Head and Neck Cancer Alliance M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Head and Neck Cancer Alliance
What does Head and Neck Cancer Alliance do?
Head and Neck Cancer Alliance is a nonprofit patient advocacy organization that provides free awareness, education, screening, and support services to individuals affected by head and neck cancer. Its core offerings include the annual OHANCAW Screening Program hosted with 400+ partner facilities worldwide, Peer-to-Peer Mentorship, Patient Navigator services, the H&N Connect caregiver program, the Survivor Ambassador Program, the Survivorship Symposium, the multilingual Laryngectomee Guide, and a Patient HelpLine. All programs are provided at no cost to patients, survivors, caregivers, and healthcare professionals.
Is Head and Neck Cancer Alliance a public or private company?
Head and Neck Cancer Alliance is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Head and Neck Cancer Alliance founded?
Head and Neck Cancer Alliance was founded in 1998. It employs 1 to 10 people.
Where is Head and Neck Cancer Alliance based?
Head and Neck Cancer Alliance is headquartered in Charleston, United States, in the North America region.
How does Head and Neck Cancer Alliance make money?
Three revenue lines are on record. Donations are the primary driver. The others are corporate Sponsorships and fundraising Events.
Who are Head and Neck Cancer Alliance's main competitors?
Direct peers on record are Imerman Angels, SPOHNC — Support for People with Oral, Head and Neck Cancer, ThyCa: Thyroid Cancer Survivors' Association, Scott Hamilton CARES Foundation / 4th Angel Mentoring Program, Oral Cancer Foundation, CancerCare and LUNGevity Foundation. Broad incumbents are American Cancer Society and LIVESTRONG Foundation. National HPV Vaccination Roundtable is listed as an emerging player.
Does Head and Neck Cancer Alliance have an API?
No public API is recorded for Head and Neck Cancer Alliance.
What industry is Head and Neck Cancer Alliance in?
Head and Neck Cancer Alliance's product category is Patient Advocacy Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of HLAKAMAF, Head & Neck Surgery (ENT Oncology). Its NAICS code is 624190 and its SIC code is 8300.