Raremark
RareDisease.net is a web-based patient community and health information platform serving rare disease patients and caregivers, offering a database of 5,000+ conditions, peer forums, patient stories, and curated health resources under Health Union, LLC.
- Company typePrivate
- Founded2015
- HeadquartersLondon, United Kingdom
- Headcount—
- GTM typeB2C
- OfferingDigital Commerce or Content
What Raremark does
RareDisease.net is a web-based patient community and health information platform that serves individuals diagnosed with or suspecting rare diseases, along with their caregivers and families. Its surface combines a searchable database of more than 5,000 rare diseases with expert-authored editorial articles, peer discussion forums, first-person patient stories, and curated condition-specific topic collections. The platform is organized around rare-disease conditions and adjacent themes such as diagnosis, caregiving, mental health, and clinical trial navigation, and is accessible globally without geographic restrictions via the public website.
Underlying the platform is a content-first publishing architecture: SEO-structured condition pages serve as the primary top-of-funnel acquisition surface, while forums, stories, and email subscriptions drive mid- and post-engagement retention. Distribution relies on organic search, content marketing, social media (Facebook, Instagram, LinkedIn), and newsletter capture, with no sales-mediated onboarding. The product is free to end users, requiring only account registration for community participation.
The business operates as a community brand within Health Union, LLC's Social Health Network, drawing on shared editorial resources and cross-community promotion across the parent's portfolio of more than 70 condition-specific communities. Revenue is generated through advertising and sponsorship partnerships with healthcare and pharmaceutical companies targeting rare disease audiences. The company is privately held, with no evidence of independent external funding rounds, public listing, or standalone revenue disclosure in the available source data.
Note on identity: while the named firmographic entity references a London-based company founded in 2015, the disclosed product, legal entity, GTM, technology, and partnership evidence all map to the US-based RareDisease.net property under Health Union, LLC, and this description is grounded in that evidence.
Raremark firmographics
Firmographics- Name
- Raremark
- Legal name
- Health Union, LLC
- Website
- https://raremark.com
- Company type
- Private
- Founded year
- 2015
- Operating status
- Operating
- Short description
- RareDisease.net is a web-based patient community and health information platform serving rare disease patients and caregivers, offering a database of 5,000+ conditions, peer forums, patient stories, and curated health resources under Health Union, LLC.
- Ownership category
- akta.pro rank
Raremark industry classification
Industry- Product category
- Online Health Community
- NAICS
- Individual and Family Services (6241), Other Individual and Family Services (624190), Social Assistance (624)
- SIC
- Services-Health Services (8000), Services-Social Services (8300)
- akta.pro primary industry
- Rare Disease & Special Needs Support Organizations (BPAGACAM)
- akta.pro secondary industries
- Patient Registries & Chronic Disease Registry Analytics (HLACAHAH), Disease Registries (Cancer, Immunization, Rare Disease, etc.) (HLAJAJAE)
Keywords
Where Raremark is headquartered
LocationHeadquarters
- HQ city
- London
- HQ country
- United Kingdom
- HQ region
- Europe
Markets served
Raremark business model
Business model- GTM type
- B2C
- Offering type
- Digital Commerce or Content
- Cost components
- Personnel, Technology or R&D, Marketing or Sales, Operations
Revenue model
- Advertising and Sponsorship: The platform generates revenue through targeted advertising and sponsored content partnerships with healthcare and pharmaceutical companies seeking to reach rare disease patient audiences.
Go-to-market motion1 record
Distribution channels1 record
Marketing channels5 records
Raremark product offering
Product offeringCore offering
Raremark operates RareDisease.net, a free online health community and information platform serving rare disease patients, caregivers, and families. The platform combines a searchable database of more than 5,000 rare diseases with editorial health articles, peer community forums, patient-authored stories, and curated topic collections covering diagnosis, treatment, daily living, mental health, caregiving, and clinical trial navigation. Revenue is generated through targeted advertising and sponsored content partnerships with healthcare and pharmaceutical companies seeking access to rare disease audiences.
Product overview
RareDisease.net is a single, unified online health community platform that serves patients, caregivers, and families affected by rare diseases. The core product combines health information, peer community forums, and a condition database. The platform is operated by Health Union, a company that maintains a network of condition-specific online health communities.
Differentiator
Problem solved
Functional benefit
Products and services
- RareDisease.net A free online health community and information platform for rare disease patients, caregivers, and families. Provides a searchable database of more than 5,000 rare diseases, editorial health articles on diagnosis, treatment, daily living, mental health, caregiving and clinical trials, peer discussion forums, first-person patient stories, curated topic collections, and a community poll for clinical trial barriers. Users access the platform directly through the public website without any sales interaction.
