MIDWEST HEMOPHILIA ASSOCIATION

What MIDWEST HEMOPHILIA ASSOCIATION does

Midwest Hemophilia Association (MHA) is a 501(c)(3) nonprofit organization (EIN 43-1595395) founded in 1991 to serve individuals and families affected by bleeding disorders in Kansas and western Missouri. The organization serves a defined patient population of approximately 800 diagnosed Missourians and 200 Kansans living with conditions including Hemophilia A, Hemophilia B, von Willebrand disease, rare factor deficiencies, and platelet disorders. MHA operates an integrated program portfolio spanning direct financial assistance (up to $1,000 per household every two years), academic scholarships ($1,500 per recipient), youth programming (Camp Wilderness for ages 7-17), women's retreats (FAB Women's Retreat), annual family education weekends, mental health resource referrals, and state-level advocacy (including the Missouri All Copays Count Coalition). It is governed by a 10-member Board of Directors (15 available seats) and led by Executive Director Angela Brown, with a lean staff of 6 employees.

MHA's revenue model is entirely donation- and sponsorship-driven. Primary revenue streams include individual and corporate charitable contributions (tax-deductible under 501(c)(3) status), event-based fundraising (notably the annual UNITE for Bleeding Disorders Walk with a $40,000 goal), pharmaceutical and specialty pharmacy sponsorships (Takeda, Sanofi, Novo Nordisk, Pfizer, CSL Behring, Genentech, Medexus, Hema Biologics, Optum, CVS Specialty, Promptcare, SandsRx), and nominal program fees ($30 for FAB retreat, $50 for Camp Wilderness). The organization is affiliated with the National Bleeding Disorders Foundation (NBDF) and Hemophilia Federation of America, and maintains strategic referral partnerships with four regional hemophilia treatment centers. Distribution is direct-to-member through community events, healthcare provider referrals, and self-service online registration. MHA does not develop proprietary technology; its infrastructure consists of a standard website, social media presence, and email communications.

Name

MIDWEST HEMOPHILIA ASSOCIATION

Legal name

Midwest Hemophilia Association

Website

https://midwesthemophilia.org

Company type

Private

Founded year

1991

Operating status

Operating

Headcount range

1–10 employees

Short description

Midwest Hemophilia Association is a 501(c)(3) nonprofit founded in 1991 serving approximately 1,000 individuals and families affected by bleeding disorders in Kansas and western Missouri through education, advocacy, financial assistance, youth camps, and community programming.

Ownership category

akta.pro rank

Product category

Nonprofit Patient Advocacy Services (Bleeding Disorders)

NAICS

Individual and Family Services (6241), Grantmaking and Giving Services (81321)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Community Health, Prevention & Health Education (BPAGACAC)

akta.pro secondary industries

Mental Health & Crisis Support Services (BPAGACAD), Maternal, Child & Family Health Organizations (BPAGACAF), Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits (BPAGADAK)

Keywords

• Bleeding disorders advocacy
• Patient support services
• Nonprofit healthcare support
• Community health education
• Hemophilia patient programs

Headquarters

HQ city

Ozark

HQ country

United States

HQ region

North America

Offices10 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others, Technology or R&D

Revenue model

1. Donations and Charitable Contributions: MHA operates as a 501(c)(3) nonprofit organization (EIN 43-1595395) primarily funded through donations from individuals, corporations, and foundations. All donations are tax-deductible to the fullest extent of U.S. law.
2. Event Fundraising: Revenue generated through event-based fundraising including the annual UNITE for Bleeding Disorders Walk with a $40,000 goal, Casino Bingo Fundraiser, and other community events. The UNITE walk emphasizes that 100% of individual donations raised go directly to the chapter.
3. Program Registration Fees: Modest registration fees for select programs including $50 application fee for Camp Wilderness, $30 non-refundable fee for FAB Women's Retreat (includes hotel room, meals, and materials).
4. Sponsorships and Industry Partnerships: Support from pharmaceutical companies, specialty pharmacies, and healthcare product manufacturers who sponsor educational events, camps, and community programs. Sponsors include Takeda, Sanofi, Novo Nordisk, Pfizer, CSL Behring, Genentech, Medexus Pharma, Hema Biologics, and others.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels6 records

Core offering

Midwest Hemophilia Association is a 501(c)(3) nonprofit patient advocacy organization that delivers education, advocacy, financial assistance, youth programming, and community support to individuals and families affected by bleeding disorders (including Hemophilia A/B, von Willebrand disease, rare factor deficiencies, and platelet disorders) across Kansas and western Missouri. Its core offerings center on a coordinated portfolio of free and low-cost programs — financial assistance grants, academic scholarships, youth camps, women's retreats, family education weekends, support groups, and an annual fundraising walk — funded primarily through charitable donations, event fundraising, and pharmaceutical sponsorships.

