Landon's Legacy Foundation

What Landon's Legacy Foundation does

Landon's Legacy Foundation is a 501(c)(3) public charity (EIN 93-3038871) headquartered in Chandler, Arizona, established in 2023 by Julie Lazzara and Mark D'Aprile in memory of their son Landon, who was diagnosed with infantile spasms and Lennox-Gastaut Syndrome before passing away in June 2022 at age five. The foundation serves children and families affected by disabilities and rare diseases — with particular emphasis on epilepsy — operating through three pillars: Advocacy, Focused Charitable Giving, and Community Outreach. Core programs include the Chandler Community AED Grant Program (delivering Automated External Defibrillators to local organizations in partnership with Avive), the Landon's Dream Big Travel Safety Bed Grant (19 specialized beds distributed in April 2026 via Safe Place Bedding), two annual scholarship programs administered through the Chandler Education Foundation and Maricopa Community Colleges Foundation, and free Emergency Response Training delivering two-year CPR/AED and Seizure Recognition and Response certifications in partnership with Lifework Education and Epilepsy Alliance America. The foundation also co-sponsors educational webinars and participates in community events such as HopeWalk Arizona.

Name

Landon's Legacy Foundation

Legal name

Landon's Legacy Foundation

Website

https://landonslegacyfoundation.org

Company type

Private

Founded year

2023

Operating status

Operating

Headcount range

1–10 employees

Short description

Landon's Legacy Foundation is a 501(c)(3) public charity in Chandler, Arizona, founded in 2023 to advocate for children and families affected by disabilities and rare diseases through grant programs, scholarships, safety equipment distribution, and free emergency response training.

Ownership category

akta.pro rank

Product category

Nonprofit Disability and Rare Disease Advocacy

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Grantmaking and Giving Services (81321)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600), Services-Educational Services (8200)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industries

Education Grantmaking Foundations (BPAGAKAK), Scholarship & Fellowship Foundations and Trusts (EDADAHAC)

Keywords

• Disability advocacy services
• Rare disease support
• Emergency response training
• Community grants programs
• Educational scholarships

Headquarters

HQ city

Chandler

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: The foundation relies on donations from individuals, corporations, and charitable giving programs to fund its operations and programs.
2. Merchandise Sales: Sale of branded merchandise including LLF logo t-shirts, hoodies, long sleeve shirts, and State 48 collaboration shirts. Proceeds directly support the foundation's mission.
3. Event Revenue: Revenue from ticketed events such as the Bubble Bash Gala ($150/ticket) and Rebel Goes Purple Pub-In ($15/ticket), including silent auctions and raffles.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

Landon's Legacy Foundation is a 501(c)(3) public charity that provides free emergency response training (CPR/AED and Seizure Recognition and Response certifications), administers grant programs distributing safety travel beds and AED units to families and community organizations, and awards scholarships to students pursuing careers serving the disability and rare disease community. It also conducts advocacy, educational webinars, and community events in support of children and families affected by disabilities and rare diseases.

Product overview

Landon's Legacy Foundation is a 501(c)(3) public charity established in 2023 in honor of Landon D'Aprile, offering a portfolio of grant programs, scholarships, and community training initiatives. The foundation operates through three pillars: Advocacy (championing change for children and families affected by rare diseases and disabilities), Focused Charitable Giving (strategic investments through scholarships and endowment funds), and Community Outreach (providing training, awareness, and resources through collaboration). Key programs include the Chandler Community AED Grant Program providing Automated External Defibrillators, the Dream Big Travel Safety Bed Grant providing specialized beds to families, academic scholarships for students pursuing careers in disability support, and Emergency Response Training certifications. The foundation also hosts educational webinars and community events like HopeWalk Arizona, and sells branded merchandise to support its mission.

Differentiator

Problem solved

Functional benefit

Products and services

• Chandler Community AED Grant Program Grant initiative offering one Chandler, Arizona organization a complimentary Automated External Defibrillator (AED) unit in partnership with Avive, targeting local organizations within city limits including schools, sports fields, community centers, places of worship, and public-access locations.
• Landon's Dream Big Travel Safety Bed Grant Grant program providing specialized, durable travel beds to families navigating complex medical needs, epilepsy, and developmental challenges, in partnership with Safe Place Bedding.
• Landon's Legacy Scholarship (CUSD High School Seniors) A $1,000 annual award supporting graduating Chandler Unified School District high school seniors pursuing careers dedicated to helping the disability and rare disease community, administered through the Chandler Education Foundation.
• Landon's Legacy Foundation Scholarship (Maricopa Community Colleges) A $500 per semester scholarship supporting undergraduate students enrolled in Maricopa Community Colleges pursuing health sciences degrees, administered through the Maricopa Community Colleges Foundation.
• Emergency Response Training for the Inclusive Community Free hands-on emergency response training providing two-year certifications from Lifework Education (AHA Accredited CPR/AED) and Epilepsy Alliance America (Seizure Recognition and Response), open to community members aged 10 and older.
• Webinar: Seizure Action Plans: What, Why, and How Educational webinar describing seizure action plans (SAPs), documents that guide care when a person living with epilepsy has a seizure, covering types, implementation, efficacy, and controversies. Sponsored by Neurelis and Landon's Legacy Foundation.
• HopeWalk Arizona Participation Annual participation in HopeKids' HopeWalk Arizona at Notre Dame Prep High School in Scottsdale, AZ, featuring games, activities, mascots, snacks, and live entertainment for families with children facing life-threatening medical conditions.
• LLF Logo Merchandise Branded merchandise including LLF Logo Tees (t-shirts, hoodies, long sleeve shirts in youth and adult sizes) designed by Landon's grandfather, and LLF State 48 Shirts representing the foundation alongside State 48 Arizona non-profit collaboration. Proceeds directly support the foundation's mission.

