Centre for Community-Driven Research

What Centre for Community-Driven Research does

CCDR (Centre for Community-Driven Research) is a Geneva-registered international non-governmental organization (iNGO) founded in 2012 that focuses on patient experience research and nurse-led virtual care for chronic and rare disease communities. The organization operates two core products: PEEK (Patient Experience Evidence in Knowledge), a structured research protocol capturing patient-reported experiences and quality-of-life data across more than 120 data points; and Pathways, a nurse-led virtual clinic that connects patients with specialized nurses for disease navigation, education, and care coordination. The two product lines share a common methodology and brand but target different end users — researchers, healthcare organizations, and pharmaceutical clients for PEEK, and individual patients and caregivers for Pathways.

The business model is non-profit and operates through three revenue streams: tiered monthly individual sponsorships priced at $100, $300, and $500; PEEK study subscriptions acquired by healthcare, academic, and pharmaceutical clients; and Pathways-related clinical service delivery. Commercial go-to-market is hybrid — direct sponsorship acquisition plus institutional PEEK study sales — with no disclosed enterprise customer concentration or subscription volumes. CCDR has built two global federations, the Global Federation of Patient Organisations (GFPO) and the Global Federation of Primary Care Nurses (GFPCN), signalling an organizational pivot from single-country research delivery toward a federated, network-based model of patient and clinician engagement.

The team is small, with 1–10 employees listed and up to 18 named individuals across broader activities, the majority of whom have limited publicly disclosed biographies. External recognition includes the 2024 APNA President's Award and a 2025 top-10 placement in the Aster Guardians Global Nursing Prize, both of which validate the nurse-led model and underpin federation and partnership credibility.

Name

Centre for Community-Driven Research

Legal name

Centre for Community-Driven Research

Website

https://cc-dr.org

Company type

Private

Founded year

2012

Operating status

Operating

Headcount range

1–10 employees

Short description

Centre for Community-Driven Research (CCDR) is a Geneva-based iNGO that runs PEEK, a structured patient experience research protocol, and Pathways, a nurse-led virtual clinic serving chronic and rare disease communities, funded via tiered sponsorships, PEEK study subscriptions, and global patient and nurse federations.

Ownership category

akta.pro rank

Product category

Community Health Nursing and Patient Experience Research Services

NAICS

Home Health Care Services (621610), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Home Health Care Services (8082), Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)

akta.pro industry

PRIMARYHLACAFAH

Virtual Nursing, Telemonitoring & Command Center Platforms

Healthcare & Life Sciences/Digital Health & Health IT/Remote Patient Monitoring (RPM) & Connected Care Platforms

SECONDARYHLALAFAF

Medication Adherence, Digital Therapeutics & Remote Coaching (condition-specific programs)

Healthcare & Life Sciences/Telehealth Platforms/Chronic Care & Remote Patient Monitoring (RPM) Platforms

SECONDARYHLALABAG

Post-Acute & Transitional Care Virtual Platforms (SNF/home health coordination)

Healthcare & Life Sciences/Telehealth Platforms/Provider-Integrated Virtual Care Platforms (Health Systems/Clinics)

SECONDARYHLALABAH

Care Navigation, Referral & Digital Front Door Platforms

Healthcare & Life Sciences/Telehealth Platforms/Provider-Integrated Virtual Care Platforms (Health Systems/Clinics)

Keywords

• Patient experience research
• Nurse-led telehealth
• Community health nursing
• Health system navigation
• Patient experience data

Headquarters

HQ city

Geneva

HQ country

Switzerland

HQ region

Europe

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Infrastructure

Revenue model

1. Pathways Nurse Sponsorship Programs: Monthly sponsorship tiers (Individual $100, Family $300, Patron $500) that support virtual clinic platform access, nurse employment costs, connectivity, cybersecurity, professional development, and follow-up care systems.
2. PEEK Subscription Repository: Subscription-based access to PEEK study reports and patient experience data repository. Reports available through subscription with transparent and systematic presentation of results.

Pricing tiers

Go-to-market motion1 record

Distribution channels2 records

Marketing channels4 records

Core offering

CCDR delivers nurse-led telehealth services through its Pathways virtual clinic and conducts patient experience research through the PEEK study program. Pathways provides protocol-based clinical assessments and health system navigation to patients with chronic and complex conditions, while PEEK generates subscription-accessible multi-dimensional patient experience data for healthcare providers, researchers, and policymakers. Supporting programs include the GroundUp monthly magazine and two international federations connecting patient organizations and community health nurses.

Product overview

CCDR offers a portfolio of nurse-led healthcare programs anchored by two core services: PEEK (Personal Experience, Expectations and Knowledge) studies—a mixed-methodology research platform that systematically collects patient experience data through standardized protocols—and Pathways, a virtual clinic providing nurse-led Telehealth consultations for health system navigation and community-based care. These are complemented by GroundUp, a monthly publication, and two international federations (GFPO and PCH Nursing Federation) that support collaboration across patient organisations and primary/community nursing globally.

