Fondation Paralysie Cerebrale

What Fondation Paralysie Cerebrale does

Fondation Paralysie Cérébrale is a French nonprofit foundation created in 2005 by parent associations and health professionals, recognized as 'reconnue d'utilité publique' since 2006. It is the only research foundation in France dedicated exclusively to cerebral palsy, serving the estimated 125,000 people in France (17 million worldwide) living with the condition, along with their families and the clinicians and researchers who treat them.

The foundation's core activity is financing and supervising clinical and translational research through competitive calls for projects overseen by an internationally recognized Scientific Council. It has issued 15 calls for projects since inception, funded 78 research projects, invested €7 million directly in research, and supported the publication of 139 articles in peer-reviewed journals. Three flagship multi-year research programs anchor the portfolio: CAP' (2018-2023) on intensive play-based rehabilitation for children aged 1-4, ENSEMBLE (2022-2027) on early diagnosis, and PARTAGE (launched 2026) on social participation and quality of life for adults. The foundation's work has influenced HAS (Haute Autorité de Santé) recommendations on HABIT-ILE intensive rehabilitation.

The foundation operates as a public-utility charity with no commercial product revenue. Funding comes from individual donations (one-time and monthly recurring) processed through an iRaiser-powered self-serve donation platform, corporate mécénat from a diversified sponsor base (insurance majors AG2R La Mondiale, Klesia, Malakoff Humanis; social fund CCAH; plus STEPtember participants including Sanofi, L'Oréal, Vulcain, Cogefi, PartnerRe, GBB, Orlandi, and La Bienveillance Financière), legacies and life-insurance gifts, and event-based fundraising via the annual STEPtember walking challenge (September 14-30) and the Charitable Metal Fest concert. Community engagement is delivered through Les Amis de la Fondation, a family support association. The foundation also contributes to national ecosystem coordination, including the 2025 creation of the filière nationale de la paralysie cérébrale.

Name

Fondation Paralysie Cerebrale

Legal name

Fondation Paralysie Cérébrale

Website

https://fondationparalysiecerebrale.org

Company type

Private

Founded year

2005

Operating status

Operating

Headcount range

1–10 employees

Short description

Fondation Paralysie Cérébrale is a French nonprofit foundation, founded in 2005, that funds and supervises clinical research on cerebral palsy and supports affected families. It serves the 125,000 people in France living with cerebral palsy, their families, and the researchers and clinicians who treat them, financed through donations, corporate mécénat, legacies, and annual fundraising events.

Ownership category

akta.pro rank

Product category

Nonprofit Medical Research Foundation

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

• Cerebral palsy research
• Medical research funding
• Rehabilitation science
• Disability advocacy
• Nonprofit philanthropy

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Others, Personnel, Marketing or Sales, Technology or R&D

Revenue model

1. Individual Donations: One-time and monthly recurring donations from individuals supporting cerebral palsy research. Tax-deductible under French public utility foundation status.
2. Corporate Sponsorship and Mecénat: Corporate sponsors (AG2R La Mondiale, Klesia, Malakoff Humanis, CCAH, Sanofi, L'Oréal, Vulcain, Cogefi, PartnerRe, GBB, Orlandi, LBF) provide financial support through sponsorship agreements and STEPtember participation.
3. Legs, Donations and Life Insurance: Estate planning vehicles allowing donors to make legacy gifts to the foundation, providing long-term fundraising revenue.
4. Fundraising Events: STEPtember charity challenge and Charitable Metal Fest music concert generate donations from participants and event attendees.

Pricing tiers

Go-to-market motion3 records

Distribution channels3 records

Marketing channels8 records

Core offering

The Fondation Paralysie Cérébrale is a French public-utility research foundation that funds, supervises and disseminates cerebral palsy research through competitive calls for projects and three flagship multi-year programs (CAP', ENSEMBLE, PARTAGE). It couples this research mission with family support via the Les Amis association, public-awareness fundraising events such as STEPtember and Charitable Metal Fest, and tax-deductible donation, legacy and corporate mécénat vehicles channelled through an online donation platform.

Product overview

The Fondation Paralysie Cérébrale operates as a research foundation offering a portfolio of research funding programs and community engagement initiatives rather than a unified technology product. Its core offerings include three major research programs: CAP' (intensive rehabilitation for young children), ENSEMBLE (early diagnosis), and PARTAGE (adult quality of life). These are complemented by public engagement programs including the STEPtember charitable challenge, Charitable Metal Fest music event, educational publications including the family guide, and an online donation platform. The foundation functions primarily as a nonprofit research organization rather than a software technology company.

Differentiator

Problem solved

Functional benefit

Brands

• STEPtember: Annual charity challenge to raise funds for cerebral palsy research, involving walking and physical activity.
• Charitable Metal Fest
• Les Amis de la Fondation

