Parkinsonnederland

What Parkinsonnederland does

ParkinsonNederland is a Dutch charitable foundation, headquartered at Stationsplein 123 in Amersfoort, that funds and supports Parkinson's disease research, innovation, and education. Founded on March 26, 2021 as the successor to Stichting Parkinson Nederland (originally launched in 2002) and rebranded from ParkinsonNL to ParkinsonNederland in November 2025, it is the only CBF Erkend Goed Doel-certified Dutch fund investing broadly across the Parkinson's field. The organization is led by Director Bert Kuipers and a small team, with Anneke Mels heading the Knowledge & Impact function.

Its core activities span three pillars. On research and innovation, ParkinsonNederland funds peer-reviewed projects through annual research calls and innovation calls (totaling approximately €1.5M in 2023–2024), Early Career Grants (€400,000 each, first awarded in 2025), and joint grants with peer charities such as the Maag Lever Darm Stichting. It initiated and anchors the Nederlands Parkinson Cohort (NPC), pooling clinical data and biomaterials from approximately 1,800 people with parkinson across four major Dutch academic cohorts. On digital health, the organization developed and supports the Parkinson Leefstijl Keuzehulp (an online shared decision-making tool co-developed with ZorgKeuzeLab) and the Cue2Walk@Home eHealth program for gait freezing, and is funding the Parkinson.nl digital information portal slated for 2026. On awareness and education, it runs the BikevoorParkinson cycling event (514 participants raising €211,943.50 in 2023), TV appearances such as DrieDubbel Gezond on NPO1, an ambassador program featuring Niels Peteri, Jan Heemskerk, Bas Bloem, and others, and educational products including a knowledge quiz and video series.

The business model is donation-based, with no commercial revenue: one-time gifts (€15/€25/€50/custom via iDEAL), monthly recurring donations (€7/€10), annual recurring donations (€25/€50/€100), periodic giving, bequests, event-based fundraising, and corporate partnerships. The largest disclosed institutional revenue stream is the Nationale Postcode Loterij, which contributed €900,000 in 2022 and entered a five-year strategic partnership in 2025 providing access to the loterij's 3+ million participants. Other institutional funding comes from the Dutch Ministry of VWS and co-funding partners. Distribution is exclusively domestic (Netherlands) via direct-to-consumer digital channels (website, email, social media on Facebook, X, Instagram, LinkedIn, and YouTube), physical events, and partner referral through Parkinsonalliantie Nederland members (Parkinson Vereniging, ParkinsonNet, Dutch Parkinson Scientists).

Name

Parkinsonnederland

Legal name

ParkinsonNederland

Website

https://parkinsonnederland.nl

Company type

Private

Founded year

2021

Operating status

Operating

Headcount range

11–50 employees

Short description

ParkinsonNederland is a Dutch charitable foundation that funds Parkinson's disease research, innovation, and education. It serves people with Parkinson's, their families, researchers, and healthcare providers via grants, digital health tools, and a national research cohort.

Ownership category

akta.pro rank

Product category

Parkinson's Disease Research Foundation

NAICS

Grantmaking Foundations (813211), Voluntary Health Organizations (813212)

akta.pro primary industry

Health & Medical Research Grantmaking Foundations (BPAGAKAL)

akta.pro secondary industries

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA), Research & Science Grantmaking Foundations (BPAGAKAI)

Keywords

• Parkinson's research funding
• Patient advocacy foundation
• Neurological disease charity
• Health research grants
• Lifestyle intervention tools

Headquarters

HQ city

Amersfoort

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Donations and Fundraising: ParkinsonNederland generates revenue primarily through donations from individuals, periodic giving (monthly/annual), one-time gifts, and bequests. The organization conducts direct fundraising campaigns including online donation forms, donation boxes, and event-based fundraising such as BikevoorParkinson and the Vierdaagse.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels10 records

Core offering

ParkinsonNederland is a Dutch non-profit charitable foundation (Stichting) that funds scientific research, innovation, and education related to Parkinson's disease. Established in 2021 as ParkinsonNL and rebranded to ParkinsonNederland in 2025, it operates as a CBF-recognized (Erkend Goed Doel) and ANBI-registered public benefit organization, raising funds to support research grants, develop lifestyle intervention tools, and disseminate knowledge to patients, families, and healthcare professionals in the Netherlands.

