Polskie Towarzystwo Walki z Mukowiscydozą

What Polskie Towarzystwo Walki z Mukowiscydozą does

Polskie Towarzystwo Walki z Mukowiscydozą (PTWM) is Poland's largest and longest-operating cystic fibrosis (CF) patient organization, founded in 1987 and headquartered in Rabka-Zdrój with a secondary office in Dziekanów Leśny near Warsaw. The organization serves approximately 1,700 registered beneficiaries out of an estimated 1,800 CF patients in Poland, delivering free services that include structured rehabilitation programs, free lending of medical and respiratory equipment (spirometers, oxygen concentrators, Simeox devices, nasal irrigation kits), personal financial subaccounts, psychological, legal, and dietary counseling via a national hotline, and educational content through the InfoMuko knowledge platform and the quarterly "Mukowiscydoza" journal published since 1993. Operations are coordinated through a national network of 100+ physiotherapists, psychologists, and dietitians delivering home rehabilitation.

PTWM is registered as a stowarzyszenie (association) with Organizacja Pożytku Publicznego (OPP) status since 2004 under KRS 0000064892. Its revenue model is entirely philanthropic, with no commercial pricing. The largest single revenue line is Poland's 1.5% personal income tax designation program, which yielded 7,599,155.10 PLN in 2024. Sustained government grants from PFRON fund multi-year rehabilitation programs, with individual grants such as Complex Rehabilitation X at 1,496,883.02 PLN. Supplementary income includes 100 PLN annual membership fees, individual donations via Autopay/FaniPay and TPAY.COM, corporate sponsorships (Rabkoland, LPP Foundation, Santander, Mattel, PARI, Dr Irena Eris, Bahlsen), and proceeds from the annual Bieg po Oddech charity run (11th edition) and the Mikołajki gift program (785 packages in 2024, 840 planned for 2025).

The organization employs approximately 11–16 paid staff alongside a volunteer board currently led by President Paweł Smoliński, and maintains strategic partnerships with CF Europe (39+ country federation), Polskie Towarzystwo Mukowiscydozy (physician society), the Council of Patient Organizations at the Patient Rights Ombudsman, and two co-located CF treatment centers. Technical infrastructure is limited to public-facing websites (ptwm.org.pl, infomuko.ptwm.org.pl, subkonto.ptwm.org.pl), online donation portals integrated with Polish payment processors, and Matomo analytics — no proprietary technology or software products are developed.

Name

Polskie Towarzystwo Walki z Mukowiscydozą

Legal name

Polskie Towarzystwo Walki z Mukowiscydozą

Website

https://ptwm.org.pl

Company type

Private

Founded year

1987

Operating status

Operating

Headcount range

11–50 employees

Short description

Polskie Towarzystwo Walki z Mukowiscydozą is Poland's largest and longest-operating cystic fibrosis patient organization, founded in 1987, serving 1,700+ beneficiaries through free rehabilitation, equipment lending, financial assistance, and advocacy, funded primarily by 1.5% tax donations and government grants.

Ownership category

akta.pro rank

Product category

Patient Advocacy & Support Services

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro industry

PRIMARYBPAGACAM

Rare Disease & Special Needs Support Organizations

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

Keywords

• Cystic fibrosis patient support
• Patient advocacy organization
• Nonprofit healthcare association
• Medical equipment lending
• Rehabilitation programs

Headquarters

HQ city

Rabka-Zdrój

HQ country

Poland

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Supply Chain, Technology or R&D, Infrastructure