Named customers2 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

14 partnerships are on record, tiered core and minor.

• Epilepsy Alliance AmericacoreStrategic or Co-development PartnerLandon's Legacy Foundation is a member of Epilepsy Alliance America and participates in their programs including seizure safety training and seizure recognition and response certification. The foundation serves as an Epilepsy Alliance America Awareness Partner for Seizure Action Plans.
• HopeKidscoreStrategic or Co-development PartnerLandon's Legacy Foundation participates in HopeWalk Arizona, a family-friendly community event for families with children battling life-threatening medical conditions. The foundation maintains an informational table at HopeKids events.
• Phoenix Children's FoundationcoreStrategic or Co-development PartnerPartnership supporting children and families served by Phoenix Children's Hospital, particularly those with epilepsy and complex medical needs.
• Partners Against Mortality in Epilepsy (PAME)coreStrategic or Co-development PartnerLandon's Legacy Foundation co-sponsored a webinar on Seizure Action Plans with PAME, bringing together medical experts to discuss seizure action plan types, implementation, and controversies.
• Chandler Education FoundationcoreStrategic or Co-development PartnerAdministers the Landon's Legacy Scholarship for CUSD high school seniors pursuing careers in special education, physical therapy, occupational therapy, and speech-language pathology.
• Maricopa Community Colleges FoundationcoreStrategic or Co-development PartnerAdministers the Landon's Legacy Foundation Scholarship for undergraduate students in health sciences at Maricopa Community Colleges.
• NeurelisminorGTM or Marketing PartnerNeurelis co-sponsored the Seizure Action Plans webinar alongside Landon's Legacy Foundation, contributing to educational programming on epilepsy management.
• City of ChandlercoreStrategic or Co-development PartnerCity of Chandler supports foundation initiatives including the AED Grant Program targeting Chandler businesses and organizations. The foundation also participates in the Mayor's Committee for People with Disabilities.
• Safe Place BeddingcoreStrategic or Co-development PartnerOngoing partnership providing specialized, durable travel beds designed for individuals with complex medical needs, epilepsy, and developmental challenges. Through this partnership, the foundation has distributed 19 safety travel beds to families.
• AvivecoreStrategic or Co-development PartnerOfficial AED provider for the Chandler Community AED Grant Program, supplying state-of-the-art automated external defibrillator devices to Chandler organizations.
• Lifework EducationcoreStrategic or Co-development PartnerAHA Accredited training provider for emergency response training, offering CPR/AED certification through Landon's Legacy Foundation's community training programs.
• State for Forty EightminorGTM or Marketing PartnerCollaboration on State 48 shirts representing two Arizona non-profits on a single shirt design, one of the foundation's most requested merchandise items.
• Child Neurology FoundationminorStrategic or Co-development PartnerPartner organization supporting families affected by neurological conditions, including the Willow and Wind grief community program.
• Cystic Fibrosis FoundationminorStrategic or Co-development PartnerPartner organization serving families affected by cystic fibrosis, sharing resources and community connections.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• Epilepsy Foundation: The largest national epilepsy advocacy and research nonprofit in the U.S. Directly comparable in epilepsy-focused advocacy, Seizure Safe School Laws, and seizure first aid training; Landon's Legacy operates in a narrower geographic niche of this broader organization's mandate.
• National Organization for Rare Disorders (NORD): The largest U.S. rare disease patient advocacy organization. Comparable in advocacy, education, and rare-disease beneficiary focus, but operates at national scale with substantially larger resources than Landon's Legacy.
• Cystic Fibrosis Foundation: Major rare-disease-serving nonprofit and named Landon's Legacy partner organization. Comparable in serving families affected by rare pediatric conditions, though at vastly larger scale and with a disease-specific research orientation.
• CURE Epilepsy: Patient-founded epilepsy nonprofit focused on research funding and community support. Comparable mission to Landon's Legacy (patient-family-driven response to childhood epilepsy) but operating at national scale with a research-grant orientation.

Direct peers

• Epilepsy Alliance America: National epilepsy member organization that Landon's Legacy is actually a member of. Both deliver seizure safety training, Seizure Action Plan awareness, and community education; Landon's Legacy serves as an Awareness Partner for SAPs inside this alliance.
• Danny Did Foundation: Nonprofit founded by the parents of a child who died from epilepsy, focused on SUDEP awareness and seizure detection/response technology grants. Closely analogous to Landon's Legacy in origin story, family-driven model, and mission around seizure safety resources.
• HopeKids: Nonprofit providing events and ongoing support for children with life-threatening medical conditions, including HopeWalk Arizona which Landon's Legacy participates in. Comparable in target beneficiary segment and community-event-based delivery model.
• Child Neurology Foundation: National nonprofit supporting children with neurological conditions and their families; Landon's Legacy is a partner organization. Comparable in target population (children with rare neurological conditions) and family-support programming such as the Willow and Wind grief community.

Emerging players

• SUDEP Action: Specialty nonprofit focused on SUDEP (Sudden Unexpected Death in Epilepsy) awareness and bereavement support. Comparable in mission overlap with Landon's Legacy's response to Landon's passing and its focus on seizure action plans and emergency response.

Regional players

• Phoenix Children's Foundation: Fundraising arm of Phoenix Children's Hospital; existing Landon's Legacy partner. Comparable in supporting children with complex medical needs in the same Arizona geography, particularly epilepsy and related conditions.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/landonslegacy
• Instagraminstagram.com/love4landonslegacy

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles11 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Landon's Legacy Foundation