Product overview

ParkinsonNederland is the Dutch Parkinson's Foundation — a charitable organization focused on funding research, innovation, and education to slow, stop, and ultimately cure Parkinson's disease. Its product portfolio is centered on digital health tools and information resources for people with Parkinson's, their relatives, and healthcare professionals. Key offerings include: the Parkinson Leefstijl Keuzehulp, an online shared decision-making tool for lifestyle interventions; Cue2Walk@Home, an eHealth program for managing gait freezing; the Parkinson.nl digital information portal; educational products such as the Parkinson's Kennisquiz; published books De Parkinsonpandemie and Dagboek DBS; video series on Dutch research institutes; research awards (Talentprijzen and Early Career Grants); and the annual BikevoorParkinson fundraising event. Together these products support awareness, early diagnosis, quality of life, and scientific research into Parkinson's disease.

Differentiator

Problem solved

Functional benefit

Brands

• Parkinson leefstijl keuzehulp: An online tool that helps people with Parkinson's think about lifestyle changes they want to make, how to do it, and whether they need help.
• Nederlands Parkinson Cohort (NPC)
• ParkinsonNederland Early Career Grant
• Het Beste Parkinson Idee

Products and services

• Parkinson Leefstijl Keuzehulp An evidence-based lifestyle decision aid tool designed to help Parkinson's patients and their families make informed choices about diet, exercise, sleep, and other lifestyle factors to manage symptoms and improve quality of life.
• Cue2Walk@Home A home-based walking aid technology developed to help Parkinson's patients address freezing of gait episodes, allowing them to use the intervention independently at home without clinical supervision.
• Parkinson.nl Platform A comprehensive online information platform providing trusted, evidence-based content about Parkinson's disease for patients, families, and healthcare professionals across the Netherlands.
• Research Grants Program A funding program that provides scientific research grants to investigators conducting Parkinson's disease research, supporting innovation and scientific advancement in the field.
• Talentprijzen The Talent Awards program that recognizes and rewards promising researchers and innovators contributing to advances in Parkinson's disease understanding and treatment.
• BikevoorParkinson An annual community cycling event that raises awareness and funds for Parkinson's research and patient support, engaging participants across the Netherlands.
• Kennistest An interactive online knowledge quiz that educates users about Parkinson's disease and assesses their understanding of the condition and its management.

Quantifiable outcome

• 67,000 people with parkinson in the Netherlands (2022), expected to double by 2040
• +4 more outcomes

Named customers3 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Six partnerships are on record, tiered core and minor.

• Nederlands Parkinson Cohort (NPC) partnerscoreStrategic or Co-development Partner · 1 February 2025ParkinsonNederland initiated the NPC, a consortium of four major Dutch parkinson cohorts: ProPark (Amsterdam UMC, LUMC, Erasmus MC), Parkinson op Maat (Radboudumc), DUPARC (UMCG), and TRACK-PD (MUMC+). The consortium pools clinical data and biomaterials of ~1,800 people with parkinson to accelerate research. Also supported by Stichting Woelse Waard and the Postcode Loterij.
• Maag Lever Darm StichtingminorStrategic or Co-development Partner · 1 December 2021ParkinsonNederland and the Maag Lever Darm Stichting jointly awarded €370,000 to research into the role of gut bacteria in levodopa resistance. This co-funding demonstrates cross-condition collaboration between neurodegenerative and gastrointestinal disease organizations.
• Parkinson VerenigingcoreStrategic or Co-development Partner · 1 March 2021The Parkinson Vereniging (patient organization) is a key alliance partner within the Parkinsonalliantie Nederland. ParkinsonNederland provides substantial funding for advocacy and community activities. The two organizations collaborate on research oversight, patient participation, and the development of resources like the leefstijl keuzehulp.
• ParkinsonNetcoreStrategic or Co-development Partner · 1 March 2021ParkinsonNet is the national network of parkinson-specialized healthcare providers. ParkinsonNederland collaborates with ParkinsonNet on the leefstijl keuzehulp, the Cue2Walk@Home coaching, and other care innovation projects. The network provides physiotherapists and other specialists for patient-facing programs.
• Dutch Parkinson ScientistscoreStrategic or Co-development Partner · 1 March 2021Dutch Parkinson Scientists is the professional association of parkinson researchers in the Netherlands. They are a key partner within the Parkinsonalliantie Nederland and collaborate on research prioritization, talent awards (ParkinsonNL Talentprijzen), and the Dutch Parkinson Scientists congress.
• ZorgKeuzeLabminorStrategic or Co-development PartnerZorgKeuzeLab served as the development and implementation partner for the Parkinson leefstijl keuzehulp, an online tool helping people with parkinson make lifestyle decisions. ZorgKeuzeLab also co-financed the development and implementation of the tool alongside ParkinsonNederland, VWS, and the Postcode Loterij.

