filotimo foundation

Name

filotimo foundation

Legal name

Filotimo Foundation

Website

https://filotimofoundation.org

Company type

Private

Founded year

2023

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Cystic Fibrosis Patient Financial Assistance

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300)

akta.pro primary industry

Cystic Fibrosis & Bronchiectasis Care (HLAKANAK)

akta.pro secondary industry

Philanthropic & Charitable Trust Services (FSAAANAI)

Keywords

• Cystic fibrosis support
• Financial assistance grants
• Nonprofit health foundation
• Family building grants
• Patient hardship assistance

Headquarters

HQ city

Raleigh

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Others, Operations, Personnel, Marketing or Sales

Revenue model

1. Individual Donations: The foundation raises funds from individual donors through its website donation portal, direct mail, and event-based giving.
2. Corporate Sponsorships: Corporate sponsors support foundation events and programs. In 2025, there were 32 sponsor partners. The 2026 gala had multiple sponsor tiers including Galaxy, Supernova, New Moon, and Orion sponsors.
3. Event Fundraising: Annual galas and community events (Lung Run, Walk for Hope) generate significant fundraising revenue. The 2025 inaugural gala raised over $1.3 million; the 2026 gala raised over $2.5 million.

Go-to-market motion3 records

Distribution channels4 records

Marketing channels8 records

Core offering

Filotimo Foundation is a 501(c)(3) nonprofit that provides direct financial grants to adults living with cystic fibrosis. Grants cover medical expenses, daily living costs, and family-building needs including IVF and adoption. The foundation operates referral-based programs connecting eligible CF patients with financial support through partnerships with CF care centers, hospitals, and fertility clinics.

Product overview

The Filotimo Foundation is a 501(c)(3) non-profit organization that provides direct financial support to adults living with cystic fibrosis. The organization operates three core service programs: Hardship Support (covering medications, medical bills, equipment, transportation, food, lodging, rent, utilities, education, and emergency relief), Family-Building Support (grants for IVF, sperm retrieval, genetic testing, and adoption), and Cystic Fibrosis Advocacy (education and awareness campaigns). The foundation connects adults with a national network of hospital partners and fertility clinics to deliver these services.

Differentiator

Problem solved

Functional benefit

Products and services

• Hardship Support Program Direct financial grants to adults living with cystic fibrosis to cover medical expenses and daily living costs such as housing, food, and utilities. Recipients are identified through referrals from CF care centers and hospitals.
• Family-Building Support Program Financial grants to adults with cystic fibrosis to support family-building efforts, including IVF, fertility treatments, and adoption costs. Recipients are identified through referrals from fertility clinics and CF care centers.

Quantifiable outcome

• $591,676 in direct support delivered in 2025
• +4 more outcomes

Named customers5 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

36 partnerships are on record, tiered flagship, core and minor.