Revenue model

1. Member Dues: Annual membership fees from ordinary, supporting, and honorary members. Fee: 100 PLN per year (payable by end of Q2). Members include CF patients, their families, and supporters of the cause.
2. Individual Donations: One-time and recurring financial donations from individuals via online payment processors (FaniPay, TPAY.COM) and bank transfer. Options include one-time (20/50/100 PLN, custom) and monthly recurring. Also accepts EUR bank transfers (PKO BP IBAN PL84 1020 3466 0000 9802 0007 0128).
3. 1.5% Tax Donations (Odpis Podatku): As a Public Benefit Organization (OPP, status since 2004), PTWM receives 1.5% personal income tax donations. KRS: 0000064892. Supported by PITax.pl online filing tool. In 2024, this stream yielded 7,599,155.10 PLN.
4. Government Grants (PFRON): Sustained grant funding from PFRON for rehabilitation, sports, publication, and training projects. Beneficiary for 12+ years. Representative grants: Complex Rehabilitation IX (1,620,990 PLN), Sports Rehabilitation III (3,057,750 PLN), Magazine Mukowiscydoza (256,592.68 PLN). Multi-year agreements in place.
5. Corporate Sponsorships and Partnerships: Corporate partners provide financial and in-kind support for PTWM programs, especially the annual Mikołajki gift program. Sponsors include Rabkoland, Fundacja LPP, Santander Consumer Bank, Express Car Rental, Mattel, Medicom, Pari, Norsa Pharma, Gourmet Foods, Dr Irena Eris, The Bahlsen Family, Medical Innovation, and Badania Kliniczne po Ludzku.
6. Public Fundraising Campaigns: Annual public fundraising including the Bieg po Oddech charity run (Zakopane, 11th edition) and Mikołajki gift drive (785 packages in 2024, 840 planned for 2025). Funds support medicines, rehabilitation equipment, and beneficiary services.

Pricing tiers

Go-to-market motion3 records

Distribution channels7 records

Marketing channels9 records

Core offering

Polskie Towarzystwo Walki z Mukowiscydozą (PTWM) is a Polish patient association that provides free, comprehensive support services to individuals with cystic fibrosis and their families, including a free national helpline, lending of rehabilitation and medical equipment, beneficiary sub-accounts for fundraising and reimbursement, home rehabilitation delivered by 100+ specialists, psychological and dietary counseling, the InfoMuko online knowledge base, the quarterly "Mukowiscydoza" journal, and guidebooks. The association also runs PFRON-funded rehabilitation projects and awareness/fundraising events such as the annual Bieg po Oddech charity run and Mikołajki gift program, collectively serving more than 1,700 beneficiaries across Poland.

Product overview

Polskie Towarzystwo Walki z Mukowiscydozą operates as a comprehensive patient support ecosystem rather than a single product. Its core digital offering consists of InfoMuko, an online knowledge base covering medical, psychological, genetic, physiotherapy, and dietary topics about cystic fibrosis, complemented by the quarterly Czasopismo Mukowiscydoza magazine and a series of guidebooks and publications (Poradniki). The organization delivers direct patient services through subkonta (beneficiary financial sub-accounts), a free equipment lending program (Wypożyczalnia Sprzętu Rehabilitacyjnego), and a helpline staffed by specialists. Its portfolio of PFRON-funded rehabilitation projects (Kompleksowa rehabilitacja and Sportowa rehabilitacja, spanning editions I through X) provides structured physiotherapy, psychological, and nutritional support. Fundraising and community engagement are driven by the annual Bieg po Oddech charity run and the Mikołajki dla Mukoludków Christmas gift program. All offerings collectively serve over 1,700 beneficiaries across Poland.

Differentiator

Problem solved

Functional benefit

Brands

• InfoMuko: Knowledge base about cystic fibrosis providing medical information, psychological advice, genetic updates, and physiotherapy and dietetics guidance.
• Bieg po Oddech
• Mikołajki dla Mukoludków
• Czasopismo Mukowiscydoza