Product overview

Midwest Hemophilia Association is a 501(c)(3) nonprofit organization that offers a coordinated portfolio of support services for individuals and families affected by bleeding disorders in Kansas and western Missouri. The organization operates as a single integrated service organization rather than a platform-based product model, offering programs including Emergency Financial Assistance, Family Education Weekend, Camp Wilderness, FAB Women's Retreat, UNITE for Bleeding Disorders Walk, academic scholarships, community outreach programs, mental health resources, advocacy efforts, support groups, and membership programs. These services work together to provide education, advocacy, community connections, and direct support to the bleeding disorders community.

Differentiator

Problem solved

Functional benefit

Products and services

• Emergency Financial Assistance Program Provides emergency financial assistance grants of up to $1,000 per household (once every two years) to eligible individuals and families in Kansas and western Missouri affected by bleeding disorders, covering urgent needs such as rent, utilities, and transportation to medical appointments. Grants are paid directly to verified creditors rather than to applicants, and eligibility requires living in the MHA service area or being a current patient of the Kansas City Regional Hemophilia Treatment Center.
• Family Education Weekend Annual family-focused educational event bringing together individuals, families, healthcare professionals, and industry partners for education, connection, and support over a weekend at Marriott KC in Overland Park, Kansas. The 2026 edition is scheduled September 19-20, 2026.
• Camp Wilderness Summer camp program for youth ages 7-17 diagnosed with a bleeding disorder and/or verified carrier status, held at Lake Doniphan Conference & Retreat Center with a $50 application fee. Provides activities, peer connections, age-appropriate education, and on-site medical support from regional hemophilia treatment centers, including infusion plans and clearance requirements.
• FAB Women's Retreat Rejuvenating weekend retreat designed to connect and empower women impacted by bleeding disorders, featuring educational sessions, facilitated discussions, and peer support. The $30 non-refundable fee includes hotel room, meals, and conference materials; scholarships are available for eligible attendees.
• UNITE for Bleeding Disorders Walk Annual community fundraising walk bringing together the bleeding disorders community and supporters to raise vital chapter funds, with 100% of individual donations going directly to the chapter. The 2026 walk is held at Indian Creek Recreation Center in Overland Park, KS with a $40,000 fundraising goal.
• MHA Academic Scholarships Annual academic scholarships for post-secondary students with bleeding disorders, including the MHA Georgia Northway Academic Scholarship and MHA Academic Scholarship worth $1,500 each. Applicants must be MHA members, post-secondary students diagnosed with a bleeding disorder, and reside in Kansas or western Missouri; application deadline June 1 with notification by July 1.
• Community Outreach Programs Various community events including social gatherings, educational presentations, and recreational activities (such as indoor skydiving at iFLY Kansas City, pickleball at Chicken N Pickle, and educational dinners) for individuals and families affected by bleeding disorders in Kansas and western Missouri.
• Advocacy Program Advocacy efforts ensuring the bleeding disorders community has a strong voice in state and national healthcare policy, including coalition participation (e.g., Missouri All Copays Count Coalition supporting HB442 copay assistance legislation) and providing members with legislative communication guidance.
• Membership Program Annual membership program for individuals and families affected by bleeding disorders in Kansas and western Missouri, providing year-round access to programming, services, voting rights, and community engagement opportunities. Membership is the foundational relationship through which MHA delivers its integrated portfolio of programs.
• Mental Health Resources Curated resource hub providing access to mental health support services for individuals and families affected by bleeding disorders, including referrals to the Crisis Text Line, National Suicide Prevention Lifeline, SAMHSA, and Veterans Crisis Line.

Quantifiable outcome

• 800+ individuals in Missouri and 200+ in Kansas served (diagnosed with bleeding disorders)
• +3 more outcomes

Named customers4 records

Segments5 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

19 partnerships are on record, tiered flagship and core.

