Compassionate Care ALS

What Compassionate Care ALS does

Compassionate Care ALS (CCALS) is a 501(c)(3) nonprofit organization founded in 2002 (with predecessor Gordon T. Heald Fund dating to 1998) and headquartered in West Falmouth, Massachusetts. It delivers a holistic, free-of-charge care model for individuals diagnosed with ALS (PALS), their families and caregivers (CALS), and the broader community affected by the disease across New England, the United States, and internationally. The organization serves 1,500+ families through multidisciplinary staff of 25+ employees including Founder/Executive Director Ron Hoffman, Senior Family Care Liaisons, Speech-Language Pathologists, a Trauma & Spiritual Care Liaison, Equipment Program Director, Government Affairs Liaison, and Data Specialist.

CCALS's core services include: home-visit-based family needs assessments and emotional support; a Durable Medical Equipment program that refurbishes and distributes over $500,000 in donated goods annually (wheelchairs, ramps, bath equipment, voice amplifiers, communication boards); a wheelchair-accessible van transportation program; the Cultivating Compassion Education Series (educational workshops and population-specific support groups including Sons and Daughters of ALS, Mothers of ALS, Women/Men of ALS, Caregiver to Caregiver, and Beyond ALS); the MGH House Call Program partnership bringing clinical care to homebound patients; and the Heald Center, a fully accessible retreat facility completed in 2019. The organization also operates speech/assistive technology services and a Volunteer Caregiver Training Program (limited to 15 participants per cohort).

CCALS is funded primarily through individual donations ($50-$10,000 preset tiers plus monthly recurring and custom gifts), planned giving via the Gordon T. Heald Society, merchandise sales through an online store, securities/donor-advised fund gifts, and 10+ annual community fundraising events (Putt for ALS, Let's Tackle ALS, Falmouth Road Race, Climbing with Compassion, KRV for ALS Truck and Car Show, ShuckALS, Stroll & Roll, David's Old Silver Swim). It holds Charity Navigator and GuideStar/Candid transparency seals and claims to maintain low administrative overhead in line with National Charities Information Bureau and Standards for Excellence guidelines. Key institutional partnerships include Massachusetts General Hospital's Healy Center for ALS, ALS One coalition, ALS TDI, UMass Medical School, NEALS, End the Legacy, and the Parmenter Foundation.

Name

Compassionate Care ALS

Legal name

Compassionate Care ALS Inc

Website

https://ccals.org

Company type

Private

Founded year

2002

Operating status

Operating

Headcount range

1–10 employees

Short description

Compassionate Care ALS is a West Falmouth, MA-based 501(c)(3) nonprofit founded in 1998 that delivers free holistic care, equipment, home visits, and retreat services to 1,500+ ALS patients and their families across New England, the United States, and internationally, funded through donations and community fundraising events.

Ownership category

akta.pro rank

Product category

ALS Patient and Family Care Services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Home Health Care Services (6216), Other Individual and Family Services (624190), Services for the Elderly and Persons with Disabilities (62412), Other Residential Care Facilities (62399)

SIC

Services-Home Health Care Services (8082), Services-Social Services (8300)

akta.pro primary industry

Hospice Care Coordination & Interdisciplinary Team (IDT) Case Management (HSABAFAJ)

akta.pro secondary industries

Family Caregiver Coaching, Education & Support (HSABAIAI), Symptom & Pain Management In-Home (Palliative Clinical Visits) (HSABAFAG), Home Hospice Agencies (HLAFAEAC)

Keywords

• ALS patient care
• Palliative care services
• Medical equipment loan
• Caregiver support programs
• Nonprofit health services

