Crohn & Colitis NL
Crohn & Colitis NL is a Dutch non-profit patient association, founded 1979, serving people with Crohn's disease, ulcerative colitis, microscopic colitis, and short bowel syndrome through information, peer support, advocacy, and a €38.75/year membership model.
- Company typePrivate
- Founded1979
- HeadquartersWoerden, Netherlands
- Headcount11–50
- GTM typeB2C
- OfferingServices
What Crohn & Colitis NL does
Crohn & Colitis NL is a Dutch non-profit patient association (patiëntenvereniging), founded in 1979 and headquartered in Woerden, that serves people with inflammatory bowel disease (IBD) — specifically Crohn's disease, ulcerative colitis, microscopic colitis, and short bowel syndrome / intestinal failure — together with their families and caregivers, plus the healthcare professionals who treat them. Its core offerings are information, peer support, and advocacy rather than commercial technology products: the quarterly Crohniek magazine (with five demographic-specific editions: Kids, Tieners, Jong, Plus, and Short bowel), the 'Open je blik' awareness question card game, the Spreekbeurtpakket school-presentation kit, the Ervaringsdeskundigenlijn peer-support hotline, an interactive lifestyle-and-IBD video resource, a toilet pass for members, and a portfolio of closed Facebook communities and youth-focused channels across Instagram, TikTok, WhatsApp, and YouTube. There is no proprietary technology platform; digital delivery relies on a third-party-developed website and standard social platforms.
The organization is funded through three primary streams: (1) recurring annual membership dues of €38.75, which bundle the magazine, newsletter, member events, toilet pass, and collective health-insurance discounts; (2) donations including one-off gifts, periodic giving (periodiek schenken), legacy bequests, and an online collection-box feature; and (3) sponsorship and grants, principally from the MDL Fonds and a roster of pharmaceutical manufacturers (Abbvie, Alfasigma, Celltrion, Dr Falk, Johnson & Johnson, Lilly, Teva) that fund events such as Wereld IBD Dag. Distribution reaches patients directly via the website and phone/email support, and indirectly via partnerships with 22 gastroenterology clinics nationwide. Strategic activity in 2026 centers on advocacy for nationwide rollout of a remote digital coaching program ('Coaching op Afstand'), for which an independent VitaValley SROI analysis claims €3.40 of societal value per euro invested — positioning the organization to lobby health insurers and policymakers for reimbursement.
Crohn & Colitis NL firmographics
Firmographics- Name
- Crohn & Colitis NL
- Legal name
- Crohn & Colitis NL
- Website
- https://crohn-colitis.nl
- Company type
- Private
- Founded year
- 1979
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- Crohn & Colitis NL is a Dutch non-profit patient association, founded 1979, serving people with Crohn's disease, ulcerative colitis, microscopic colitis, and short bowel syndrome through information, peer support, advocacy, and a €38.75/year membership model.
- Ownership category
- akta.pro rank
Crohn & Colitis NL industry classification
Industry- Product category
- Patient Advocacy and Chronic Disease Support Services
- NAICS
- Other Individual and Family Services (624190), Other Individual and Family Services (62419)
- SIC
- Services-Membership Organizations (8600)
- akta.pro primary industry
- Inflammatory Bowel Disease (IBD) Care (HLAKAEAD)
- akta.pro secondary industry
- General Gastroenterology (HLAKAEAA)
Keywords
Where Crohn & Colitis NL is headquartered
LocationHeadquarters
- HQ city
- Woerden
- HQ country
- Netherlands
- HQ region
- Europe
Offices1 record
Markets served
Crohn & Colitis NL business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others, Technology or R&D
Revenue model
- Membership fees: Annual membership fee of €38.75 providing access to quarterly magazine Crohniek, monthly newsletter, free activities, toilet pass, and member benefits.
- Donations and fundraising: Accepts one-time donations, periodic giving (periodiek schenken), and legacy bequests. Online collection box available for fundraising.