Products and services

• CAP' Programme European research program funding intensive and play-based rehabilitation studies for children aged 1-4 with cerebral palsy, aimed at promoting greater autonomy and demonstrating the impact of HABIT-ILE-style intensive rehabilitation. Output includes foundational research that influenced HAS recommendations.
• ENSEMBLE Programme European-scale research program funding studies on early diagnosis of cerebral palsy (including MRI brain lesion analysis and EEG brain activity analysis) to enable early intervention during the critical period of neuroplasticity. Supports neonatal follow-up, neuroimaging and neurophysiology research.
• PARTAGE Programme Research call for projects focused on social participation (PARTicipation sociale) and quality-of-life improvements for adults living with cerebral palsy. Funds studies on autonomy, social inclusion and adult care pathways.
• Research Calls for Projects Competitive funding mechanism through which the foundation invites and selects research proposals, supervised by its Scientific Council of internationally recognized experts. 15 calls have been issued since 2005, financing 78 research projects and supporting 139 scientific publications.
• STEPtember Annual 17-day charitable challenge (September 14-30) where individual and corporate participants commit to 10,000 steps per day to raise funds for cerebral palsy research. Combines personal fundraising pages, corporate team participation, and public visibility for the foundation.
• Charitable Metal Fest Annual heavy-metal music concert held in Savigny-le-Temple to raise funds and public awareness for cerebral palsy research. Engages a dedicated music community around the foundation's mission.
• Guide des Amis de la Fondation Practical guide 'Grandir avec une paralysie cérébrale' (Growing up with cerebral palsy) produced by the Les Amis association, co-designed with parents, affected adults and healthcare professionals to support families across the life course of cerebral palsy.
• Donation Platform Online donation service at don.fondationparalysiecerebrale.org, powered by iRaiser, enabling one-time and recurring donations via credit card, PayPal, Apple Pay, and SEPA direct debit, with automated fiscal receipts for tax-deductible giving.
• Les Cahiers de la Recherche Periodic research publications produced by the foundation documenting findings from its funded research projects, aimed at clinicians, researchers, families and policy makers.

Quantifiable outcome

• 78 research projects financed since 2005
• +4 more outcomes

Named customers2 records

Segments2 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

15 partnerships are on record, tiered minor, major and core.

• Saint-Jean de Passy schoolminorGTM or Marketing Partner · 1 January 2023Private school whose students organized a running event (1,800 students) to raise funds for the foundation.
• AG2R La MondialemajorGTM or Marketing PartnerMajor corporate sponsor supporting the foundation's research mission. Logo displayed on sponsors section of website.
• KlesiamajorGTM or Marketing PartnerCorporate sponsor providing financial support and participating in STEPtember events. Logo displayed on sponsors section.
• Malakoff HumanismajorGTM or Marketing PartnerCorporate sponsor supporting the foundation's mission. Logo displayed on sponsors section.
• CCAH (Caisse Centrale d'Activités Sociales)majorGTM or Marketing PartnerSocial activities fund for French railways workers supporting the foundation as charity partner.
• SanofiminorGTM or Marketing PartnerSTEPtember participant company whose employees fundraise through the annual charity challenge.
• L'OréalminorGTM or Marketing PartnerCorporate participant in STEPtember challenge, mobilizing employees for fundraising.
• VulcainminorGTM or Marketing PartnerEngineering company participating in STEPtember charity challenge.
• CogefiminorGTM or Marketing PartnerInvestment firm that organized the Course des Héros 2018 for the foundation and participates in STEPtember.
• PartnerReminorGTM or Marketing PartnerReinsurance company participating in STEPtember fundraising challenge.
• GBB (Give Back Beauty)minorGTM or Marketing PartnerBeauty industry group participating in STEPtember corporate challenge.
• OrlandiminorGTM or Marketing PartnerCompany participating in STEPtember charity fundraising challenge.
• La Bienveillance FinancièreminorGTM or Marketing PartnerFinancial advisory firm participating in STEPtember challenge.
• Julien Bonnaire (Parrain)majorOthersFormer French rugby player serving as foundation patron since April 2024, raising awareness through his personal story of his daughter Edith living with cerebral palsy.
• iRaisercoreTechnology or IntegrationDigital fundraising platform provider powering the foundation's online donation system with payment processing, donor management, and personal fundraising pages.

Scale indicators9 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Fondation ARC pour la recherche sur le cancer: French disease-specific nonprofit funding cancer research through donations and legacies. Same grantmaking, public utility status, and donor-engagement playbook as the subject foundation.
• United Cerebral Palsy (UCP): US-based nonprofit organization serving the cerebral palsy community through research funding, advocacy, and direct service programs. Direct international peer in the same disease vertical.
• Cerebral Palsy Alliance (Australia): Australian nonprofit dedicated to cerebral palsy research, therapy services, and advocacy. Most direct disease-specific peer globally; shares research funding focus on early intervention and rehabilitation.
• AFM-Téléthon: French nonprofit funding research on neuromuscular diseases via annual Téléthon event. Same operating model (disease-specific research foundation, national event-driven fundraising, public utility status) but at a much larger scale.
• Fondation maladies rares: French foundation dedicated to rare disease research. Shares the niche-disease research funding model, public utility status, and partnership approach with academic and clinical research stakeholders.
• Fondation pour la Recherche Médicale (FRM): Leading French health research foundation funding a broad portfolio of biomedical research projects. Comparable scope of operations, peer-review-led grantmaking, and donation/mécénat revenue model.
• March of Dimes: US nonprofit focused on maternal and infant health, including research on causes of cerebral palsy (birth injuries, prematurity). Comparable grantmaking model and donor-driven revenue.

Others

• Institut de Recherche en Santé Publique (IReSP): French public health research institute that co-funds research projects with disease-focused foundations. Relevant adjacent organization as a potential co-funding partner for the foundation's calls for projects.

Broad incumbents

• Humanity & Inclusion (Handicap International): Large international disability-focused nonprofit that operates across many disability types including CP. Broader scope than the subject foundation and a potential partner or complement for advocacy and family-support activities.

Regional players

• European Foundation for the Study of Diabetes (EFSD): European disease-specific nonprofit funding diabetes research through grants and partnerships. Analogous vertically-focused research foundation model but at a European (rather than national) level.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UCWox34VkKBTU1eCZf6bUnuw
• Facebookfacebook.com/fondationparalysiecerebrale
• LinkedInlinkedin.com/company/fondation-paralysie-cerebrale
• Instagraminstagram.com/fondationparalysiecerebrale

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fondation Paralysie Cerebrale