Headquarters

HQ city

West Falmouth

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Supply Chain, Others

Revenue model

1. Individual Donations & Charitable Contributions: The primary revenue stream consists of individual donations made through the ccals.org website. Donors can give preset amounts ($10,000 down to $50), custom amounts, one-time or monthly recurring gifts, and honorary/memorial gifts. Donors at $100+ receive a commemorative Lou Gehrig baseball. The organization emphasizes low administrative overhead to maximize donation effectiveness.
2. Planned Giving & Bequests: The Gordon T. Heald Society is the planned giving program. Members include Compassionate Care ALS in their testamentary plans. The organization provides sample bequest language and accepts bequests, residuary bequests, and specific dollar bequests. Tax ID #04-3567819 is provided for planned giving.
3. Merchandise Sales: The CCALS online store sells branded merchandise including hooded sweatshirts, vests, crew neck shirts, hats, umbrellas, water bottles, and specialty items like Sacred Bullet and Motivated to Move Hat. Every purchase directly supports the mission of providing compassionate care to individuals living with ALS.
4. Securities, Stock & Donor-Advised Fund Gifts: The organization accepts appreciated securities including stock or mutual fund shares held more than one year, enabling donors to claim charitable deductions for full fair market value while avoiding capital gains taxes. Gifts via wire transfer and donor-advised funds are also accepted.
5. Donated Durable Goods: CCALS receives more than $500,000 annually in donated durable goods (equipment) which are refurbished and provided to families. While the equipment is donated in kind, the organization processes and distributes these goods as a core service, reducing its cost of goods sold and enabling service delivery.
6. Event Fundraising: Host-run fundraising events (Putt for ALS, Let's Tackle ALS, David's Old Silver Swim, etc.) generate revenue. Events include ticket sales (e.g., $50/ticket for Let's Tackle ALS), sponsorship packages (Bronze $500, Gold $1,000, Premiere $2,000), and general fundraising through event pages.

Pricing tiers

Go-to-market motion4 records

Distribution channels6 records

Marketing channels8 records

Core offering

Compassionate Care ALS provides a holistic, free-of-charge range of services to individuals living with ALS and their families, including home-visit care liaison support, durable medical equipment loans, speech and assistive technology assistance, Medicare/Medicaid navigation, caregiver training, educational workshops, and bereavement support. The organization also operates the Heald Center, a fully accessible retreat and education facility in West Falmouth, MA, and partners with Massachusetts General Hospital on the ALS House Call Program. All services are delivered regardless of insurance coverage, with operations funded primarily through donations, fundraising events, planned giving, and grants.

Product overview

Compassionate Care ALS is a nonprofit organization offering an innovative and holistic range of services for individuals with ALS and their families. The organization's offerings include core support services such as the ALS Patient, Family and Caregiver Support Program featuring home visits and emotional support; the Cultivating Compassion Education Series providing educational workshops; the House Call Program in partnership with MGH; the Van Program for accessible transportation; and an Equipment Program providing medical equipment. Additional services include speech and assistive technology support, a volunteer caregiver training program, an educational library with videos and contemplative resources, and various support groups (Sons and Daughters of ALS, Mothers of ALS, Women of ALS, Men of ALS, Caregiver to Caregiver, Beyond ALS). The organization operates the Heald Center, a retreat facility in West Falmouth, MA completed in 2019, and maintains a retail shop selling merchandise. Services are provided to families in New England, across the United States, and internationally.

Differentiator

Problem solved

Functional benefit

Products and services

• ALS Patient, Family and Caregiver Support Program

Quantifiable outcome

• Over 1,500 families supported
• +4 more outcomes

Named customers1 record

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered minor and core.