• Friends Fighting Cystic Fibrosis (FFCF)flagshipStrategic or Co-development Partner · 4 May 2026Partnership to support the CF community across every stage of life. FFCF focuses on children and families; Filotimo focuses on adults. Together they create a continuum of support from childhood through adulthood.
• Mandell's Clinical PharmacyflagshipStrategic or Co-development Partner · 10 February 2026Fertility-focused pharmacy providing competitive drug pricing for fertility medications. Mandell's provides 24/7 pharmacist availability and nurse injection coaching. Partnership reduces financial barriers for CF patients pursuing fertility treatments.
• Akron Children's HospitalcoreStrategic or Co-development PartnerCF care center partner providing referrals and coordinated care for adults with cystic fibrosis needing financial support.
• Albany Medical CollegecoreStrategic or Co-development PartnerCF care center partner providing referrals and coordinated care for adults with cystic fibrosis.
• AscensioncoreStrategic or Co-development PartnerHealthcare system partner with CF care centers providing referrals and coordinated care.
• ASRM (American Society for Reproductive Medicine)coreStrategic or Co-development PartnerProfessional society partner supporting fertility care and family building for adults with CF.
• Atlantic FertilityflagshipStrategic or Co-development PartnerFounding fertility clinic partner providing IVF, sperm retrieval, and fertility care for adults with CF. One of the original clinic partners in the family-building program.
• Atlantic HealthcoreStrategic or Co-development PartnerHealthcare system with CF care centers providing referrals and coordinated care.
• Atrium HealthcoreStrategic or Co-development PartnerHealthcare system with CF care centers providing referrals and coordinated care.
• Banner HealthcoreStrategic or Co-development PartnerHealthcare system with CF care centers providing referrals and coordinated care.
• Baylor College of MedicinecoreStrategic or Co-development PartnerAcademic medical center with CF care center providing referrals and coordinated care.
• Boston Children's HospitalcoreStrategic or Co-development PartnerChildren's hospital with CF care center providing referrals and coordinated care.
• Brigham and Women's Hospital Lung CentercoreStrategic or Co-development PartnerCF care center partner providing referrals and coordinated care.
• Cleveland CliniccoreStrategic or Co-development PartnerMajor healthcare system with CF care center providing referrals and coordinated care.
• Columbia University NY PresbyteriancoreStrategic or Co-development PartnerAcademic medical center with CF care center providing referrals and coordinated care.
• Duke HealthcoreStrategic or Co-development PartnerHealthcare system partner with CF care center. Founding partner of the foundation.
• Emory HealthcarecoreStrategic or Co-development PartnerHealthcare system with CF care center providing referrals and coordinated care.
• Ivy FertilityflagshipStrategic or Co-development PartnerNational fertility clinic partner with locations in California, Utah, Washington, Nevada, Idaho, Tennessee, Texas, Virginia, and New York. Provides advanced reproductive technologies for adults with CF.
• Johns Hopkins MedicinecoreStrategic or Co-development PartnerMajor academic medical center with CF care center providing referrals and coordinated care.
• Kaiser PermanentecoreStrategic or Co-development PartnerHealthcare system with CF care centers providing referrals and coordinated care.
• Mayo CliniccoreStrategic or Co-development PartnerMajor academic medical center with CF care center providing referrals and coordinated care.
• National Jewish HealthcoreStrategic or Co-development PartnerCF care center partner providing referrals and coordinated care.
• Northwestern MedicinecoreStrategic or Co-development PartnerHealthcare system with CF care center providing referrals and coordinated care.
• Stanford Health CarecoreStrategic or Co-development PartnerAcademic medical center with CF care center providing referrals and coordinated care.
• UCSFcoreStrategic or Co-development PartnerAcademic medical center with CF care center providing referrals and coordinated care.
• UNC HealthcareflagshipStrategic or Co-development PartnerHealthcare system partner. Founding partner of the foundation along with Atlantic Fertility. UNC Adult CF Clinic is a Philosophers Circle sponsor.
• University of PennsylvaniacoreStrategic or Co-development PartnerAcademic medical center with CF care center providing referrals and coordinated care.
• Vanderbilt University Medical CentercoreStrategic or Co-development PartnerAcademic medical center with CF care center providing referrals and coordinated care.
• Yale MedicinecoreStrategic or Co-development PartnerAcademic medical center with CF care center providing referrals and coordinated care.
• Kate FarmsminorStrategic or Co-development PartnerNutritional products partner providing support for CF patients needing nutritional care.
• Gift of AdoptionflagshipStrategic or Co-development PartnerPartnership to help CF individuals and couples pursuing adoption. Filotimo identifies and refers eligible CF individuals; Gift of Adoption provides grants to help cover final adoption costs.
• RESOLVE: The National Infertility AssociationcoreStrategic or Co-development PartnerPartnership with the national patient advocacy organization for infertility. Filotimo's fertility grant is listed on RESOLVE's Fertility Treatment and Scholarship grants page. Q&A featured RESOLVE's CEO Danielle Melfi.
• nOG Run ClubminorStrategic or Co-development PartnerCollaborative partner for The Lung Run community running events supporting adults with CF.
• Rock CF FoundationminorStrategic or Co-development PartnerCollaborative partner for The Lung Run Detroit event supporting adults with CF.
• Shady Grove FertilityminorStrategic or Co-development PartnerNew Moon sponsor for 2026 gala, fertility clinic partner providing family-building support.
• Gift of AdoptionflagshipStrategic or Co-development PartnerIn-kind sponsor for inaugural gala and strategic adoption partner.

Scale indicators13 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• National Organization for Rare Disorders (NORD): Federated umbrella organization for rare-disease nonprofits, including rare-disease direct-assistance programs. Comparable as the patient-support rail for genetic/rare conditions where Filotimo operates in a niche.
• Cystic Fibrosis Foundation: Largest and most established US CF nonprofit, raising hundreds of millions annually and operating 130+ accredited care centers. Directly comparable disease focus, but Filotimo is specifically differentiated by its adult-only and family-building niche while CFF covers the entire CF lifespan.
• American Society for Reproductive Medicine (ASRM): Professional society partner of Filotimo serving as the umbrella clinical body in reproductive medicine. Comparable as a fertility ecosystem organizer, though operating more as a professional/scientific body than a direct-grant nonprofit.
• RESOLVE: The National Infertility Association: National patient-advocacy organization for infertility. Filotimo's fertility grant is listed on RESOLVE's grants page; comparable in family-building advocacy and patient-navigation services for infertile populations.

Direct peers

• Gift of Adoption Fund: National adoption-grant organization that is a Flagship partner of Filotimo. Comparable model of directly funding beneficiary adoption expenses and operates in the same family-building grantmaking space.
• Boomer Esiason Foundation: CF-focused nonprofit funding research, scholarships, and direct patient support through hospital partnerships. Closest peer in mission, disease focus, and direct-grant model, though Filotimo is differentiated by its family-building and adult-only mandate.
• Friends Fighting Cystic Fibrosis (FFCF): CF nonprofit explicitly partnered with Filotimo to create a childhood-through-adulthood continuum. Complementary rather than competitive—FFCF focuses on children/families while Filotimo owns the adult segment.
• Rock CF Foundation: CF nonprofit leveraging running and fitness events for fundraising—Rock CF is a Lung Run partner. Direct peer in disease focus and event-driven GTM motion targeting the same adult-CF patient pool.
• Miracle Flights: Nonprofit providing free medical air transportation for low-income patients needing distant specialized care—including CF patients traveling to accredited care centers. Comparable model of direct service to chronically ill patient populations.
• Help Hope Live: National nonprofit helping patients afford medical costs through community-based fundraising. Directly comparable in providing direct financial assistance for medical/living costs to chronically ill patients, though without Filotimo's CF or family-building narrow focus.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/@FilotimoFoundation
• LinkedInlinkedin.com/company/filotimo-foundation
• Instagraminstagram.com/filotimo_foundation

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about filotimo foundation