Scale indicators10 records

Recent moves7 records

Expansion highlights6 records

Direct peers

• Parkinson Vereniging: The Dutch Parkinson's patient association and a direct alliance partner of ParkinsonNederland within the Parkinsonalliantie Nederland. Both organizations serve the same patient population and collaborate on advocacy, research oversight, and patient participation, making them the closest functional peer in the Dutch Parkinson ecosystem.
• Hersenstichting: The Dutch Brain Foundation funds neuroscience research and raises public awareness of brain disorders including Parkinson's. It is a direct peer because it operates the same disease-research-funding and awareness model in an overlapping neurological disease area within the Dutch market.
• ReumaNederland: The Dutch Rheumatism Foundation funds research into rheumatic diseases and supports patients with a fundraising and grantmaking model analogous to ParkinsonNederland's. Comparable as a chronic-disease-focused charity competing for similar Dutch individual and corporate donors.
• Diabetes Fonds: The Dutch Diabetes Fund funds research and innovation for diabetes using the same disease-specific charitable model as ParkinsonNederland. Comparable structure, scale, and Dutch donor base, with overlapping media-buying and corporate-partnership channels.
• ALS Nederland: The Dutch foundation for ALS, a fatal neurological disease, funds research, raises awareness, and supports patients using a model very similar to ParkinsonNederland's. Comparable as a disease-specific neurodegenerative charity operating in the same Dutch funding environment with similar donor base dynamics.
• Maag Lever Darm Stichting: The Dutch Digestive Health Foundation is a co-funder of ParkinsonNederland research (joint €370K grant on gut bacteria in levodopa resistance). It is a direct peer operating a similar disease-area research-funding and awareness model in the Netherlands.

Broad incumbents

• The Michael J. Fox Foundation for Parkinson's Research: The world's largest private funder of Parkinson's research, with a substantially larger grantmaking budget and global brand. Comparable as a Parkinson's-specific research foundation but operating at materially greater scale and with international reach, illustrating ParkinsonNederland's domestic ceiling.
• KWF Kankerbestrijding: The largest Dutch health charity, focused on cancer research, innovation, and awareness. It is a broad incumbent peer because it operates a substantially larger version of the same disease-specific research-funding and donor-engagement model that ParkinsonNederland runs for Parkinson's.
• Hartstichting: The Dutch Heart Foundation is one of the country's largest health charities, with a national fundraising, research-funding, and awareness model directly comparable to ParkinsonNederland's, though focused on cardiovascular disease. It also receives Postcode Loterij support, providing a useful operating benchmark.

Others

• Nationale Postcode Loterij (as funding ecosystem): The Dutch postcode lottery is Parkinson'sNederland's largest institutional funder and a distribution channel to 3+ million Dutch participants. Relevant as an enabler/ecosystem participant rather than a peer competitor, but materially shapes ParkinsonNederland's growth trajectory through its 5-year partnership commitment.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xtwitter.com/ParkinsonNL_
• YouTubeyoutube.com/@ParkinsonNederland
• Facebookfacebook.com/ParkinsonNederland
• LinkedInlinkedin.com/company/parkinsonnederland
• Instagraminstagram.com/parkinsonnederland

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Parkinsonnederland