National CMV Foundation
The National CMV Foundation is a 501(c)(3) nonprofit that educates the public about congenital cytomegalovirus (CMV), supports affected families, and advocates for prevention, newborn screening, and vaccine research, serving women of childbearing age, families, healthcare providers, and researchers across the United States.
- Company typePrivate
- Founded2014
- HeadquartersTampa, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What National CMV Foundation does
National CMV Foundation is a 501(c)(3) tax-exempt nonprofit organization founded in 2014 and headquartered in Tampa, Florida, that educates the public about congenital cytomegalovirus (CMV), supports affected families, and advocates for prevention, screening, and research. The foundation's mission targets congenital CMV — the leading infectious cause of birth defects in the United States, affecting roughly 1 in 200 births — and serves women of childbearing age, pregnant women, families with CMV-diagnosed children, healthcare providers, childcare providers, and researchers. Its core service portfolio is content- and community-based: an extensive educational library (164+ blog posts, podcasts, family stories, FAQs, downloadable clinical guides), CMV Awareness Month programming each June, event-based fundraising (Strides 4 CMV walks, CMV Children's Golf Classic, Medtronic Twin Cities and Philadelphia Marathon partnerships), and a regional Community Alliance chaired by volunteer leaders across the U.S. The organization is governed by a Board of Directors and operates via an all-volunteer network of clinicians, researchers, business leaders, and CMV parents, with reported headcount of 1-10 staff.
The foundation does not develop or commercialize technology products and is not an AI- or software-driven entity; its distribution is entirely digital-channel based (nationalcmv.org, Facebook, Twitter, Instagram, YouTube, LinkedIn, email, mobile text messaging, podcasts, webinars). It sustains operations through individual donations, corporate sponsorships, cause-marketing partnerships (Cellars Wine Club, Zazzle, Bonfire merchandise), corporate matching gifts, planned/memorial giving, and event-driven fundraising integrated with platforms such as GoFundMe, Crowdrise, and Facebook Fundraisers. Strategic go-to-market is community-led and event-driven, with a direct-to-consumer awareness layer reaching women of childbearing age and healthcare providers.
The foundation has cultivated strategic relationships with pharmaceutical developers of CMV vaccine candidates — notably Moderna (mRNA-1647 CMVictory trial) and Merck (V160 Phase 2) — by serving as an information conduit and trial-awareness channel. It actively advocates for universal newborn congenital CMV screening and has invested in Voter Voice, a legislative-advocacy platform enabling community members to contact state and federal policymakers. Recognition includes the Candid Platinum Transparency 2024 seal and registration for charitable solicitation compliance in all required U.S. states. Interim Executive Director Megan Pesch, MD (NIH-funded CUBS Study investigator), President Andy Jones, and Co-Founder Kristen Spytek lead the organization.
National CMV Foundation firmographics
Firmographics- Name
- National CMV Foundation
- Legal name
- The National CMV Foundation, Inc.
- Website
- https://nationalcmv.org
- Company type
- Private
- Founded year
- 2014
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- The National CMV Foundation is a 501(c)(3) nonprofit that educates the public about congenital cytomegalovirus (CMV), supports affected families, and advocates for prevention, newborn screening, and vaccine research, serving women of childbearing age, families, healthcare providers, and researchers across the United States.
- Ownership category
- akta.pro rank
National CMV Foundation industry classification
Industry- Product category
- Health Advocacy Nonprofit
- NAICS
- Voluntary Health Organizations (813212), Child and Youth Services (624110)
- SIC
- Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Infectious Disease & Immunization Program Funding (HLAJALAH)
- akta.pro secondary industries
- Funding, Reimbursement & Vaccines-for-Children (VFC)/Public Purchase Programs (HLAJAHAK), Pediatric Vaccines (HLAIAEAA)
Keywords
Where National CMV Foundation is headquartered
LocationHeadquarters
- HQ city
- Tampa
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
National CMV Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Marketing or Sales, Operations, Others
Revenue model
- Individual Donations: Individual charitable donations from supporters, with 100% of online donations going directly to support National CMV Foundation programs.