Products and services

• InfoMuko – Baza Wiedzy o Mukowiscydozie An online knowledge portal providing medical information, psychological advice, genetic insights, physiotherapy guidance, and dietary tips for cystic fibrosis patients, their families, and medical professionals.
• Czasopismo Mukowiscydoza (Quarterly Magazine) A quarterly print and digital magazine covering cystic fibrosis medical, rehabilitation, and lifestyle topics, directed at patients, families, and healthcare professionals; over 73 issues published since 1993.
• Poradniki (Guidebooks) A collection of educational guidebooks covering cystic fibrosis diagnosis, daily management, nutrition, and life with the disease, distributed to patients and families.
• Subkonta (Beneficiary Sub-accounts) Dedicated financial sub-accounts enabling beneficiaries to accumulate funds from tax-deductible 1.5% donations and personal fundraising, used to cover treatment, rehabilitation, medications, and medical equipment.
• Wypożyczalnia Sprzętu Rehabilitacyjnego (Equipment Lending) Free lending service providing CF patients with rehabilitation and medical devices including spirometers, pulse oximeters, stationary and portable oxygen concentrators, nasal irrigation kits, and Simeox devices for autogenic drainage.
• PFRON-Funded Rehabilitation Projects (Kompleksowa i Sportowa rehabilitacja) A series of comprehensive rehabilitation projects funded by PFRON providing physiotherapy, psychological support, and nutritional training to cystic fibrosis patients across Poland.
• Infolinia (Free Helpline) A free telephone helpline staffed by PTWM experts offering psychological, legal, dietary, and rehabilitation counseling for cystic fibrosis patients and their families nationwide.
• Bieg po Oddech (Charity Run) An annual charitable running event held in Zakopane that promotes physical activity as a component of CF physiotherapy while raising funds for patient rehabilitation, equipment, and medication.
• Mikołajki dla Mukoludków (Christmas Gift Program) An annual pre-Christmas charitable initiative delivering gift packages to cystic fibrosis patients, particularly children, funded through donations from corporate sponsors and individuals.
• PARI na dobry początek z mukowiscydozą (Early CF Support Program) A dedicated early-intervention program for newly diagnosed cystic fibrosis patients and their families, providing resources and guidance from the moment of diagnosis.

Named customers2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Partnerships

18 partnerships are on record, tiered core and minor.

• CF Europe (Cystic Fibrosis Europe)coreStrategic or Co-development PartnerPTWM is a member of and actively participates in the work of Cystic Fibrosis Europe, a federation of national and regional CF patient organizations. CF Europe brings together members from 39+ countries across Europe. Membership provides PTWM with international best practices, advocacy support, and connections to the broader European CF community.
• Polskie Towarzystwo Mukowiscydozy (Polish Cystic Fibrosis Society)coreStrategic or Co-development PartnerPTWM collaborates with Polskie Towarzystwo Mukowiscydozy (Polish CF Society), a scientific society of physicians and medical professionals specializing in CF. Together they advocate with NFZ and the Ministry of Health for improved CF treatment conditions and quality standards. PTWM is a member and active participant.
• Rada Organizacji Pacjentów przy Rzeczniku Praw Pacjenta (Council of Patient Organizations at the Patient Rights Ombudsman)coreStrategic or Co-development PartnerPTWM is a member of the Council of Patient Organizations at the Patient Rights Ombudsman, participating in policy advocacy and systemic reform efforts on behalf of CF patients within the Polish healthcare system.
• RabkolandminorOthersRabkoland (amusement park) partners with PTWM for the annual Mikołajki gift program, contributing donations and gifts for beneficiaries.
• Fundacja LPPminorOthersThe LPP Foundation (operated by Polish fashion retailer LPP) supports PTWM's Mikołajki gift program as a corporate sponsor, providing donations and in-kind contributions for beneficiaries.
• Santander Consumer BankminorOthersSantander Consumer Bank supports PTWM programs as a corporate sponsor, contributing to the Mikołajki gift program and other PTWM initiatives.
• Express Car RentalminorOthersExpress Car Rental supports PTWM programs as a corporate sponsor for the Mikołajki gift program.
• MattelminorOthersToy manufacturer Mattel supports PTWM's Mikołajki gift program by donating toys for CF patient beneficiaries.
• MedicomminorOthersMedicom provides medical equipment and/or product donations supporting PTWM's Mikołajki program and broader assistance activities for CF patients.
• PARI Pharma (PARI)minorOthersPARI Pharma, a specialist in inhalation and respiratory devices, supports PTWM programs and the annual Mikołajki gift initiative.
• Norsa PharmaminorOthersNorsa Pharma supports PTWM's activities with pharmaceutical products and/or financial contributions for CF patient beneficiaries.
• Gourmet FoodsminorOthersGourmet Foods contributes food products to PTWM's Mikołajki gift packages for CF patient beneficiaries.
• Dr Irena ErisminorOthersPolish cosmetics brand Dr Irena Eris supports PTWM's Mikołajki gift program as a corporate sponsor.
• The Bahlsen FamilyminorOthersThe Bahlsen Family (of Bahlsen biscuit company) supports PTWM programs as a corporate sponsor.
• Medical InnovationminorOthersMedical Innovation supports PTWM with contributions to patient assistance programs.
• Badania Kliniczne po LudzkuminorOthersBadania Kliniczne po Ludzku (Clinical Trials Humanly) collaborates with PTWM on patient education and clinical trial awareness initiatives for the CF community.
• Justyna KowalczykcoreOthersJustyna Kowalczyk, Poland's champion cross-country skier and Olympic gold medalist, serves as a PTWM ambassador. She provides both financial support and public visibility for PTWM's mission, helping the organization raise awareness and funds for CF patients. She has helped fundraise for CF treatment equipment for facilities in Rabka-Zdrój and other CF centers.
• Andrzej BargielcoreOthersAndrzej Bargiel, Polish high-altitude skier, serves as a PTWM ambassador, lending his public profile to raise awareness of cystic fibrosis and support for PTWM's mission.