• Leonard Florence Center for LivingminorStrategic or Co-development Partner · 1 January 2026The Leonard Florence Center for Living (LFCL) is a Chelsea Jewish Nursing Home affiliated skilled nursing facility with 30 rooms devoted to ALS and MS patients. It is described as 'award-winning' and is the first urban Green House skilled nursing facility in the country. CCALS lists this as a resource for ALS families. LFCL operates the only Green House ventilator program in the country.
• RYCO FoundationminorGTM or Marketing Partner · 1 January 2026RYCO Foundation organizes the annual KRV for ALS Truck and Car Show at Gillette Stadium. In just two years, the event has raised nearly $75,000 to support CCALS ALS care programs. The 3rd annual event is planned for August 1, 2026.
• End the LegacyminorStrategic or Co-development Partner · 1 January 2023End the Legacy is a nonprofit foundation created by and for families impacted by inherited ALS and FTD. CCALS partnered with End the Legacy for the Genetic ALS Cultivating Compassion education session. Co-Founder Jean Swidler and Vice Chair Cassandra Haddad presented at CCALS's Cultivating Compassion Education Series.
• ALS OnecoreStrategic or Co-development Partner · 1 January 2019ALS One is a founding partner and coalition of ALS organizations. CCALS is funded in part and is a proud partner of ALS One. ALS One partners include MGH, UMass Medical School, ALS TDI, and numerous others working to accelerate ALS research and care.
• Massachusetts General Hospital (MGH) Healy Center for ALScoreStrategic or Co-development Partner · 1 January 2017Since 2017, CCALS has partnered with MGH's Healy Center for ALS on The ALS House Call Program, which gives homebound ALS patients access to medical services at home. The partnership is led by Dr. Merit Cudkowicz (Chief of Neurology at MGH) and CCALS Founder Ron Hoffman. The initiative allows CCALS families to access the latest research and clinical trials at MGH. CCALS has worked with Dr. Cudkowicz since 1997.
• Parmenter FoundationminorStrategic or Co-development Partner · 1 January 2015The Parmenter Foundation logo appears on the CCALS website as a funder, indicating financial or strategic support. Parmenter Foundation is based in the Boston area and supports hospice and palliative care.
• ALS TDI (ALS Therapy Development Institute)minorStrategic or Co-development Partner · 1 January 1997CCALS has known ALS TDI since the organization began. ALS TDI is a research-focused ALS organization and part of the ALS One coalition.
• UMass Medical School (UMMS)minorStrategic or Co-development Partner · 1 January 1997CCALS has worked with Dr. Brown at UMass Medical School since 1997. UMMS is part of the ALS One coalition and works on ALS research and clinical care.

Scale indicators6 records

Recent moves7 records

Expansion highlights6 records

Direct peers

• Project ALS: ALS-focused nonprofit funding translational research and patient support. Comparable mission and disease focus, but with a stronger research-funding emphasis and New York City base, differing from CCALS's holistic community-care model.
• MAC Angels Foundation: ALS patient and family support nonprofit founded in 2010 — notably by Chris Curtin, who subsequently joined CCALS as Director for Southern New England & Northern Atlantic States. Highly comparable in disease focus and direct family-services model, but smaller and earlier-stage.
• Les Turner ALS Foundation: Chicago-based ALS nonprofit providing patient services, support groups, and research funding. Closest regional analog to CCALS in mission and service mix (equipment, care support, research funding), serving a different geographic territory.
• I AM ALS: Patient-led ALS advocacy and support organization with a national footprint. Comparable disease focus and patient-family orientation; differs in being primarily an advocacy/movement organization versus CCALS's hands-on care-delivery model.
• ALS Therapy Development Institute (ALS TDI): Long-standing ALS-focused nonprofit that combines drug discovery with direct family support. Listed in the data as a known CCALS partner since 1997 and a member of the ALS One coalition; comparable in disease focus and family-services orientation, with a heavier research mandate.
• ALS One: Coalition of ALS organizations including CCALS, MGH, UMass Medical School, and ALS TDI focused on accelerating ALS research and care. Listed in the data as a 'founding partner' of CCALS; comparable in disease focus and patient-services orientation.

Broad incumbents

• Hospice Foundation of America: National nonprofit providing education and resources on hospice, palliative care, and grief. Comparable in addressing end-of-life and bereavement needs through education, family support, and professional training; operates at a much broader disease scope than CCALS.
• ALS Association: The largest US ALS-focused nonprofit, with national chapters, a research arm, and broad care-services programs. Highly comparable mission (ALS patient and family support), but operates at vastly larger scale and as a federation rather than a single regional community like CCALS.
• Muscular Dystrophy Association (MDA): Large neuromuscular disease nonprofit providing care, equipment, and research across ALS, muscular dystrophy, and related conditions. Comparable in providing equipment, family services, and multidisciplinary care for ALS patients, though at vastly larger scale and broader disease scope.
• Compassion & Choices: National nonprofit focused on end-of-life autonomy, advance care planning, and grief/bereavement support. Comparable in non-medical, holistic end-of-life care orientation and in serving terminally ill patients and families, though addressing a broader end-of-life mission rather than ALS specifically.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/ComCareALS
• LinkedInlinkedin.com/company/compassionate-care-als

Revenue estimate

Valuation estimate

Number of profiles

Profiles15 records

Funding overview

Funding rounds1 record

Investors1 record

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M&A

Investments

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Frequently asked questions about Compassionate Care ALS