- Sponsorship and grants: Activities such as Wereld IBD Dag are made possible with support from pharmaceutical companies including Abbvie, Alfasigma, Celltrion, Dr Falk, Johnson & Johnson, Lilly, and Teva. Also supported by MDL Fonds.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Standard annual membership |
| One time/ perpetual license | Pay-as-you-go | Open je blik - card game |
| Unit Pricing | Pay-as-you-go | Spreekbeurtpakket Kids |
Go-to-market motion1 record
Distribution channels6 records
Marketing channels10 records
Crohn & Colitis NL product offering
Product offeringCore offering
Crohn & Colitis NL is a Dutch non-profit patient organization that supports people with Inflammatory Bowel Disease (IBD) through membership-based services. It provides reliable medical information, peer support via the Ervaringsdeskundigenlijn hotline and closed Facebook communities, the quarterly Crohniek magazine (with special editions for Kids, Teens, Young, Plus, and Short bowel audiences), awareness tools such as the 'Open je blik' card game and Spreekbeurtpakket, and advocates for patient interests with healthcare providers and policymakers.
Product overview
Crohn & Colitis NL operates as a patient organization rather than a commercial technology product company. The organization's offerings consist of informational and support services including the Crohniek quarterly magazine (with special editions for Kids, Tieners, Jong, Plus, and Short bowel/darmfalen demographics), the 'Open je blik' educational question card game for IBD awareness, the Spreekbeurtpakket presentation kit for children, an interactive lifestyle video on IBD, the Ervaringsdeskundigenlijn peer support hotline, and social media communities including closed Facebook support groups. These services are primarily funded through membership fees (€38.75/year) and donations, supported by the MDL Fonds.
Differentiator
Problem solved
Functional benefit
Brands
- Crohniek: Quarterly magazine for members of Crohn & Colitis NL
- CC-panel
- Ervaringsdeskundigenlijn
Products and services
- Annual Membership (Word lid) Annual subscription membership of Crohn & Colitis NL at €38.75 per year, providing members with the quarterly Crohniek magazine, monthly newsletter, free local activities, the Toiletpas, member discounts on collective health insurance, and access to member-only communities. Targeted at people with IBD and their families in the Netherlands.
- Open je blik (Question Card Game)
Quantifiable outcome
- €3.40 return per euro invested in Coaching op Afstand remote coaching program
Companies that use Crohn & Colitis NL
Customer profileNamed customers6 records
Segments5 records
Ideal customer profiles3 records
Crohn & Colitis NL technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Crohn & Colitis NL partnerships and signals
Strategic signalPartnerships
Seven partnerships are on record, tiered minor and core.
- VitaValleyminorVitaValley conducted an independent SROI (Social Return on Investment) analysis of the Coaching op Afstand program, showing €3.40 return per euro invested.
- Abbvie, Alfasigma, Celltrion, Dr Falk, Johnson & Johnson, Lilly, TevaminorPharmaceutical companies that sponsor the Wereld IBD Dag 2026 activities organized by Crohn & Colitis NL. These companies produce medications for IBD treatment.
- MDL Fonds (MDL Fund)coreMDL Fonds provides financial support for Crohn & Colitis NL's website and activities. Mariël Croon, director of MDL Fonds, advocates for improved IBD care including initiatives like Coaching op Afstand.
- UMC Utrecht & Wilhelmina Kinderziekenhuis FoundationcoreCrohn & Colitis NL supports the Twin Study (Tweelingonderzoek) by MDL-arts Bas Oldenburg of UMC Utrecht. Donations are made to the Foundation which fully funds this IBD research.
- UMCG Groningen, MUMC+ Maastricht, Gelre ziekenhuizen (Apeldoorn and Zutphen)coreThese hospitals jointly developed and successfully implemented 'Coaching op Afstand' (Remote Coaching) for IBD patients. The program involves digital monitoring and coaching via an app.
- Joris AbenminorPhotography credits for the Crohn & Colitis NL website.
- Maartje KunenminorIllustration credits for the Crohn & Colitis NL website.
Scale indicators7 records
Recent moves6 records
Expansion highlights6 records
Crohn & Colitis NL competitors and assessment
Company assessmentRegional players
- Longfonds (Dutch Lung Foundation): Major Dutch health charity with comparable ANBI structure, magazine-style member communications, sponsored awareness events, and chronic-disease patient support services — a direct Dutch-sector analogue for operating model.
- ReumaNederland: Dutch patient organization for rheumatism with a similar ANBI membership, donation, and pharma-partnership model. Provides a domestic benchmark for fundraising scale and member engagement within the Netherlands.