- Corporate Sponsorships: Financial support from cause-marketing sponsors, strategic partners, and corporate donors who collaborate to further the mission and reach new audiences.
- Fundraising Events: Revenue from organized events including Strides 4 CMV, golf tournaments, marathons, and community fundraisers.
- Planned and Memorial Gifts: Planned gifts, memorial or tribute donations, and bequests to support long-term sustainability of the organization.
- Corporate Matching: Employee matching gift programs through workplace giving campaigns, multiplying employee charitable contributions.
- Merchandise Sales: Branded merchandise sales through Zazzle and Bonfire, with a portion of proceeds going to the foundation.
Go-to-market motion3 records
Distribution channels6 records
Marketing channels15 records
National CMV Foundation product offering
Product offeringCore offering
National CMV Foundation educates the public about congenital cytomegalovirus (CMV), supports families affected by the condition, and advances prevention, universal newborn screening, and CMV vaccine/treatment research. Operated as an all-volunteer network, it delivers these services through educational content, family stories and podcasts, clinical resources for healthcare providers, advocacy campaigns (e.g., Voter Voice for legislative outreach), and nationwide fundraising events such as Strides 4 CMV, the CMV Children's Golf Classic, and marathon partnerships.
Product overview
The National CMV Foundation operates as a nonprofit advocacy organization offering a unified portfolio of educational resources, community programs, and awareness campaigns rather than a traditional product platform. Core offerings include comprehensive CMV education content (podcasts, family stories, FAQs, downloadable guides), clinical resources (newborn screening protocols, vaccine development updates, clinical trial information), and awareness programs (Strides 4 CMV events, marathon partnerships, golf classics, advocacy tools using Voter Voice). The foundation also facilitates fundraising through integrated platforms (GoFundMe, Crowdrise, Facebook Fundraisers) and sells branded merchandise through Zazzle and Bonfire. The organization does not offer a software product, API, or AI-powered technology; its offerings center on information, community support, and advocacy coordination for women of childbearing age, families, and healthcare providers.
Differentiator
Problem solved
Functional benefit
Products and services
- Strides 4 CMV Events
- CMV Children's Golf Classic
- Marathon Partnerships
- National CMV Merchandise Store
- Corporate Sponsorship Program
- CMV Advocacy Tools (Voter Voice Platform)
- Faces of CMV Campaign
Quantifiable outcome
- 100% of online donations go to support National CMV Foundation programs
- +1 more outcomes
Companies that use National CMV Foundation
Customer profileNamed customers2 records
Segments5 records
Ideal customer profiles5 records
National CMV Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration13 records
National CMV Foundation partnerships and signals
Strategic signalPartnerships
Six partnerships are on record, tiered minor and core.
- Cellars Wine ClubminorCellars Wine Club partnership where customers use code GBNCMV19 and receive 15% giveback to National CMV Foundation with every order. This is a cause-marketing partnership that provides ongoing revenue while offering a product benefit to supporters.
- Voter VoicecoreVoter Voice is an online platform that makes it easier for the CMV community to contact legislators, advocate for CMV awareness, and drive meaningful policy change. The foundation raised $10,000 to purchase a subscription to this platform for #GivingTuesday 2019.
- ZazzleminorOnline merchandise store where customized branded clothing and products are available for purchase, with a portion of proceeds going directly to National CMV Foundation.
- BonfireminorOnline merchandise store for branded products and event apparel, with a portion of proceeds supporting National CMV Foundation.
- ModernacoreModerna is conducting the CMVictory Trial studying mRNA-1647 CMV vaccine in healthy female participants. The foundation provides information about this clinical trial and vaccine development on their research pages, supporting awareness and recruitment for the study.
- Merck Sharp & Dohme CorpcoreMerck is conducting Phase 2 vaccine studies for CMV (V160 vaccine) in healthy women. The foundation supports awareness of these clinical trials through its vaccine development resources page.
Scale indicators6 records
Recent moves6 records
Expansion highlights5 records
National CMV Foundation competitors and assessment
Company assessmentDirect peers
- National Organization for Rare Disorders (NORD): U.S. rare-disease umbrella advocacy organization supporting patient organizations and policy advocacy. Closely comparable as a nonprofit advocacy and education entity operating in the congenital/rare disease awareness and policy space.