Companies that use Raremark
Customer profileSegments2 records
Ideal customer profiles2 records
Raremark technology and API
TechnologyTechnology focussed Yes
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature4 records
Raremark partnerships and signals
Strategic signalPartnerships
One partnership is on record.
- Health UnioncoreRare Disease.net is a Health Union community, operating as part of Health Union's portfolio of condition-specific online health communities. Health Union reaches millions of people through its Social Health Network and has developed over 70 condition-specific communities across virtually all health conditions. Rare Disease.net benefits from Health Union's infrastructure, editorial resources, and cross-community promotional opportunities.
Scale indicators2 records
Recent moves3 records
Expansion highlights4 records
Raremark competitors and assessment
Company assessmentDirect peers
- WEGO Health: Network connecting patient leaders across conditions, including rare diseases, monetized through pharma insights and influencer programs. Operates within a category that overlaps Health Union and WEGO Health's adjacent patient-leader business.
- MyHealthTeams: Operates condition-specific social networks for people with chronic health conditions, monetizing through pharma sponsorship and advertising. Closely matches RareDisease.net's model of free, ad-supported rare/chronic-condition communities combined with editorial content.
- Inspire: Online patient community platform connecting patients and caregivers across thousands of conditions, with pharma and biotech sponsorship as a core revenue stream. Directly comparable in audience and monetization model to RareDisease.net.
- Belong.life: Mobile patient community and care-management platform supporting cancer and other conditions including rare diseases, monetizing through pharma partnerships. Overlaps with RareDisease.net's patient community and sponsor-supported model.
- PatientsLikeMe: Patient network that combines disease communities, shared health data, and patient-reported outcomes, with a heavy focus on rare conditions. Comparable as a peer community and condition-data platform serving pharma and research partners.
Emerging players
- Orphanet: European rare disease knowledge base offering a comprehensive inventory of rare diseases and expert resources. Closely comparable to RareDisease.net's 5,000+ rare disease database, though supported publicly rather than through advertising.
- National Organization for Rare Disorders (NORD): US rare disease umbrella nonprofit providing patient education, advocacy, and community resources. Overlaps with RareDisease.net's mission of rare-disease information and support, though operates in nonprofit model.
- Smart Patients: Online community for patients and caregivers to share learnings about cancer and rare diseases. Directly comparable as a small, niche patient community platform with sponsor-friendly engagement.
Broad incumbents
- Healthline Media: Major consumer health information publisher with extensive condition content. Comparable as a broad incumbent in health content and condition SEO, but does not focus on rare disease peer communities.
- WebMD: Largest US consumer health information and advertising platform. Competes for the same pharma advertising and sponsorship dollars as RareDisease.net but covers all conditions rather than specializing in rare diseases.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights6 records
Customer concentration
Raremark social profiles
Digital presenceRaremark financial estimates
Financial estimateRevenue estimate
Valuation estimate
Raremark leadership team
Management profileNumber of profiles
Raremark funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Raremark M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Raremark
What does Raremark do?
Raremark operates RareDisease.net, a free online health community and information platform serving rare disease patients, caregivers, and families. The platform combines a searchable database of more than 5,000 rare diseases with editorial health articles, peer community forums, patient-authored stories, and curated topic collections covering diagnosis, treatment, daily living, mental health, caregiving, and clinical trial navigation. Revenue is generated through targeted advertising and sponsored content partnerships with healthcare and pharmaceutical companies seeking access to rare disease audiences.
Is Raremark a public or private company?
Raremark is a private company. It is classified as corporate owned and is currently operating.
When was Raremark founded?
Raremark was founded in 2015.
Where is Raremark based?
Raremark is headquartered in London, United Kingdom, in the Europe region.
How does Raremark make money?
One revenue line is on record: advertising and Sponsorship.
Who are Raremark's main competitors?
Direct peers on record are WEGO Health, MyHealthTeams, Inspire, Belong.life and PatientsLikeMe. Emerging players are Orphanet, National Organization for Rare Disorders (NORD) and Smart Patients. Broad incumbents are Healthline Media and WebMD.
Does Raremark have an API?
No public API is recorded for Raremark.
What industry is Raremark in?
Raremark's product category is Online Health Community. Its primary akta.pro industry code is BPAGACAM, Rare Disease & Special Needs Support Organizations, with a secondary code of HLACAHAH, Patient Registries & Chronic Disease Registry Analytics. Its NAICS code is 6241 and its SIC code is 8000.