Epilepsiforeningen
Epilepsiforeningen is a Danish non-profit patient association founded in 1966, serving people with epilepsy and their families across Denmark through professional counseling, information, advocacy, local chapters, and research grants via a 99 kr annual membership model.
- Company typePrivate
- Founded1966
- HeadquartersOdense, Denmark
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Epilepsiforeningen does
Epilepsiforeningen is a Danish non-profit patient association (forening) founded in 1966, headquartered in Odense, Denmark, and serving as the national advocacy body for people with epilepsy and their families across Denmark. The organization's functional purpose is to provide information, counseling, advocacy, and community support to a population affected by a chronic neurological condition. It is member-governed through a main board (hovedbestyrelsen) and executive committee (forretningsudvalget), with an executive director and a chairman (landsformand) currently held by Per Olesen and Lone Nørager Kristensen, respectively.
Its core product portfolio centers on a low-cost annual membership (99 kr/year) that unlocks access to professional counseling delivered by in-house nurses and social workers, a member magazine ("Bladet"), courses, networking activities, and a self-service online portal ("Min side"). Supplementary offerings include free informational brochures and PDF materials, a podcast ("Epilepsi Podcasten"), online webinars ("Onlineoplæg"), e-learning courses, holiday accommodations (summer house in Lalandia and camping facilities), a research and treatment-copayment grant program ("Epilepsiforeningens Legat"), specialized sub-networks (Dravet Danmark, Ungdomssiden, Epilepsinettværket), eleven regional local chapters, seizure-alarm support, and a citizen-controlled personal assistance (BPA) program under Danish Service Law §95 and §96. The underlying technology stack is a content-driven website with self-service member portal capabilities; no proprietary software, AI/ML systems, or APIs are described.
Revenue mechanics are characteristic of a membership non-profit: the bulk of operating funding comes from membership fees, donations, telemarketing-based fundraising campaigns, and public/grant funding (notably Trygfonden). The organization sells merchandise through a dedicated partner site and accepts one-off donations through an online fundraising portal. Its quantitative scale signal is delivering more than 1,000 professional counseling sessions per year involving its social worker and nurse. There are no disclosed revenue figures, no funding rounds, and no commercial customers.
Epilepsiforeningen firmographics
Firmographics- Name
- Epilepsiforeningen
- Legal name
- Epilepsiforeningen
- Website
- https://epilepsiforeningen.dk
- Company type
- Private
- Founded year
- 1966
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Epilepsiforeningen is a Danish non-profit patient association founded in 1966, serving people with epilepsy and their families across Denmark through professional counseling, information, advocacy, local chapters, and research grants via a 99 kr annual membership model.
- Ownership category
- akta.pro rank
Epilepsiforeningen industry classification
Industry- Product category
- Patient Advocacy Services
- NAICS
- Voluntary Health Organizations (813212), Other Individual and Family Services (624190)
- SIC
- Services-Membership Organizations (8600), Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Epilepsy & Seizure Disorders (HLAKAIAB)
Keywords
Where Epilepsiforeningen is headquartered
LocationHeadquarters
- HQ city
- Odense
- HQ country
- Denmark
- HQ region
- Europe
Offices1 record
Markets served
Epilepsiforeningen business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Annual membership with access to counseling, magazine, courses, and networking |
Distribution channels3 records
Marketing channels6 records
Epilepsiforeningen product offering
Product offeringCore offering
Epilepsiforeningen is a Danish patient advocacy association that sells annual memberships (99 kr/year) granting access to professional counseling from specialized nurses and social workers, an epilepsy information library (brochures, online materials, videos, PDF resources), the member magazine 'Bladet', e-learning courses, online presentations, a podcast, a self-service member portal, and a nationwide network of local chapters. Additional member benefits include holiday accommodations (summer house at Lalandia and caravan), grants for research and psychological treatment co-payments, BPA (citizen-controlled personal assistance) coordination, and seizure alarm devices.
Product overview
Epilepsiforeningen operates as a Danish patient advocacy organization offering a unified membership-based service portfolio. The core offering includes professional counseling services (nursing and social work), access to informational materials, and an e-learning platform. Supplementary offerings include an epilepsy podcast, online presentations, a self-service portal, local chapter networks across Denmark, holiday accommodations, grant programs for research and psychological treatment, and various support services including BPA assistance and seizure alarms. Membership at 99 kr annually provides access to these services and supports the organization's advocacy and research funding mission.
Differentiator
Problem solved
Functional benefit
Brands
- Dravet Danmark: Specialized network/division within Epilepsiforeningen focused on Dravet syndrome support and advocacy.