Differentiator

Problem solved

Functional benefit

Brands

• PEEK: Personal Experience, Expectations and Knowledge studies using a single, standardized protocol and mixed-methods design including online questionnaire and structured interview for routine collection of patient experience and expectation data.
• Pathways
• Global Federation for Primary & Community Nursing (GFPCN)
• Global Federation of Patient Organisations (GFPO)

Products and services

• PEEK (Personal Experience, Expectations and Knowledge) Studies A subscription-based repository of patient experience data reports generated through mixed-methodology studies (online questionnaires plus structured interviews) covering 120+ data points per study across diagnosis, treatment, costs, quality of life, information access, and healthcare coordination. Reports are available to subscribing healthcare providers, researchers, and policymakers across multiple condition areas.
• Pathways Virtual Clinic A nurse-led telehealth service providing community-based triage and health system navigation. Patients access protocol-based assessments and interventions including surgical/hospitalization discharge assessment, medication assessment, symptom tracking, health literacy assessment, MDT assessment, pain assessment, and palliative care planning. Nurses implement an average of 10,000 assessments and interventions per 1,000 patients.
• Global Federation of Patient Organisations (GFPO) A network bringing together patient organisations and professionals working across public health and health systems to support collaboration, shared learning, and knowledge exchange.
• Global Federation for Primary & Community Nursing (PCH Nursing Federation) A federation connecting organisations with a global community of primary and community health nurses leading change from the ground up, advancing nurse-led community-based solutions that improve access, quality, and continuity of care worldwide through shared learning, collaboration, and collective action.

Quantifiable outcome

• Pathways nurses implement 10,000 assessments and interventions per 1,000 patients
• +1 more outcomes

Named customers3 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Three partnerships are on record, tiered core.

• Global Federation of Patient OrganisationscoreStrategic or Co-development PartnerPart of the Public Health Network Development & Implementation Program. Brings together professionals working across public health and health systems to support collaboration, shared learning, and knowledge exchange. Grounded in nurse-led approach connecting people, services, and communities across care settings.
• Global Federation for Primary & Community NursingcoreStrategic or Co-development PartnerConnects organisations with a global community of primary and community health nurses leading change from the ground up. Grounded in frontline practice and embedded in communities, the federation brings together nurses and partners delivering care, solving problems, and strengthening health systems every day through shared learning, collaboration, and collective action.
• Global Federation for Primary & Community Health NursingcoreStrategic or Co-development PartnerNetwork connecting organizations with global community of primary and community health nurses for shared learning, collaboration, and collective action to advance nurse-led, community-based solutions.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• HealthUnlocked: Patient community and self-reported health data platform used by patient organizations and researchers. Comparable to CCDR's PEEK studies in its focus on structured patient experience data and condition-area research.
• Maven Clinic: Virtual clinic specializing in women's and family health with a care coordinator/clinician-led model. Comparable to CCDR's Pathways in its virtual-care, nurse-coordinator approach and focus on specific patient populations.
• Vesta Healthcare: 24/7 virtual care and remote patient monitoring service for chronic and complex care populations, using a nurse-led model. Directly comparable to CCDR's nurse-led telehealth approach for chronic disease management.
• HealthTap: Direct-to-consumer virtual primary care platform offering on-demand consultations and ongoing care. Comparable to CCDR's Pathways in its virtual primary care delivery model and patient-first positioning.
• PatientsLikeMe: Patient-experience data platform collecting structured health data from patients across conditions. Directly comparable to CCDR's PEEK subscription repository in its patient-centered research methodology and condition-area coverage.

Broad incumbents

• Amwell: Enterprise telehealth platform serving health systems, insurers, and employers with virtual visits and care coordination. Comparable to CCDR's provider-integrated virtual care concept but far broader in scope and commercial scale.
• Teladoc Health: Global telehealth incumbent offering virtual primary care, specialty care, and chronic condition management. CCDR's Pathways competes in the same virtual care category but with a nurse-led, community-grounded model and a much smaller footprint.
• Accolade: Employer-sponsored care navigation and advocacy platform helping members navigate complex health systems. Closely comparable to CCDR's Pathways health-system-navigation value proposition but oriented around employer benefits rather than nurse-led protocols.

Emerging players

• Last Mile Health: Global nonprofit that trains community health workers to deliver primary care in remote and underserved settings. Comparable to CCDR in mission, community-driven nursing model, and rural/remote focus, though delivered in-person rather than via telehealth.

Others

• Partners In Health: International nonprofit providing healthcare to impoverished communities globally and conducting research on community-driven care models. Comparable to CCDR's iNGO structure and community-nursing advocacy, though at much larger scale with hospital-based delivery.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• Facebookfacebook.com/CCDRUK
• LinkedInlinkedin.com/company/ccdr

Revenue estimate

Valuation estimate

Number of profiles

Profiles18 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Centre for Community-Driven Research