Scale indicators14 records

Recent moves10 records

Expansion highlights5 records

Others

• Polskie Towarzystwo Mukowiscydozy: Polish scientific/medical society of physicians specializing in CF. Distinct from PTWM (which is the patient organization) but a direct collaborator on advocacy with NFZ and the Ministry of Health, and a comparable organization within the Polish CF ecosystem.
• EURORDIS - Rare Diseases Europe: European umbrella organization for rare disease patient groups, including CF. Adjacent peer in the sense that PTWM operates in the broader rare-disease patient-advocacy space, but EURORDIS does not deliver CF-specific services.
• Fundacja LPP: Polish corporate foundation of the LPP fashion retailer and current PTWM corporate sponsor for the Mikołajki gift program. Not a CF peer but a corporate-philanthropy peer whose giving behavior affects PTWM's funding mix.
• CF Europe: European federation of national and regional CF patient organizations across 39+ countries. PTWM is a member. Comparable as the European umbrella body rather than a competing operator; relevant as a peer for international advocacy, knowledge sharing, and benchmarking.

Direct peers

• Mukoviszidose e.V. Germany's primary CF patient organization, providing information, supporting research, and running regional groups. Comparable to PTWM as a national CF advocacy body in a neighboring European market with similar reimbursement and PFRON-analog state-fund dynamics.
• Vaincre la Mucoviscidose: France's leading CF patient organization, funding research, supporting patients and families, and running events like the Virades de l'espoir. Directly comparable to PTWM in mission, fundraising-via-events approach, and national patient-support scope within a European single-payer healthcare system.
• Cystic Fibrosis Foundation: The U.S. Cystic Fibrosis Foundation is the world's largest CF patient-advocacy and research-funding organization, operating the CF Patient Registry, a Care Center Network, and major research funding programs. It is the most directly comparable peer to PTWM in mission, governance as a nonprofit, and integrated service model (grants, advocacy, clinical network support).
• Cystic Fibrosis Canada: Canada's national CF charity funding research and patient programs, with a registry and clinical network. Directly comparable to PTWM as a single-country national CF patient organization with research funding and direct patient services.
• Cystic Fibrosis Trust: The UK's leading CF charity, funding research, providing clinical support, and running helplines, grants, and information services. Closely comparable to PTWM in offering a multi-service portfolio (information, helpline, advocacy, grants) for a national CF population in a single country.
• Cystic Fibrosis Ireland: Ireland's national CF charity supporting patients and funding specialized CF facilities. Comparable to PTWM as a smaller national CF patient org with focus on equipment, facilities, and advocacy within a defined country.

Market position

Strengths1 record

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/polskie-towarzystwo-walki-z-mukowiscydoz%C4%85

Revenue estimate

Valuation estimate

Number of profiles

Profiles13 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Polskie Towarzystwo Walki z Mukowiscydozą