• TakedaflagshipGTM or Marketing PartnerTakeda is a presenting sponsor for the UNITE for Bleeding Disorders Walk 2026. As a major pharmaceutical company focused on rare diseases and bleeding disorders, Takeda provides significant sponsorship support for MHA community events and programs.
• Hemophilia AllianceflagshipGTM or Marketing PartnerHemophilia Alliance is a presenting sponsor for the UNITE for Bleeding Disorders Walk 2026 and provides funding support for the Financial Assistance Program. They support the bleeding disorders community through advocacy and financial resources.
• National Bleeding Disorders Foundation (NBDF)flagshipStrategic or Co-development PartnerNBDF is a presenting sponsor for the UNITE Walk and the parent national organization for MHA. MHA promotes NBDF's Bleeding Disorders Conference and operates under the NBDF chapter network. Strong strategic alliance for advocacy, education, and community support.
• SanoficoreGTM or Marketing PartnerSanofi sponsors the FAB Women's Retreat 2026. As a global pharmaceutical company with bleeding disorders treatments, Sanofi provides sponsorship support for MHA's women-focused programs.
• Novo NordiskcoreGTM or Marketing PartnerNovo Nordisk sponsors the FAB Women's Retreat 2026. Provides sponsorship support for MHA's women's programming and community events.
• PfizercoreGTM or Marketing PartnerPfizer sponsors the Springfield Education Day 2026. Provides sponsorship for educational events serving the bleeding disorders community.
• CSL BehringcoreGTM or Marketing PartnerCSL Behring sponsors the Springfield Education Day 2026. As a biotherapy company, they support MHA's educational programming.
• GenentechcoreGTM or Marketing PartnerGenentech sponsors the Springfield Education Day 2026. Provides support for MHA's community education events.
• SandsRx PharmacycoreGTM or Marketing PartnerSandsRx Pharmacy sponsors the iFLY Community Outreach Program and Family Education Weekend 2026. Kevin Harris from SandsRX presents 'Staying Loose' at community events. Provides specialty pharmacy support for the bleeding disorders community.
• Medexus PharmacoreGTM or Marketing PartnerMedexus Pharma sponsors the iFLY Community Outreach Program. Supports MHA community events and programs serving bleeding disorder patients.
• Hema BiologicscoreGTM or Marketing PartnerHema Biologics sponsors the iFLY Community Outreach Program and Springfield Education Day 2026. Provides support for MHA's community programming.
• OptumcoreGTM or Marketing PartnerOptum sponsors the Springfield Education Day 2026. Healthcare services company supporting MHA's educational events.
• CVS SpecialtycoreGTM or Marketing PartnerCVS Specialty sponsors the Springfield Education Day 2026. Specialty pharmacy services supporting bleeding disorder patients.
• PromptcarecoreGTM or Marketing PartnerPromptcare sponsors the Springfield Education Day 2026. Infusion services company supporting MHA community events.
• Children's Mercy Kansas City Hemophilia Treatment CentercoreStrategic or Co-development PartnerChildren's Mercy Kansas City HTC provides medical staff contact for Camp Wilderness and medical-specific support for campers. Strong partnership for serving pediatric patients with bleeding disorders.
• University of Missouri Hospital and Clinics Hemophilia Treatment CentercoreStrategic or Co-development PartnerUniversity of Missouri HTC serves as a referral source and healthcare partner. Dr. Barbara Gruner provides hemophilia treatment center services through this partnership.
• Kansas City Regional Hemophilia Treatment CenterflagshipStrategic or Co-development PartnerKansas City Regional HTC is a key referral partner. MHA Financial Assistance Program requires patients to be current patients of this HTC or live in the service area. Partnership enables direct patient referrals and coordinated care.
• Great Plains Region Hemophilia ProgramcoreStrategic or Co-development PartnerRegional coordinator John Drake provides support through this program. Partnership extends MHA's reach and coordination in the bleeding disorders community.
• Missouri All Copays Count CoalitioncoreStrategic or Co-development PartnerCoalition focused on ensuring copay assistance counts toward deductibles and out-of-pocket maximums for patients with chronic conditions. MHA participates in advocacy efforts for this coalition supporting Missouri legislation (HB442).

Scale indicators7 records

Recent moves6 records

Expansion highlights5 records

Regional players

• Hemophilia Association of the Capital Area: Regional bleeding disorders chapter serving the Washington D.C. metro area. Comparable programmatic model but operates in a different geographic catchment from MHA.
• Bleeding Disorders Foundation of Washington: Regional bleeding disorders organization serving Washington state with education, advocacy, and community support programs. Comparable chapter model but operates in the Pacific Northwest.
• Hemophilia Foundation of Minnesota and the Dakotas: Regional bleeding disorders chapter serving Minnesota and the Dakotas with similar camp, education, and family support programs. Operates in an adjacent regional catchment to MHA.

Broad incumbents

• Hemophilia Federation of America: National nonprofit serving the bleeding disorders community with similar programmatic pillars (advocacy, education, community support). Operates broader policy and research programs while MHA executes regional programming.
• National Bleeding Disorders Foundation: National umbrella organization for the U.S. bleeding disorders community; MHA is an affiliated chapter. Directly comparable in mission (education, advocacy, support) but operates at national scale with annual conference and federal policy engagement.

Direct peers

• Lone Star Bleeding Disorders: Texas-based bleeding disorders nonprofit offering camp, family education, and financial assistance programs. Comparable in chapter-level mission and programming model to MHA.
• New England Hemophilia Association: Regional bleeding disorders chapter serving the New England states with advocacy, education, and community programs. Highly comparable chapter structure and program portfolio to MHA.
• Virginia Hemophilia Foundation: Regional bleeding disorders chapter serving Virginia with mission-aligned programs including camps, family education, and advocacy. Closely comparable in scope and operations to MHA.
• Gateway Hemophilia Association: Regional bleeding disorders nonprofit serving the greater St. Louis area and eastern Missouri — directly adjacent to MHA's western Missouri service area. Operates similar camp, education, and family support programs.
• Hemophilia Foundation of Michigan: Regional bleeding disorders chapter serving Michigan with mission-aligned programs (camps, scholarships, financial assistance, advocacy). Comparable organization structure and multi-program service model to MHA.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/Midwesthemophi1
• Facebookfacebook.com/MidwestHemophilia
• LinkedInlinkedin.com/company/midwest-hemophilia-association
• Instagraminstagram.com/midwesthemophiliaassociation

Revenue estimate

Valuation estimate

Number of profiles

Profiles12 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about MIDWEST HEMOPHILIA ASSOCIATION