- Every Mother Counts: Maternal health nonprofit focused on awareness, education, and advocacy. Comparable as a cause-driven, event-and-content-led nonprofit targeting expectant mothers and families.
- Immunize.org: Nonprofit dedicated to increasing immunization rates through provider education and patient resources. Comparable as an advocacy and education nonprofit focused on vaccine-preventable infectious disease.
- Parents of Kids with Infectious Diseases (PKIDS): Small nonprofit supporting families of children with chronic infectious diseases through education and advocacy. Highly comparable as a peer-sized, volunteer-driven nonprofit addressing a specific pediatric infectious disease community.
- Stop CMV (state-level chapter networks): State and regional CMV advocacy organizations pursuing similar newborn screening and awareness goals. Comparable as grassroots advocacy peers competing for the same donor and policymaker mindshare.
Broad incumbents
- CDC Foundation: Nonprofit that supports the CDC's infectious disease and immunization programs. Comparable as a public-health-focused nonprofit supporting infectious disease prevention and immunization program funding.
- March of Dimes: Largest U.S. maternal and infant health nonprofit, addressing prematurity, birth defects, and maternal mortality. Directly comparable as a fundraising/advocacy organization competing for the same donor and policymaker attention on infant health issues.
- American College of Obstetricians and Gynecologists (ACOG): Professional society that publishes clinical guidance for OB/GYNs on infectious disease prevention in pregnancy, including CMV. Comparable as a trusted source of CMV clinical information for the same healthcare provider audience.
- American Academy of Pediatrics (AAP): National pediatric professional organization producing clinical guidance on newborn screening, congenital infections, and child health. Comparable as the institutional voice for pediatricians on congenital CMV diagnosis and management.
Others
- HealthyChildren.org (AAP): AAP's consumer-facing parenting and child-health information site. Comparable as a competing authoritative information source that families and pregnant women consult alongside the foundation's educational resources.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
National CMV Foundation social profiles
Digital presenceNational CMV Foundation compliance and trust
Trust signalCompliance4 records
National CMV Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
National CMV Foundation leadership team
Management profileNumber of profiles
Profiles3 records
National CMV Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
National CMV Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about National CMV Foundation
What does National CMV Foundation do?
National CMV Foundation educates the public about congenital cytomegalovirus (CMV), supports families affected by the condition, and advances prevention, universal newborn screening, and CMV vaccine/treatment research. Operated as an all-volunteer network, it delivers these services through educational content, family stories and podcasts, clinical resources for healthcare providers, advocacy campaigns (e.g., Voter Voice for legislative outreach), and nationwide fundraising events such as Strides 4 CMV, the CMV Children's Golf Classic, and marathon partnerships.
Is National CMV Foundation a public or private company?
National CMV Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was National CMV Foundation founded?
National CMV Foundation was founded in 2014. It employs 1 to 10 people.
Where is National CMV Foundation based?
National CMV Foundation is headquartered in Tampa, United States, in the North America region.
How does National CMV Foundation make money?
Six revenue lines are on record. Individual Donations are the primary driver. The others are corporate Sponsorships, fundraising Events, planned and Memorial Gifts, corporate Matching and merchandise Sales.
Who are National CMV Foundation's main competitors?
Direct peers on record are National Organization for Rare Disorders (NORD), Every Mother Counts, Immunize.org, Parents of Kids with Infectious Diseases (PKIDS) and Stop CMV (state-level chapter networks). Broad incumbents are CDC Foundation, March of Dimes, American College of Obstetricians and Gynecologists (ACOG) and American Academy of Pediatrics (AAP). HealthyChildren.org (AAP) is listed as an others.
Does National CMV Foundation have an API?
No public API is recorded for National CMV Foundation.
What industry is National CMV Foundation in?
National CMV Foundation's product category is Health Advocacy Nonprofit. Its primary akta.pro industry code is HLAJALAH, Infectious Disease & Immunization Program Funding, with a secondary code of HLAJAHAK, Funding, Reimbursement & Vaccines-for-Children (VFC)/Public Purchase Programs. Its NAICS code is 813212 and its SIC code is 8090.