- Nierstichting (Dutch Kidney Foundation): Dutch national health charity funding research and patient programs for kidney disease. Comparable ANBI structure and emphasis on research co-funding with academic hospitals, similar to Crohn & Colitis NL's Twin Study support.
- Stichting Patienten Vereniging Nederland (LSB): Dutch patient-association representative body that supports smaller patient organizations with shared services, lobbying, and collective health-insurance discounts — directly relevant to Crohn & Colitis NL's operational and advocacy ecosystem.
- Diabetesvereniging Nederland: Dutch patient organization for diabetes with a comparable membership-fee, magazine, peer-support hotline, and chronic-disease patient-advocacy structure. Useful comparator for member-acquisition economics in the Dutch market.
- Hartstichting (Dutch Heart Foundation): Dutch national health charity with similar fundraising mechanics (donations, periodic giving, legacy bequests, lottery) and an emphasis on awareness campaigns — benchmark for Dutch charity fundraising scale and SROI storytelling.
Direct peers
- European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA): Umbrella federation of European national IBD patient associations, including Crohn & Colitis NL as a member. Shares the IBD patient-organization mission and provides European-level advocacy and research collaboration relevant to a Dutch member.
- Crohn's & Colitis Foundation (US): Largest US nonprofit dedicated to Crohn's disease and ulcerative colitis, combining patient education, peer support, advocacy, and funded research. Highly comparable mission and revenue mix (memberships, donations, pharma sponsorship).
- Crohn's & Colitis UK: UK national patient organization for Crohn's and colitis with the same IBD-specific mission, membership model, and information/support/advocacy portfolio as Crohn & Colitis NL. The closest functional analogue in another English-speaking market.
- MDL Fonds (Maag-Darm-Lever Fonds): Dutch gastrointestinal research and patient-care fund that directly partners with and funds Crohn & Colitis NL. Closely aligned mission on IBD/MDL disease in the same geography with overlapping sponsor relationships.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat5 records
Key risks6 records
Key highlights7 records
Customer concentration
Crohn & Colitis NL social profiles
Digital presenceCrohn & Colitis NL compliance and trust
Trust signalCompliance1 record
Crohn & Colitis NL financial estimates
Financial estimateRevenue estimate
Valuation estimate
Crohn & Colitis NL leadership team
Management profileNumber of profiles
Profiles1 record
Crohn & Colitis NL funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Crohn & Colitis NL M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Crohn & Colitis NL
What does Crohn & Colitis NL do?
Crohn & Colitis NL is a Dutch non-profit patient organization that supports people with Inflammatory Bowel Disease (IBD) through membership-based services. It provides reliable medical information, peer support via the Ervaringsdeskundigenlijn hotline and closed Facebook communities, the quarterly Crohniek magazine (with special editions for Kids, Teens, Young, Plus, and Short bowel audiences), awareness tools such as the 'Open je blik' card game and Spreekbeurtpakket, and advocates for patient interests with healthcare providers and policymakers.
Is Crohn & Colitis NL a public or private company?
Crohn & Colitis NL is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Crohn & Colitis NL founded?
Crohn & Colitis NL was founded in 1979. It employs 11 to 50 people.
Where is Crohn & Colitis NL based?
Crohn & Colitis NL is headquartered in Woerden, Netherlands, in the Europe region.
How does Crohn & Colitis NL make money?
Three revenue lines are on record. Membership fees are the primary driver. The others are donations and fundraising and sponsorship and grants.
Who are Crohn & Colitis NL's main competitors?
Regional players on record are Longfonds (Dutch Lung Foundation), ReumaNederland, Nierstichting (Dutch Kidney Foundation), Stichting Patienten Vereniging Nederland (LSB), Diabetesvereniging Nederland and Hartstichting (Dutch Heart Foundation). Direct peers are European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA), Crohn's & Colitis Foundation (US), Crohn's & Colitis UK and MDL Fonds (Maag-Darm-Lever Fonds).
Does Crohn & Colitis NL have an API?
No public API is recorded for Crohn & Colitis NL.
What industry is Crohn & Colitis NL in?
Crohn & Colitis NL's product category is Patient Advocacy and Chronic Disease Support Services. Its primary akta.pro industry code is HLAKAEAD, Inflammatory Bowel Disease (IBD) Care, with a secondary code of HLAKAEAA, General Gastroenterology. Its NAICS code is 624190 and its SIC code is 8600.