- Ungdomssiden
- Epilepsinetværket
Products and services
- Medlemskab (Membership)
Quantifiable outcome
- More than 1,000 counseling sessions per year involving the organization's social worker and nurse
Companies that use Epilepsiforeningen
Customer profileSegments3 records
Ideal customer profiles2 records
Epilepsiforeningen technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Epilepsiforeningen partnerships and signals
Strategic signalPartnerships
Five partnerships are on record, tiered minor.
- IncitaminorYouth support project in collaboration with Trygfonden and Epilepsiforeningen, providing psychological support for young people with epilepsy aged 18-25.
- Aurora Nordic CannabisminorJoint venture with Canadian company Aurora producing medical cannabis. Epilepsiforeningen visited the facility to learn about cannabis production and discuss treatment possibilities for epilepsy patients.
- All Ears TelemarketingminorSocial enterprise conducting telephone fundraising campaigns for the association. They contact members to ask for additional financial support beyond membership fees.
- TrygfondenminorFoundation providing funding for the Incita youth support project for young people with epilepsy.
- Martin Vinther Madsen / Tellerup ForlagminorAuthor and publisher of the book 'Anfald og tryllestøv' about siblings of children with epilepsy, supported by Epilepsiforeningen.
Recent moves6 records
Expansion highlights5 records
Epilepsiforeningen competitors and assessment
Company assessmentDirect peers
- Epilepsy Foundation: Major U.S.-based epilepsy patient advocacy organization offering counseling, education, research funding, and community programs — the closest international analogue to Epilepsiforeningen.
- Scleroseforeningen: Danish multiple sclerosis patient association offering counseling, research funding, local branches, and member services — structurally identical to Epilepsiforeningen but focused on MS.
- Muskelsvindfonden: Danish neuromuscular disease foundation combining patient support, research funding, and fundraising — directly comparable as a Danish chronic neurological condition charity.
- Epilepsy Action: British epilepsy charity offering helpline counseling, information, local groups, and advocacy — a strong functional peer with similar membership and service model.
- SUDEP Action: UK-based charity focused specifically on Sudden Unexpected Death in Epilepsy, providing support, research, and advocacy — a niche sub-condition peer within the epilepsy advocacy space.
- Epilepsy Society: UK-based epilepsy charity providing information, research, residential care, and support services; directly comparable as a national epilepsy patient organization with counseling and advocacy.
- Hjernesagen: Danish brain injury and aphasia association providing counseling, local networks, and advocacy; comparable as a Danish neurology-focused patient organization with similar service portfolio.
- Hjerteforeningen: Danish Heart Association — a large national Danish patient charity offering counseling, research grants, and member services; a scaled-up peer in the same Danish health-association ecosystem.
- Epilepsiforeningen: The anchor company itself — a Danish patient association providing counseling, advocacy, and information for people with epilepsy and their families.
Broad incumbents
- Danske Patienter: Danish umbrella organization representing patient and disability associations at the national policy level — an incumbent advocacy peer that Epilepsiforeningen engages with as a member.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks6 records
Key highlights7 records
Customer concentration
Epilepsiforeningen social profiles
Digital presenceEpilepsiforeningen financial estimates
Financial estimateRevenue estimate
Valuation estimate
Epilepsiforeningen leadership team
Management profileNumber of profiles
Profiles2 records
Epilepsiforeningen funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Epilepsiforeningen M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Epilepsiforeningen
What does Epilepsiforeningen do?
Epilepsiforeningen is a Danish patient advocacy association that sells annual memberships (99 kr/year) granting access to professional counseling from specialized nurses and social workers, an epilepsy information library (brochures, online materials, videos, PDF resources), the member magazine 'Bladet', e-learning courses, online presentations, a podcast, a self-service member portal, and a nationwide network of local chapters. Additional member benefits include holiday accommodations (summer house at Lalandia and caravan), grants for research and psychological treatment co-payments, BPA (citizen-controlled personal assistance) coordination, and seizure alarm devices.
Is Epilepsiforeningen a public or private company?
Epilepsiforeningen is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Epilepsiforeningen founded?
Epilepsiforeningen was founded in 1966. It employs 1 to 10 people.
Where is Epilepsiforeningen based?
Epilepsiforeningen is headquartered in Odense, Denmark, in the Europe region.
Who are Epilepsiforeningen's main competitors?
Direct peers on record are Epilepsy Foundation, Scleroseforeningen, Muskelsvindfonden, Epilepsy Action, SUDEP Action, Epilepsy Society, Hjernesagen, Hjerteforeningen and Epilepsiforeningen. Danske Patienter is listed as a broad incumbent.
Does Epilepsiforeningen have an API?
No public API is recorded for Epilepsiforeningen.
What industry is Epilepsiforeningen in?
Epilepsiforeningen's product category is Patient Advocacy Services. Its primary akta.pro industry code is HLAKAIAB, Epilepsy & Seizure Disorders. Its NAICS code is 813212 and its SIC code is 8600.